“哀悼你梦想失去的部分,但不是以这种方式”:一位被诊断患有乳腺癌的非二元性患者的经历。

IF 0.7 4区 医学 Q4 SURGERY
Sara Cho, Mike Hooves, Claire Temple-Oberle
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引用次数: 0

摘要

目的:非二元乳腺癌(NBBC)患者有独特的医疗保健需求,可能无法满足由于乳腺癌的性别性质。在这里,我们探索了一个NBBC人的多方面经历。方法:采用定性强化案例研究方法。收集了多源数据,包括深度访谈,博客文章检查和绘制漫画评价,使用多文本主题分析来生成主题。方法上的严谨性是通过成员检查、保持审计跟踪和举行几次会议以商定主题来实现的。结果:参与者的治疗包括双侧乳房切除术,化疗和放疗。使用多源三角测量法,确定了四个主题,分别是领导、谈判、处于中间和限制。领导包括感受为非bbc患者铺平道路的责任。例如,参与者描述了他们的博客文章是如何作为一种资源来创建的,以改善他们在临床和在线上感到的“缺乏代表性”。谈判包含了在医疗环境中的负面经历,并且必须在进入之前做好心理准备。在采访和博客文章中,他们都提到“进入医疗空间[准备]被错误性别化”。夹在中间凸显了他们在博客中分享的交叉身份,以及缺乏支持他们交叉身份的支持团体,“我觉得自己像一个孤岛。”最后,限制捕捉到了她们对自己性别表达缺乏控制的感觉,这在化疗期间尤其明显,因为她们非常清楚自己被如何看待。“我不知道(人们)是否把秃顶和扁平视为一种选择。”结论:该个体经历了严重的社会心理压力,包括孤立、性别错误和性别不安,这些都被乳腺癌的粉红色清洗放大了。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"Mourning Parts You Dreamed of Losing-But Not This Way": The Experience of a Nonbinary Person Diagnosed With Breast Cancer.

Purpose: Nonbinary breast cancer (NBBC) patients have unique healthcare needs that may not be met due to the gendered nature of breast cancer. Herein we explore the multifaceted experiences of an NBBC person. Methods: Qualitative intensive case study methodology was employed. Multisource data was gathered, including an in-depth interview, blogposts examination, and drawn comic evaluation analyzed using polytextual thematic analysis to generate themes. Methodologic rigor was pursued using member checking, maintaining an audit trail and holding several meetings to agree upon themes. Results: The participant's treatment included a double mastectomy, chemotherapy, and radiation. Using multisource triangulation, four themes were identified, named leading, negotiating, being in-between, and confining. Leading encompasses feeling the responsibility of paving the way for NBBC patients. The participant described, for instance, how their blogposts were created as a resource, to ameliorate the "lack of representation" they felt clinically and online. Negotiating encapsulates negative experiences in healthcare settings and having to mentally prepare before entering them. In both interview and blogpost, they mentioned "going into medical spaces [preparing] to be misgendered". Being in-between highlights their intersecting identities shared in their blogposts, and the lack of support groups that supported their intersecting identities, "I felt like an island." Finally, confining captures the lack of control they felt over their gender expression, which was especially salient during chemotherapy when they were hyperaware of how they were perceived "I don't know if [people] see the baldness and flatness as a choice." Conclusion: This individual experienced significant psychosocial stress from isolation, misgendering, and gender dysphoria magnified by the pink-washing of their breast cancer journey.

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来源期刊
Plastic surgery
Plastic surgery Medicine-Surgery
CiteScore
1.70
自引率
0.00%
发文量
73
期刊介绍: Plastic Surgery (Chirurgie Plastique) is the official journal of the Canadian Society of Plastic Surgeons, the Canadian Society for Aesthetic Plastic Surgery, Group for the Advancement of Microsurgery, and the Canadian Society for Surgery of the Hand. It serves as a major venue for Canadian research, society guidelines, and continuing medical education.
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