提供者和家长对儿童早期生活逆境筛查研究的看法。

Sabrina R Liu, Candice Taylor Lucas, Megan Y Maxwell, Natasha G Lindert, Vanessa M Vargas, Dan M Cooper, Charles V Golden, Michael A Weiss, Laura M Glynn
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引用次数: 0

摘要

越来越多的证据表明,早期生活逆境(ELA),包括不良童年经历(ace)和不可预测性,与健康和发展受到破坏有关。这一认识增加了初级保健机构对ELA的筛查,并为进一步研究ELA与健康之间的关系提供了新的机会。必须确保对ELA和ELA筛查的研究有意地包括传统上在研究中代表性不足的人群,特别是考虑到在种族和少数民族和低收入社区中ELA暴露率不成比例。南加州儿童研究旨在研究ace和不可预测性对南加州儿童神经发育的影响。为了为本研究提供信息,我们聘请社区参与工作室(CES)与参与ELA筛查的医疗提供者和专职卫生专业人员以及当地家长进行咨询(N = 24)。CES的目标是收集社区和从业者对ELA筛查和研究的见解。通过快速定性分析,我们确定了信任、对后代的益处、程序建议和关注、对问卷回答的看法以及自我反思等主题。主要发现包括明确沟通的重要性以及医疗服务提供者参与招聘的重要性,该研究作为激励因素对后代的潜在益处,对文化响应性研究的建议,解决低报问题的建议,以及作为促进自我反思的工具的研究,对育儿实践和临床护理产生积极影响。本研究强调了社区知情研究的重要性,以解决ELA的影响,包括ace和不可预测性,并培养信任和参与研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Provider and Parent Perspectives on Pediatric Screening for Research on Early Life Adversity.

Growing evidence links early life adversity (ELA), including Adverse Childhood Experiences (ACEs) and unpredictability, to disrupted health and development. This knowledge has led to increased screening for ELA in primary care settings and provided new opportunities to further research associations between ELA and health. It is imperative to ensure that research on ELA and ELA screening is intentionally inclusive of populations traditionally underrepresented in research, especially given disproportionate rates of exposure to ELA among racially and ethnically minoritized and low-income communities. The SoCal Kids Study aims to examine the effects of ACEs and unpredictability on child neurodevelopment in Southern California. To inform this study, we employed Community Engagement Studios (CES) to consult with medical providers and allied health professionals involved in ELA screening, as well as local parents (N = 24). The goal of the CES was to gather community and practitioner insights on ELA screening and research. Using rapid qualitative analyses, we identified themes of trust, benefits to future generations, procedural recommendations and concerns, perspectives on questionnaire responses, and self-reflection. Key findings include the importance of clear communication and involving medical providers in recruitment, the study's potential benefits for future generations as a motivating factor, recommendations for culturally responsive research, suggestions for addressing under-reporting, and research as a vehicle to prompt self-reflection that positively impacts parenting practices and clinical care. This study underscores the importance of community-informed research to address impacts of ELA, including ACEs and unpredictability, and to cultivate trust and participation in research.

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