家庭照护者在痴呆症照护中使用支持性移动应用程序的观点与经验:质性研究的元综合。

IF 6.2 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Haifei Shen, Yi Han, Wen Shi, Jiangxuan Yu, Xueqi Shan, Hongyao Wang, Junjie Wang
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引用次数: 0

摘要

背景:支持性移动应用程序是痴呆症患者家庭照顾者获取在线信息和心理支持的有效工具。然而,关于痴呆症患者的家庭照顾者使用移动应用程序的经验的细节是有限的。目的:本研究旨在综合痴呆症患者家庭照顾者对支持性移动应用程序的看法和经验。方法:采用综合定性研究方法,检索7个英文数据库和4个中文数据库。我们纳入了从数据库建立到2025年3月发布的支持性移动应用程序中,用英文和中文撰写的关于痴呆症患者家庭照顾者的观点和经验的定性研究(同行评审研究和灰色文献)。两名研究人员独立筛选文献,并使用JBI定性研究关键评估清单对最终纳入的研究进行质量评估。Thomas和Harden采用三阶段主题综合方法整合主题。结果:初步检索到4772项研究,其中12项(0.25%)符合标准。纳入的研究来自7个不同的国家或地区,其中唯一的低收入或中等收入国家是巴西。这些研究共涉及232名家庭照顾者,其中大多数是老年人和女性。对提取内容的整合产生了4个主题:价值感知的动态变化——对移动应用采用的复杂态度;从工具到合作伙伴——为家庭照顾者提供技术支持的多维支持系统;外部和内部障碍——家庭护理人员使用移动应用程序的挑战以及以人为本的设计——改进移动应用的未来方向。结论:本研究发现,家庭照护者使用支持性移动应用程序的态度受到移动应用程序感知价值和家庭照护负担的影响。此外,这些支持性的移动应用程序是家庭照顾者提高照顾能力和效率、减轻照顾负担、改善负面情绪、培养社会联系和促进自我照顾的宝贵工具。未来的移动应用设计需要解决诸如设计缺陷、家庭护理人员缺乏技术知识、时间限制、对隐私泄露的担忧以及其他与设备相关的问题等障碍,尤其要注意移动应用的易用性。同时,开发人员需要致力于设计个性化和多功能的移动应用程序,并促进护理网络成员之间的在线协作。总的来说,我们的研究为开发以人为本的支持性移动应用程序为痴呆症患者的家庭照顾者提供了重要的参考。试验注册:PROSPERO CRD42024510905;https://www.crd.york.ac.uk/PROSPERO/view/CRD42024510905。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Perspectives and Experiences of Family Caregivers Using Supportive Mobile Apps in Dementia Care: Meta-Synthesis of Qualitative Research.

Perspectives and Experiences of Family Caregivers Using Supportive Mobile Apps in Dementia Care: Meta-Synthesis of Qualitative Research.

Perspectives and Experiences of Family Caregivers Using Supportive Mobile Apps in Dementia Care: Meta-Synthesis of Qualitative Research.

Background: Supportive mobile apps are effective tools for family caregivers of persons with dementia to obtain online information and psychological support. Nevertheless, details about the experiences of family caregivers of persons with dementia using mobile apps are limited.

Objective: This study aimed to synthesize the perspectives and experiences of family caregivers of persons with dementia regarding supportive mobile apps.

Methods: We conducted a synthesis of qualitative research and searched 7 English-language databases and 4 Chinese-language databases. We included qualitative studies (peer-reviewed studies and gray literature) written in English and Chinese on the perspectives and experiences of family caregivers of persons with dementia regarding supportive mobile apps published from database establishment to March 2025. Two researchers independently screened the literature and used the JBI Critical Appraisal Checklist for Qualitative Research to conduct quality assessments on the final included studies. Themes were integrated using the 3-stage thematic synthesis approach by Thomas and Harden.

Results: A preliminary search yielded 4772 studies, of which 12 (0.25%) met the criteria. The included studies were from 7 different countries or regions, of which the only low- or middle-income country was Brazil. The studies involved a total of 232 family caregivers, most of whom were older adults and female. The integration of extracted content resulted in 4 themes: dynamic changes in value perception-complex attitudes toward mobile app adoption; from tools to partners-a technology-empowered multidimensional support system for family caregivers; external and internal barriers-challenges in family caregivers' use of mobile apps; and person-centered design-future directions for improving mobile apps.

Conclusions: This study found that family caregivers' attitudes toward using supportive mobile apps are influenced by their perceived value of mobile apps and their caregiving burden. In addition, such supportive mobile apps serve as valuable tools for family caregivers to enhance their caregiving abilities and efficiency, alleviate the burden of care, improve negative emotions, foster social connections, and promote self-care. Future mobile app design needs to address obstacles such as design flaws, family caregivers' lack of technological literacy, time constraints, concerns about privacy breaches, and other device-related issues, with particular attention to the ease of use of mobile apps. Meanwhile, developers need to commit to designing personalized and multifunctional mobile apps as well as promote online collaboration among members of the care network. Overall, our study offers an important reference for developing person-centered supportive mobile apps for family caregivers of persons with dementia.

Trial registration: PROSPERO CRD42024510905; https://www.crd.york.ac.uk/PROSPERO/view/CRD42024510905.

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来源期刊
JMIR mHealth and uHealth
JMIR mHealth and uHealth Medicine-Health Informatics
CiteScore
12.60
自引率
4.00%
发文量
159
审稿时长
10 weeks
期刊介绍: JMIR mHealth and uHealth (JMU, ISSN 2291-5222) is a spin-off journal of JMIR, the leading eHealth journal (Impact Factor 2016: 5.175). JMIR mHealth and uHealth is indexed in PubMed, PubMed Central, and Science Citation Index Expanded (SCIE), and in June 2017 received a stunning inaugural Impact Factor of 4.636. The journal focusses on health and biomedical applications in mobile and tablet computing, pervasive and ubiquitous computing, wearable computing and domotics. JMIR mHealth and uHealth publishes since 2013 and was the first mhealth journal in Pubmed. It publishes even faster and has a broader scope with including papers which are more technical or more formative/developmental than what would be published in the Journal of Medical Internet Research.
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