支持患有发育协调障碍(DCD)的青少年应对日常挑战:青少年视角的定性研究。

IF 2.1 4区 医学 Q1 REHABILITATION
Shahar Zaguri-Vittenberg, Miri Tal-Saban
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引用次数: 0

摘要

目的:患有发育协调障碍(DCD)的青少年每天都面临着影响他们健康的挑战。针对DCD患者的现有干预措施针对的是年龄较小的儿童。本研究旨在探讨青少年对应对资源和专业支持的看法,为制定适龄干预方案提供依据。材料与方法:采用解释现象学方法,对11名患有双相障碍的青少年进行半结构化访谈。研究发现:出现了三个主题:(1)“我如何帮助自己摆脱怪物”——感知日常运作的应对资源,包括外部资源,自我利用的策略(计划,任务分解),以及专注于坚持和能力的适应性心态;(2)“我不是坐在轮椅上”——对专业支持的不同态度;有些人由于耻辱或渴望自力更生而回避它,而另一些人则无视实际障碍而重视它;和(3)“我希望它是什么样子”——专业支持的优先级和需求,强调实践技能和情感方面,DCD的知识以及如何向他人解释它,以及个性化或组合小组设置的偏好。结论:研究结果表明,青少年DCD的干预应以功能为导向,结合心理教育知识和增强心理社会资源,同时尊重他们的独立性和自力更生的需要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Supporting adolescents with developmental coordination disorder (DCD) in their daily challenges: a qualitative study of adolescents' perspectives.

Purpose: Adolescents with developmental coordination disorder (DCD) face daily challenges that affect their well-being. Existing interventions for individuals with DCD target younger children. This study explored adolescents' perspectives on coping resources and professional support, to inform age-appropriate intervention protocol development.

Materials and methods: Informed by the interpretive phenomenological approach, semi-structured interviews were conducted with 11 adolescents with DCD.

Findings: Three themes emerged: (1) "How I help myself get rid of the monster" - perceived coping resources for daily functioning, including external sources, self-utilised strategies (planning, task breakdown), and adaptive mindsets focused on persistence and capabilities; (2) "I'm not sitting in a wheelchair" - varying attitudes toward professional support; some avoid it due to stigma or aspiration for self-reliance, while others value it despite practical barriers; and (3) "What I want it to be like" - the priorities and needs in professional support, which emphasized practical skills and emotional aspects, knowledge of DCD and how to explain it to others, and preferences for individualized or combined group settings.

Conclusions: The findings indicate that interventions for adolescents with DCD should focus on function-oriented approaches, combined with psycho-educational knowledge about the disorder and enhancement of their psychosocial resources, while respecting their independence and need for self-reliance.

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来源期刊
Disability and Rehabilitation
Disability and Rehabilitation 医学-康复医学
CiteScore
5.00
自引率
9.10%
发文量
415
审稿时长
3-6 weeks
期刊介绍: Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.
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