C A M Huisman, E R C M Huisman, R G A Brankaert, H S M Kort
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Sleep at home for older persons with dementia and their caregivers: a qualitative study of their experiences and challenges.
Most people with dementia (PwD) live with the support of their caregiver. Sleep issues are common among all types of dementia and increase the burden on the IC. Disturbed nights may lead to earlier admission to nursing homes. This study explored the experiences and challenges related to the sleep of PwD and IC. A qualitative study using semi-structured interviews was performed. The target groups were PwD, ICs, and care professionals. The sample comprised 20 informal caregivers, 2 PwD, and 9 care professionals. Thematic analysis was used to identify patterns within and across data concerning the experiences and challenges of participants. In total, 31 participants were interviewed in 28 sessions. Three themes were identified, namely, (a) challenges in maintaining time orientation and day/night routines, (b) irregularities and concerns of informal caregivers at night, and (c) environmental cues that support or disturb sleep. The results provide insight into the experiences of IC at home regarding their sleep and the sleep of PwD at home. Our results may guide the development of non-pharmacological interventions to support sleep and day structure with a certain balance in activities.
期刊介绍：
The European Journal of Ageing: Social, Behavioural and Health Perspectives is an interdisciplinary journal devoted to the understanding of ageing in European societies and the world over.
EJA publishes original articles on the social, behavioral and population health aspects of ageing and encourages an integrated approach between these aspects.
Emphasis is put on publishing empirical research (including meta-analyses), but conceptual papers (including narrative reviews) and methodological contributions will also be considered.
EJA welcomes expert opinions on critical issues in ageing.
By stimulating communication between researchers and those using research findings, it aims to contribute to the formulation of better policies and the development of better practice in serving older adults.
To further specify, with the term ''social'' is meant the full scope of social science of ageing related research from the micro to the macro level of analysis. With the term ''behavioural'' the full scope of psychological ageing research including life span approaches based on a range of age groups from young to old is envisaged. The term ''population health-related'' denotes social-epidemiological and public health oriented research including research on functional health in the widest possible sense.
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