以解决方案为中心的模型出院准备指导干预对中国儿童肝移植患者父母的影响:一项单中心观察研究。

IF 1.5 4区 医学 Q2 PEDIATRICS
Translational pediatrics Pub Date : 2025-05-30 Epub Date: 2025-05-23 DOI:10.21037/tp-2025-66
Ting He, Xiaobo Huang, Zhaoyan Feng, Fang Huang, Fanfan Yang, Chunrong Chen, Jeremie Minani, Qin Wei, Christine Pocha, Lihua Tang
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引用次数: 0

摘要

背景:肝移植是治疗胆汁淤积症、遗传代谢性疾病、急性肝衰竭和肝脏恶性肿瘤等儿科疾病的唯一有效方法。随着肝移植技术的不断进步,越来越多的终末期肝病患儿正在接受这种救命的治疗。儿科LT患者的父母经常面临重大的心理挑战,包括焦虑、抑郁和对自己提供术后护理的能力缺乏信心。本研究旨在评估以解决方案为中心的模型出院准备指导干预对改善儿科LT患者家长出院准备和心理健康状况的影响。方法:采用方便抽样的方法,选取广西医科大学第一附属医院器官移植科住院的110例小儿LT患者的父亲或母亲作为研究对象。该研究为期2年,以55名2022年接受肝移植的儿童家长为对照组,55名2023年接受肝移植的儿童家长为实验组。实验组接受常规教育,并在每周二和周五进行约20至30分钟的量身定制的以解决方案为重点的咨询会议。对照组接受标准治疗。评估干预前后的出院准备得分,以及所提供出院咨询的质量得分。结果:实验组出院准备得分(个人状态、应对能力、预期支持总分和分量表)和出院咨询质量显著高于对照组(p)。以解决方案为中心的模式干预提高了家长的出院准备程度和出院咨询的质量,从而提高了患者和护理人员的术后生活质量,降低了小儿LT患者的意外再入院率。未来的研究应该通过更大样本量的多中心试验来解决这些局限性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The effects of a solution-focused model discharge readiness coaching intervention on the parents of Chinese pediatric liver transplantation patients: a single-center observational study.

Background: Liver transplantation (LT) is the only effective treatment for pediatric diseases such as cholestatic diseases, genetic metabolic diseases, acute liver failure, and liver malignancies. With the continuous improvement of LT technology, more and more children with end-stage liver disease are receiving this life-saving treatment. Parents of pediatric LT patients often face significant psychological challenges, including anxiety, depression, and a lack of confidence in their ability to provide postoperative care. This study aimed to evaluate the impact of a solution-focused based model discharge readiness coaching intervention on improving the discharge readiness and mental health status of parents of pediatric LT patients.

Methods: A convenience sampling method was used to select either the father or the mother of 110 pediatric LT patients hospitalized in the Organ Transplantation Department of The First Affiliated Hospital of Guangxi Medical University as study participants. The study was conducted over 2 years, with 55 parents of children who underwent LT in 2022 serving as the control group and 55 parents of children who underwent LT in 2023 serving as the experimental group. The experimental group received routine education plus tailored, solution-focused counseling sessions lasting approximately 20 to 30 minutes each, conducted every Tuesday and Friday. The control group received standard care. Discharge readiness scores before and after the intervention, as well as the quality scores for the discharge counseling provided, were assessed.

Results: The experimental group showed significantly higher discharge readiness scores (total and subscales: personal status, coping ability, anticipatory support) and discharge counseling quality compared to the control group (P<0.05). The effect size for the total discharge readiness score was 0.85, indicating a large effect. The intervention also reduced unplanned readmissions and improved postoperative quality of life. However, due to the limitations of the study design, including the single-center nature and small sample size, the findings should be interpreted with caution.

Conclusions: The solution-focused model intervention improved parents' discharge readiness and the quality of discharge counseling, thus improving the patients and caregivers postoperatively quality of life and reducing the unplanned readmission rate of pediatric LT patients. Future studies should address these limitations through multicenter trials with larger sample sizes.

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来源期刊
Translational pediatrics
Translational pediatrics Medicine-Pediatrics, Perinatology and Child Health
CiteScore
4.50
自引率
5.00%
发文量
108
期刊介绍: Information not localized
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