David B Nicholas, Fakhri Shafai, Stephen M Edelson, Vanessa Bal, Hilary Nelson, Wenn Lawson, Mary Doherty, Hilde M Geurts, William F Sullivan, B Blair Braden, Gregory L Wallace, Maxine Share, Laura St John, David G Amaral, Agnes H Whitaker, Lori Watters, Terri Robson, Joanne Gauthier, Sylvère Moulanier, Linda Perry, Sandy Stemp, Ellen Wilkinson, Nancy Jokinen, Margaret L Bauman, Robert Hendren, Evdokia Anagnostou, Julian N Trollor
{"title":"促进自闭症和/或智力残疾社区老年人健康和生活质量的护理优先事项:国际智库会议录。","authors":"David B Nicholas, Fakhri Shafai, Stephen M Edelson, Vanessa Bal, Hilary Nelson, Wenn Lawson, Mary Doherty, Hilde M Geurts, William F Sullivan, B Blair Braden, Gregory L Wallace, Maxine Share, Laura St John, David G Amaral, Agnes H Whitaker, Lori Watters, Terri Robson, Joanne Gauthier, Sylvère Moulanier, Linda Perry, Sandy Stemp, Ellen Wilkinson, Nancy Jokinen, Margaret L Bauman, Robert Hendren, Evdokia Anagnostou, Julian N Trollor","doi":"10.1186/s12919-025-00330-8","DOIUrl":null,"url":null,"abstract":"<p><p>As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.</p>","PeriodicalId":9046,"journal":{"name":"BMC Proceedings","volume":"19 Suppl 11","pages":"15"},"PeriodicalIF":0.0000,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12168249/pdf/","citationCount":"0","resultStr":"{\"title\":\"Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank.\",\"authors\":\"David B Nicholas, Fakhri Shafai, Stephen M Edelson, Vanessa Bal, Hilary Nelson, Wenn Lawson, Mary Doherty, Hilde M Geurts, William F Sullivan, B Blair Braden, Gregory L Wallace, Maxine Share, Laura St John, David G Amaral, Agnes H Whitaker, Lori Watters, Terri Robson, Joanne Gauthier, Sylvère Moulanier, Linda Perry, Sandy Stemp, Ellen Wilkinson, Nancy Jokinen, Margaret L Bauman, Robert Hendren, Evdokia Anagnostou, Julian N Trollor\",\"doi\":\"10.1186/s12919-025-00330-8\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.</p>\",\"PeriodicalId\":9046,\"journal\":{\"name\":\"BMC Proceedings\",\"volume\":\"19 Suppl 11\",\"pages\":\"15\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2025-06-16\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12168249/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"BMC Proceedings\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1186/s12919-025-00330-8\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"Biochemistry, Genetics and Molecular Biology\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"BMC Proceedings","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1186/s12919-025-00330-8","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"Biochemistry, Genetics and Molecular Biology","Score":null,"Total":0}
Advancing care priorities for health and quality of life among older adults in the autism and/or intellectual disabilities communities: proceedings of an international Think Tank.
As the number of older autistic adults and adults with intellectual disabilities grows, expanding capacity to meet their needs is crucial. On November 23-25, 2023, a Think Tank on aging in autism and/or intellectual disabilities was convened, with national and international delegates within this field. The Think Tank consisted of presentations focusing on key issues as well as a series of panel presentations addressing first-person lived experience, family caregiving, service provision in the community, and physical and mental health-based care. Discussion reflected lived experiences and care needs in this population, with an ultimate aim of advancing healthcare and community support. Delegates, who represent perspectives as self-advocates, family caregivers, service providers, clinicians and researchers, ranked guidelines and areas of focus identified in the literature in terms of the most important priorities for the near-term development of capacity building resources.