儿童和家庭败血症后护理需求:来自西澳大利亚的单中心、共设计定性研究。

IF 4.5 2区 医学 Q1 CRITICAL CARE MEDICINE
Pediatric Critical Care Medicine Pub Date : 2025-08-01 Epub Date: 2025-06-09 DOI:10.1097/PCC.0000000000003770
Natalie J Middleton, Kathleen Anastasas, Joanna White, Catherine Pienaar, Joanne Harvey, Tenielle Bale, Timothy Wakeling, Bernard McCarthy, Christopher C Blyth, Fenella J Gill
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引用次数: 0

摘要

目的:对于儿童及其父母来说,败血症是一种改变生活的疾病,具有深远的社会心理和身体影响。我们的目的是探讨这些患者及其父母在败血症住院后的需求,为西澳大利亚败血症后护理服务的发展提供信息。设计:与四名有脓毒症经历的儿童的父母共同设计定性研究,包括访谈录音和父母、医疗保健和教育专业人员的焦点小组。地点:西澳大利亚州珀斯儿童医院。患者和参与者:在2024年2个月的时间里,对15名败血症患儿的父母进行了访谈;四位家长参加了一个焦点小组。还有23名保健或教育专业人员参加了两个焦点小组。干预措施:没有。测量方法和主要结果:对焦点小组的录音进行逐字转录、匿名化,并采用归纳描述性专题分析进行分析。在两组参与者中,确定了两个主要主题和六个副主题。主要主题是“败血症的影响”和“败血症后的支持性护理”。脓毒症的影响因人而异,可能影响家庭生活的多个方面。家长们强调了脓毒症的深刻的社会心理和身体后果,强调了个性化支持、沟通和出院后随访的必要性。专业人员概述了目前脓毒症后护理实践中的差距,并建议对儿童及其家庭采取额外的支持措施。护理协调被描述为一种整体的、跨部门的医疗保健模式,被确定为确保卫生、教育、残疾和社区部门之间无缝协作的关键需求,同时为家庭提供教育、信息和资源。结论:这项对父母和医疗保健或教育专业人员的随访研究表明,在脓毒症后的护理中,需要进行协调的、个性化的随访,并在出院后为家庭提供持续的临床支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Postsepsis Care Needs in Children and Families: Single-Center, Codesign Qualitative Research From Western Australia.

Objectives: Sepsis, for children and their parents, is a life-altering illness with far-reaching psychosocial and physical impacts. We aimed to explore the needs of such patients and their parents after hospital admission for sepsis to inform the development of a Western Australian postsepsis care service.

Design: Qualitative study codesigned with four parents of children with personal experience of sepsis, which involved audio recording of interviews and focus groups of parents and healthcare and education professionals.

Setting: Perth Children's Hospital, Western Australia.

Patients and participants: Over a 2-month period in 2024, 15 parents of children who had recovered from sepsis were interviewed; four parents participated in a focus group. There were also 23 healthcare or education professionals who participated in two focus groups.

Interventions: None.

Measurements and main results: The audio-recorded focus groups were transcribed verbatim, anonymized, and analyzed using inductive descriptive thematic analysis. Across both groups of participants, two major themes and six subthemes were identified. The major themes were "the impact of sepsis" and "supportive care after sepsis." The impact of sepsis varied between individuals with the potential to affect multiple aspects of family life. Parents highlighted the profound psychosocial and physical consequences of sepsis, emphasizing the need for individualized support, communication, and follow-up after discharge. Professionals outlined gaps in current postsepsis care practices and suggested additional support measures for children and their families. Care coordination, described as a holistic, cross-sector healthcare model, was identified as a key need to ensure seamless collaboration across health, education, disability, and community sectors, while providing families with education, information, and resources.

Conclusions: This follow-up study of parents and healthcare or education professionals identified that in postsepsis care there is a need for coordinated, individualized follow-up, with ongoing clinical support for families after discharge.

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来源期刊
Pediatric Critical Care Medicine
Pediatric Critical Care Medicine 医学-危重病医学
CiteScore
7.40
自引率
14.60%
发文量
991
审稿时长
3-8 weeks
期刊介绍: Pediatric Critical Care Medicine is written for the entire critical care team: pediatricians, neonatologists, respiratory therapists, nurses, and others who deal with pediatric patients who are critically ill or injured. International in scope, with editorial board members and contributors from around the world, the Journal includes a full range of scientific content, including clinical articles, scientific investigations, solicited reviews, and abstracts from pediatric critical care meetings. Additionally, the Journal includes abstracts of selected articles published in Chinese, French, Italian, Japanese, Portuguese, and Spanish translations - making news of advances in the field available to pediatric and neonatal intensive care practitioners worldwide.
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