Fatima Al Sayah, Hilary Short, Arto Ohinmaa, Stafford Dean, Brenda Hubley, Markus Lahtinen, Jeffrey A Johnson
{"title":"利益相关者对在卫生系统中实施和整合患者报告结果措施(PROMs)的观点——来自加拿大阿尔伯塔省的见解。","authors":"Fatima Al Sayah, Hilary Short, Arto Ohinmaa, Stafford Dean, Brenda Hubley, Markus Lahtinen, Jeffrey A Johnson","doi":"10.1186/s41687-025-00887-0","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Patient-reported outcome measures (PROMs) are valuable tools for evaluating outcomes of healthcare interventions and have been increasingly used in health systems around the world. While PROMs adoption has grown globally, variations exist in their use across the health system. This stakeholder engagement and consultation activity aims to understand factors impacting PROMs adoption, implementation, and utilization, and identify strategies for enhancing utilization of PROMs data within the healthcare system in Alberta, Canada.</p><p><strong>Methodology: </strong>Key stakeholders from various roles were interviewed, including PROMs programs, health system improvement, data analytics, clinical practice, evaluation, health economics, and research, from diverse clinical areas, including cancer, primary care, epilepsy, rehabilitation, arthroplasty, cardiovascular surgery, and rheumatology. Interviews were recorded, transcribed and analyzed using thematic analysis. Results were synthesized using the Consolidated Framework for Implementation Research (CFIR) and Diffusion of Innovation Framework (DOI).</p><p><strong>Results: </strong>A total of 25 interviews, lasting between 45 and 60 minutes, were completed. Factors impacting the adoption, implementation and utilization of PROMs within the Alberta healthcare system included: (1) Intervention characteristics: shared understanding of PROMs, challenges in capturing relevant patient outcomes, standardization and integration of PROMs, modalities of data collection, making PROMs actionable at the patient-clinician level, and interpreting PROMs data; (2) Inner setting: Cultural shift towards patient-centered care, change management and clinician mindset, organizational commitment and support, integration into broader measurement frameworks, access to PROMs data, potential for replication and adaptation, and importance of incentives and requirements; (3) Outer setting: Resource constraints, policy and systemic challenges, focus on value-based care, and responsible use of PROMs data; (4) Characteristics of individuals: Expertise and understanding of PROMs, and stakeholder engagement and education; and (5) Process: Balancing bottom-up and top-down approaches, workflow integration, patient engagement, and continuous evaluation and quality improvement.</p><p><strong>Conclusions: </strong>The study highlights factors influencing PROMs adoption in Alberta, including the need for a unified understanding, workflow integration, and electronic data use. Key strategies involve fostering patient-centered care, ensuring organizational support, addressing resource and policy issues, and providing targeted education. Engaging early adopters and offering incentives can improve PROMs integration and patient outcomes.</p>","PeriodicalId":36660,"journal":{"name":"Journal of Patient-Reported Outcomes","volume":"9 1","pages":"63"},"PeriodicalIF":2.9000,"publicationDate":"2025-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12141181/pdf/","citationCount":"0","resultStr":"{\"title\":\"Stakeholders' perspectives on implementing and integrating patient-reported outcome measures (PROMs) in health systems - insights from Alberta, Canada.\",\"authors\":\"Fatima Al Sayah, Hilary Short, Arto Ohinmaa, Stafford Dean, Brenda Hubley, Markus Lahtinen, Jeffrey A Johnson\",\"doi\":\"10.1186/s41687-025-00887-0\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Patient-reported outcome measures (PROMs) are valuable tools for evaluating outcomes of healthcare interventions and have been increasingly used in health systems around the world. While PROMs adoption has grown globally, variations exist in their use across the health system. This stakeholder engagement and consultation activity aims to understand factors impacting PROMs adoption, implementation, and utilization, and identify strategies for enhancing utilization of PROMs data within the healthcare system in Alberta, Canada.</p><p><strong>Methodology: </strong>Key stakeholders from various roles were interviewed, including PROMs programs, health system improvement, data analytics, clinical practice, evaluation, health economics, and research, from diverse clinical areas, including cancer, primary care, epilepsy, rehabilitation, arthroplasty, cardiovascular surgery, and rheumatology. Interviews were recorded, transcribed and analyzed using thematic analysis. Results were synthesized using the Consolidated Framework for Implementation Research (CFIR) and Diffusion of Innovation Framework (DOI).</p><p><strong>Results: </strong>A total of 25 interviews, lasting between 45 and 60 minutes, were completed. Factors impacting the adoption, implementation and utilization of PROMs within the Alberta healthcare system included: (1) Intervention characteristics: shared understanding of PROMs, challenges in capturing relevant patient outcomes, standardization and integration of PROMs, modalities of data collection, making PROMs actionable at the patient-clinician level, and interpreting PROMs data; (2) Inner setting: Cultural shift towards patient-centered care, change management and clinician mindset, organizational commitment and support, integration into broader measurement frameworks, access to PROMs data, potential for replication and adaptation, and importance of incentives and requirements; (3) Outer setting: Resource constraints, policy and systemic challenges, focus on value-based care, and responsible use of PROMs data; (4) Characteristics of individuals: Expertise and understanding of PROMs, and stakeholder engagement and education; and (5) Process: Balancing bottom-up and top-down approaches, workflow integration, patient engagement, and continuous evaluation and quality improvement.</p><p><strong>Conclusions: </strong>The study highlights factors influencing PROMs adoption in Alberta, including the need for a unified understanding, workflow integration, and electronic data use. Key strategies involve fostering patient-centered care, ensuring organizational support, addressing resource and policy issues, and providing targeted education. Engaging early adopters and offering incentives can improve PROMs integration and patient outcomes.</p>\",\"PeriodicalId\":36660,\"journal\":{\"name\":\"Journal of Patient-Reported Outcomes\",\"volume\":\"9 1\",\"pages\":\"63\"},\"PeriodicalIF\":2.9000,\"publicationDate\":\"2025-06-05\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12141181/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Patient-Reported Outcomes\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.1186/s41687-025-00887-0\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Patient-Reported Outcomes","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1186/s41687-025-00887-0","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
Stakeholders' perspectives on implementing and integrating patient-reported outcome measures (PROMs) in health systems - insights from Alberta, Canada.
Background: Patient-reported outcome measures (PROMs) are valuable tools for evaluating outcomes of healthcare interventions and have been increasingly used in health systems around the world. While PROMs adoption has grown globally, variations exist in their use across the health system. This stakeholder engagement and consultation activity aims to understand factors impacting PROMs adoption, implementation, and utilization, and identify strategies for enhancing utilization of PROMs data within the healthcare system in Alberta, Canada.
Methodology: Key stakeholders from various roles were interviewed, including PROMs programs, health system improvement, data analytics, clinical practice, evaluation, health economics, and research, from diverse clinical areas, including cancer, primary care, epilepsy, rehabilitation, arthroplasty, cardiovascular surgery, and rheumatology. Interviews were recorded, transcribed and analyzed using thematic analysis. Results were synthesized using the Consolidated Framework for Implementation Research (CFIR) and Diffusion of Innovation Framework (DOI).
Results: A total of 25 interviews, lasting between 45 and 60 minutes, were completed. Factors impacting the adoption, implementation and utilization of PROMs within the Alberta healthcare system included: (1) Intervention characteristics: shared understanding of PROMs, challenges in capturing relevant patient outcomes, standardization and integration of PROMs, modalities of data collection, making PROMs actionable at the patient-clinician level, and interpreting PROMs data; (2) Inner setting: Cultural shift towards patient-centered care, change management and clinician mindset, organizational commitment and support, integration into broader measurement frameworks, access to PROMs data, potential for replication and adaptation, and importance of incentives and requirements; (3) Outer setting: Resource constraints, policy and systemic challenges, focus on value-based care, and responsible use of PROMs data; (4) Characteristics of individuals: Expertise and understanding of PROMs, and stakeholder engagement and education; and (5) Process: Balancing bottom-up and top-down approaches, workflow integration, patient engagement, and continuous evaluation and quality improvement.
Conclusions: The study highlights factors influencing PROMs adoption in Alberta, including the need for a unified understanding, workflow integration, and electronic data use. Key strategies involve fostering patient-centered care, ensuring organizational support, addressing resource and policy issues, and providing targeted education. Engaging early adopters and offering incentives can improve PROMs integration and patient outcomes.