从医院到家庭：卫生专业人员关于姑息病人需求的经验。

IF 3.5 2区医学 Q2 CLINICAL NEUROLOGY

Journal of pain and symptom management Pub Date : 2025-05-28 DOI:10.1016/j.jpainsymman.2025.05.012

Sara Cruz , Carla Fernandes , Bruno Magalhães

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引用次数: 0

摘要

背景：社区姑息治疗团队在提供综合姑息治疗方面发挥着核心作用，促进医院和家庭之间对患有姑息治疗情况的个人的护理的连续性。目的：本研究旨在了解社区姑息治疗团队卫生专业人员在姑息治疗从医院到家庭的过渡和整合过程中对姑息患者需求的经验。方法：进行描述性现象学研究。从葡萄牙社区姑息治疗小组招募了28名保健专业人员。通过个人访谈收集数据，并使用Giorgi的方法进行分析。结果:从数据分析中产生了六个主题，反映了卫生专业人员在姑息治疗整合过程中对姑息治疗患者需求的本质经验：1患者自主性的感知丧失和对变化的适应；2过渡的准备和支持；3患者观察到的情绪方面和心理影响；4专业人员感知到的护理人员面临的挑战；6社区支持、支持网络和辅助技术。结论：本研究有助于更深入地了解卫生专业人员在家中整合姑息治疗的经验，突出了这一过程的复杂性以及对组织、情感和培训支持的需求。

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From Hospital to Home: Health Professionals’ Experiences Regarding the Needs of Palliative Patients

Background

Community palliative care teams play a central role in providing integrated palliative care, promoting continuity of care between the hospital and home for individuals in palliative situations.

Objective

This study aimed to understand the experiences of health professionals in community palliative care teams regarding the needs of palliative patients during the transition and integration process of palliative care from hospital to home.

Methods

A descriptive phenomenological study was conducted. Twenty-eight health professionals from community palliative care teams in Portugal were recruited. Data were collected through individual interviews and analyzed using Giorgi’s method.

Results

Six themes emerged from the data analysis, reflecting the essence of health professionals’ experiences with the needs of palliative patients during the integration process of palliative care: 1) Perceived loss of patient autonomy and adaptation to change; 2) Preparation and support for the transition; 3) Emotional Aspects and Psychological Impact observed in patients; 4) Challenges Faced by Caregivers as perceived by professionals; 6) Community support, support networks, and assistive technologies.

Conclusions

This study contributes to a deeper understanding of health professionals’ experiences in integrating palliative care at home, highlighting the complexity of this process and the need for organizational, emotional, and training support.

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来源期刊

Journal of pain and symptom management 医学-临床神经学

CiteScore

8.90

自引率

6.40%

发文量

821

审稿时长

26 days

期刊介绍： The Journal of Pain and Symptom Management is an internationally respected, peer-reviewed journal and serves an interdisciplinary audience of professionals by providing a forum for the publication of the latest clinical research and best practices related to the relief of illness burden among patients afflicted with serious or life-threatening illness.