雕塑之旅:一项关于英国无薪照护者信息共享的光声研究

IF 2 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Vita Snowden
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引用次数: 0

摘要

本文探讨了无薪照护者面临的关键和往往是压倒性的任务:收集和解释复杂的信息,以便可以访问和理解卫生和社会保健系统。本研究以无薪照顾者的观点和声音为中心,通过定性研究,对照顾者如何在以职业为中心的群体活动中分享和解释信息进行了丰富的分析,为实践者和照顾者提供了实用的见解。在英国,《2014年关爱法案》(Care Act 2014)规定地方政府有法律义务提供信息;然而,这通常被简化为“路标”,给护理人员留下未解决的问题和重大挫折。因此,照顾者经常依靠彼此来填补这些空白,并支持他们所照顾的人。采用批判现实主义本体论和社会建构主义认识论,本研究平衡了《关爱法案》的外部现实与无报酬照顾者的主观经验。这项研究使用了一种结合视觉和叙事技术的“光声”方法,使护理人员能够传达他们分享信息的方法。反身性主题分析确定了“信息高速公路:雕塑之旅”的主要主题及其副主题“信息桥梁”。这一分析加深了对护理人员如何以及何时有效地分享信息的理解,解决了以职业为中心的小组活动文献中未被充分探索的领域。它说明了以职业为导向的信息共享如何增强照顾者对权利和资源的认识,同时培养联系和支持感。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A Sculptured Journey: A Photovoice Study About Information Sharing Among Unpaid Carers in England

This article explores the critical and often overwhelming task faced by unpaid carers: gathering and interpreting complex information so that health and social care systems can be accessed and understood. Based on a qualitative study centering the views and voices of unpaid carers, it provides a rich analysis of how carers share and interpret information within carer-centered group activities, offering practical insights for both practitioners and carers. In England, the Care Act 2014 places legal duties on local governments to provide information; however, this is often reduced to “signposting,” leaving carers with unresolved questions and significant frustration. Consequently, carers frequently rely on one another to fill these gaps and support those they care for. Adopting a critical realist ontology and a social constructionist epistemology, this study balances the external realities of the Care Act with the subjective experiences of unpaid carers. Using photovoice, a method combining visual and narrative techniques, the study enabled carers to convey their approaches to information sharing. Reflexive thematic analysis identified the key theme of “an information highway: a sculptured journey” along with its subtheme, “an information bridge.” This analysis deepens understanding of how and when carers share information effectively, addressing an underexplored area within the literature on carer-centered group activities. It illustrates how carer-led information sharing enhances carers’ knowledge of rights and resources while fostering a sense of connection and support.

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来源期刊
CiteScore
4.50
自引率
8.30%
发文量
423
期刊介绍: Health and Social Care in the community is an essential journal for anyone involved in nursing, social work, physiotherapy, occupational therapy, general practice, health psychology, health economy, primary health care and the promotion of health. It is an international peer-reviewed journal supporting interdisciplinary collaboration on policy and practice within health and social care in the community. The journal publishes: - Original research papers in all areas of health and social care - Topical health and social care review articles - Policy and practice evaluations - Book reviews - Special issues
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