Filipa Alexandra Baptista Peixoto Befecadu, Paola Gasche, Dan Adler, Ivan Guerreiro, Sophie Pautex, Lisa Hentsch
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It is therefore important to explore healthcare professionals' (HPs) point of view about PC to improve access for COPD patients to PC.</p><p><strong>Objectives: </strong>This study aimed to describe the perceptions of HPs working with COPD patients in Switzerland in different settings on PC provision, implementation, access, and organization. Additionally, we aimed to identify gaps, barriers, training needs, and solutions for HPs related to PC needs.</p><p><strong>Design: </strong>This is a cross-sectional survey study with quantitative and open-ended questions.</p><p><strong>Methods: </strong>We used an electronic survey sent to HPs working with patients suffering from COPD in the inpatient, outpatient, and home-based settings.</p><p><strong>Results: </strong>A total of 56 out of 98 participants (57%) answered the questionnaire of which 41.1% were nurses. 47.2% of participants were uncertain about the good timing of addressing COPD patients to PC and did it after several acute exacerbations, during EoL, or at the request of the patient. 45.5% did not know the availability of a local specialized PC. 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引用次数: 0
摘要
背景：慢性阻塞性肺疾病（COPD）是一种引起慢性身体症状、心理负担以及社会后果的疾病。这导致了生活质量（QoL）的严重下降。姑息治疗（PC）是一种以人为中心的方法，旨在减轻身体、心理、社会和精神上的痛苦。尽管有国际实践指南，COPD患者获得PC的机会有限，主要是在生命末期（EoL）护理期间。因此，探讨医疗保健专业人员（HPs）关于PC的观点以改善COPD患者获得PC的途径是很重要的。目的：本研究旨在描述在瑞士不同环境下治疗COPD患者的hp在PC提供、实施、获取和组织方面的看法。此外，我们的目标是确定差距、障碍、培训需求和解决方案，为hp相关的PC需求。设计：这是一个带有定量和开放式问题的横断面调查研究。方法：我们使用电子调查发送给在住院、门诊和家庭环境中与COPD患者一起工作的hp。结果：98名受访人员中有56人（57%）回答了问卷，其中护士占41.1%。47.2%的参与者不确定向COPD患者进行PC治疗的好时机，在几次急性加重后、EoL期间或应患者要求进行PC治疗。45.5%的人不知道本地是否有专门的个人电脑。缺乏技能/培训被认为是讨论EoL的阻碍因素之一（42.9% N = 56）。结论：尽管认识到个人电脑的重要性，但仍发现了几个障碍，包括缺乏关于何时启动个人电脑的知识，以及用于识别个人电脑需求的工具的有限利用。多学科团队合作和护士协调员的确定可以改善早期转介到PC和改善慢性阻塞性肺病患者的生活质量。
Healthcare professionals' representation toward optimal palliative care provision for COPD patients: a cross-sectional survey.
Background: Chronic obstructive pulmonary disease (COPD) is a condition causing chronic physical symptoms, psychological burdens, as well as social consequences. This contributes to a major decrease in quality of life (QoL). Palliative care (PC) is a person-centered approach intended to relieve physical, psychological, social, and spiritual suffering. Despite international practice guidelines, patients with COPD have limited access to PC, mostly during end-of-life (EoL) care. It is therefore important to explore healthcare professionals' (HPs) point of view about PC to improve access for COPD patients to PC.
Objectives: This study aimed to describe the perceptions of HPs working with COPD patients in Switzerland in different settings on PC provision, implementation, access, and organization. Additionally, we aimed to identify gaps, barriers, training needs, and solutions for HPs related to PC needs.
Design: This is a cross-sectional survey study with quantitative and open-ended questions.
Methods: We used an electronic survey sent to HPs working with patients suffering from COPD in the inpatient, outpatient, and home-based settings.
Results: A total of 56 out of 98 participants (57%) answered the questionnaire of which 41.1% were nurses. 47.2% of participants were uncertain about the good timing of addressing COPD patients to PC and did it after several acute exacerbations, during EoL, or at the request of the patient. 45.5% did not know the availability of a local specialized PC. Lack of skills/training was identified as one of the hindering factors to discuss EoL (42.9% N = 56).
Conclusion: Despite recognizing the importance of PC, several barriers were identified, including a lack of knowledge about when to initiate a PC and limited utilization of tools for identifying PC needs. Multidisciplinary teamwork and the identification of a nurse coordinator could improve earlier referrals to PC and improve QoL for COPD patients.
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