{"title":"是时候了:世界各地的土著人民现在必须行使他们的人权,并完全控制他们的数据主权权利","authors":"Lynne Stuart, Naomi Howell","doi":"10.1002/hpja.70055","DOIUrl":null,"url":null,"abstract":"<p>This article examines the ongoing exploitation of Indigenous Peoples' research data and health data, and the urgent need for Indigenous data sovereignty in Australia. Despite ethical research frameworks, Indigenous Peoples health data continues to be collected, controlled, and used by non-Indigenous institutions, limiting community access and decision-making. Ethical engagement with Indigenous health data is crucial for the success of the Closing the Gap initiatives. Strengthening Indigenous governance over health data, and ethical research practices, is essential for meaningful progress. This paper advocates for policy reforms, Indigenous-led research governance and Indigenous data sovereignty.</p>","PeriodicalId":47379,"journal":{"name":"Health Promotion Journal of Australia","volume":"36 3","pages":""},"PeriodicalIF":1.4000,"publicationDate":"2025-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hpja.70055","citationCount":"0","resultStr":"{\"title\":\"The Time Has Come: Indigenous Peoples Worldwide Must Now Exercise Their Human Rights and Take Full Control Over Their Data Sovereignty Rights\",\"authors\":\"Lynne Stuart, Naomi Howell\",\"doi\":\"10.1002/hpja.70055\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>This article examines the ongoing exploitation of Indigenous Peoples' research data and health data, and the urgent need for Indigenous data sovereignty in Australia. Despite ethical research frameworks, Indigenous Peoples health data continues to be collected, controlled, and used by non-Indigenous institutions, limiting community access and decision-making. Ethical engagement with Indigenous health data is crucial for the success of the Closing the Gap initiatives. Strengthening Indigenous governance over health data, and ethical research practices, is essential for meaningful progress. This paper advocates for policy reforms, Indigenous-led research governance and Indigenous data sovereignty.</p>\",\"PeriodicalId\":47379,\"journal\":{\"name\":\"Health Promotion Journal of Australia\",\"volume\":\"36 3\",\"pages\":\"\"},\"PeriodicalIF\":1.4000,\"publicationDate\":\"2025-05-24\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1002/hpja.70055\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health Promotion Journal of Australia\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1002/hpja.70055\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Promotion Journal of Australia","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1002/hpja.70055","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
The Time Has Come: Indigenous Peoples Worldwide Must Now Exercise Their Human Rights and Take Full Control Over Their Data Sovereignty Rights
This article examines the ongoing exploitation of Indigenous Peoples' research data and health data, and the urgent need for Indigenous data sovereignty in Australia. Despite ethical research frameworks, Indigenous Peoples health data continues to be collected, controlled, and used by non-Indigenous institutions, limiting community access and decision-making. Ethical engagement with Indigenous health data is crucial for the success of the Closing the Gap initiatives. Strengthening Indigenous governance over health data, and ethical research practices, is essential for meaningful progress. This paper advocates for policy reforms, Indigenous-led research governance and Indigenous data sovereignty.
期刊介绍:
The purpose of the Health Promotion Journal of Australia is to facilitate communication between researchers, practitioners, and policymakers involved in health promotion activities. Preference for publication is given to practical examples of policies, theories, strategies and programs which utilise educational, organisational, economic and/or environmental approaches to health promotion. The journal also publishes brief reports discussing programs, professional viewpoints, and guidelines for practice or evaluation methodology. The journal features articles, brief reports, editorials, perspectives, "of interest", viewpoints, book reviews and letters.