“要知道你是链条上的一环”:一个现实主义的评估,探索数字化的、密集的、父母实施的干预措施如何对患有语音障碍的儿童起作用,为什么,为谁

IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Naomi Leafe, Emma Pagnamenta, Mark Donnelly, Laurence Taggart, Jill Titterington
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引用次数: 0

摘要

中度至重度语音障碍患儿需要强化治疗以提高干预效果和效率。然而,世界各地的言语和语言治疗师(slt)报告说,在临床实践中很难实施推荐的干预强度。支持父母/照顾者通过数字工具提供家庭干预,有可能克服这些困难并增加练习强度。这一现实主义的评估建立在我们早期的现实主义回顾的基础上,通过探索利益相关者的经验,对患有SSD的儿童进行密集的、数字化的、父母实施的干预措施,以最佳地理解在临床实践中什么可能最有效,对谁最有效,以及为什么最有效。方法:通过与关键利益相关者的焦点小组讨论,我们进行了现实主义评估,以测试和完善我们在早期现实主义审查中发展起来的初步计划理论。5个焦点组采用slt (n = 22), 2个焦点组采用4-5岁SSD患儿的父母/照顾者(n = 6)。采用现实主义方法论方法收集和分析数据,包括开发情境-机制-结果配置。我们运用了成人学习、自我效能和父母教养方式等中庸理论来发展我们的理论思维。结果来自早期现实主义评论的关于干预如何起作用的规划理论被改进、驳斥或证实。这些精细化的理论跨越三个领域,展示了参与数字化、密集的父母实施干预的过程:(1)参与的准备;(2)干预的实施;(3)持续动力。这些理论为通过数字工具支持和培训家庭参与家庭实践的机制提供了见解,包括在实施过程中需要考虑的重要背景因素。结论:家长实施的针对SSD儿童的数字化、强化干预措施有可能在某些情况下提高SLT服务的有效性和效率,并改善全球儿童的预后。在参与过程的每个阶段,都需要考虑变化的机制和有影响的环境,以成功地授权和支持父母/照顾者及其孩子进行SSD。这篇论文补充了关于这一主题的已知内容,全世界的临床医生都面临着为患有SSD的儿童提供最佳干预强度的挑战。研究探索了父母实施的干预措施和数字工具来增加干预强度。这些新的和创新的服务提供模式在某些情况下可能是有效的;然而,需要进一步探索,以了解父母实施的数字化干预措施为何有效,对谁有效,以及如何有效。本论文采用现实主义方法论方法来获取利益相关者的经验,以发展关于对患有固态固态的儿童进行数字化、密集、父母实施的干预的基础理论。这种现实主义评价的新理论见解建立在我们对这种干预有效(或无效)的原因、对谁有效以及为什么有效的理解之上。这项研究的临床意义是什么?slt和卫生服务机构将更清楚地了解如何支持父母/照顾者通过数字工具实施强化家庭干预,以及影响其有效性的因素。新的认识表明,支持父母/照顾者的数字工具有可能支持对患有SSD的儿童进行更深入的实践。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
‘To Know That You Are a Link in the Chain’: A Realist Evaluation to Explore How Digital, Intensive, Parent-Implemented Interventions Work for Children With Speech Sound Disorder, Why, and for Whom

Introduction

Children with moderate to severe speech sound disorder (SSD) need intensive therapy to increase intervention effectiveness and efficiency. However, worldwide speech and language therapists (SLTs) report that it is difficult to implement recommended intervention intensities in clinical practice. Supporting parents/carers to deliver home-intervention, facilitated through digital tools, has the potential to circumvent these difficulties and increase practice intensity. This realist evaluation builds on our earlier realist review on intensive, digital, parent-implemented interventions for children with SSD through exploring the experiences of stakeholders to optimally understand what might work best, for whom, and why in clinical practice.

Methods

We undertook a realist evaluation to test and refine our initial programme theories developed in our earlier realist review through focus groups with key stakeholders. Five focus groups were conducted with SLTs (n = 22), and two focus groups with parents/carers of children with SSD aged 4–5 years (n = 6). A realist methodology approach was used to collect and analyse the data, including the development of context-mechanism-outcome configurations. Middle-range theories of adult-learning, self-efficacy and parenting styles were used to develop our theoretical thinking.

Results

Programme theories from the earlier realist review about how the intervention works were refined, refuted, or confirmed. The refined theories are presented across three areas to demonstrate the journey of engaging in a digital, intensive parent-implemented intervention: (1) Readiness to engage; (2) Implementation of the intervention; and (3) Sustaining momentum. The theories offer insight into mechanisms that support and train families to engage in home-practice through digital tools, including important contextual factors needing consideration in implementation.

Conclusion

Digital, intensive, parent-implemented interventions for children with SSD have the potential to improve the effectiveness and efficiency of SLT services in certain contexts and improve children's outcomes worldwide. Mechanisms of change, and impactful contexts at each point of the journey of involvement need consideration to successfully empower and support parents/carers and their children with SSD.

WHAT THIS PAPER ADDS

What is already known on this subject
  • Clinicians worldwide face challenges providing the optimal intensity of intervention for children with SSD. Studies have explored parent-implemented interventions and digital tools to increase intervention intensity. These new and innovative service delivery models can be effective in certain circumstances; however, further exploration is required to understand why digital, parent-implemented interventions may work, for whom, and how.
What this study adds
  • This paper uses a realist methodology approach to capture stakeholder experiences to develop underpinning theories about digital, intensive, parent-implemented interventions for children with SSD. The new theoretical insight from this realist evaluation builds upon our understanding of what makes this intervention work (or not), who it works for, and why.
What are the clinical implications of this study?
  • SLTs and health services will have a clearer understanding of how to support parents/carers to implement intensive home-intervention through digital tools, and which factors impact its effectiveness. New understanding demonstrates how digital tools to support parents/carers have the potential to support more intensive practice for children with SSD.
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来源期刊
International Journal of Language & Communication Disorders
International Journal of Language & Communication Disorders AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.30
自引率
12.50%
发文量
116
审稿时长
6-12 weeks
期刊介绍: The International Journal of Language & Communication Disorders (IJLCD) is the official journal of the Royal College of Speech & Language Therapists. The Journal welcomes submissions on all aspects of speech, language, communication disorders and speech and language therapy. It provides a forum for the exchange of information and discussion of issues of clinical or theoretical relevance in the above areas.
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