Suzanne Denieffe , Margaret Denny , Martina Gooney , Patricia Hunt , Lannah Kent , Peter May , Mary Nevin , Muireann Prendergast , Mary Rabbitte , Pilar Luz Rodrigues , Colin Barry , Ashna Ephraim
{"title":"护士、病人和家庭照顾者对爱尔兰的能源困难和姑息性家庭护理的看法:一种混合方法的检验。","authors":"Suzanne Denieffe , Margaret Denny , Martina Gooney , Patricia Hunt , Lannah Kent , Peter May , Mary Nevin , Muireann Prendergast , Mary Rabbitte , Pilar Luz Rodrigues , Colin Barry , Ashna Ephraim","doi":"10.1016/j.soncn.2025.151893","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><div>The authors aim to investigate energy hardship and palliative care at home. The objectives were to explore the views of home care nurses, patients, and family carers on the possible extent of energy hardship and to make informed recommendations, which could help alleviate energy hardship for people receiving palliative care at home.</div></div><div><h3>Methods</h3><div>This study used a cross-sectional mixed-methods design, including an online survey with palliative home care nurses and semistructured individual or group interviews with patients receiving palliative home care or their family carers.</div></div><div><h3>Results</h3><div>The results show that energy hardship is an issue witnessed by night nurses and palliative home care nurses in their line of work. Patients and family carers in the study confirmed that keeping their homes warm was a major issue for many of them, and the rising costs of energy, and other living costs, have posed challenges and caused significant stress to some participants.</div></div><div><h3>Conclusions</h3><div>Energy hardship worsens health issues for patients and carers, aligning with previous research on its detrimental effects. Addressing energy hardship requires a multisectoral approach, including better coordination between governments, health care providers, and community organizations to ensure vulnerable people have access to support services. Further research is needed to better understand the causal relationships between energy hardship and health.</div></div><div><h3>Implications for Nursing Practice</h3><div>Raising awareness of energy hardship among health care staff is crucial, focusing on at-risk populations and available interventions. Educational training for staff is key to help staff identify and address energy hardship, framing support as a health right. A standardized information pack and self-assessment tool are needed, and nurses should encourage patients to apply for support that may be available, such as registering as medically vulnerable with energy suppliers.</div></div>","PeriodicalId":54253,"journal":{"name":"Seminars in Oncology Nursing","volume":"41 3","pages":"Article 151893"},"PeriodicalIF":2.3000,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Nurses’, Patients’, and Family Carers’ Views of Energy Hardship and Palliative Home Care in Ireland: A Mixed-Methods Examination\",\"authors\":\"Suzanne Denieffe , Margaret Denny , Martina Gooney , Patricia Hunt , Lannah Kent , Peter May , Mary Nevin , Muireann Prendergast , Mary Rabbitte , Pilar Luz Rodrigues , Colin Barry , Ashna Ephraim\",\"doi\":\"10.1016/j.soncn.2025.151893\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Objectives</h3><div>The authors aim to investigate energy hardship and palliative care at home. The objectives were to explore the views of home care nurses, patients, and family carers on the possible extent of energy hardship and to make informed recommendations, which could help alleviate energy hardship for people receiving palliative care at home.</div></div><div><h3>Methods</h3><div>This study used a cross-sectional mixed-methods design, including an online survey with palliative home care nurses and semistructured individual or group interviews with patients receiving palliative home care or their family carers.</div></div><div><h3>Results</h3><div>The results show that energy hardship is an issue witnessed by night nurses and palliative home care nurses in their line of work. Patients and family carers in the study confirmed that keeping their homes warm was a major issue for many of them, and the rising costs of energy, and other living costs, have posed challenges and caused significant stress to some participants.</div></div><div><h3>Conclusions</h3><div>Energy hardship worsens health issues for patients and carers, aligning with previous research on its detrimental effects. Addressing energy hardship requires a multisectoral approach, including better coordination between governments, health care providers, and community organizations to ensure vulnerable people have access to support services. Further research is needed to better understand the causal relationships between energy hardship and health.</div></div><div><h3>Implications for Nursing Practice</h3><div>Raising awareness of energy hardship among health care staff is crucial, focusing on at-risk populations and available interventions. Educational training for staff is key to help staff identify and address energy hardship, framing support as a health right. A standardized information pack and self-assessment tool are needed, and nurses should encourage patients to apply for support that may be available, such as registering as medically vulnerable with energy suppliers.</div></div>\",\"PeriodicalId\":54253,\"journal\":{\"name\":\"Seminars in Oncology Nursing\",\"volume\":\"41 3\",\"pages\":\"Article 151893\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Seminars in Oncology Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0749208125000865\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Seminars in Oncology Nursing","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0749208125000865","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
Nurses’, Patients’, and Family Carers’ Views of Energy Hardship and Palliative Home Care in Ireland: A Mixed-Methods Examination
Objectives
The authors aim to investigate energy hardship and palliative care at home. The objectives were to explore the views of home care nurses, patients, and family carers on the possible extent of energy hardship and to make informed recommendations, which could help alleviate energy hardship for people receiving palliative care at home.
Methods
This study used a cross-sectional mixed-methods design, including an online survey with palliative home care nurses and semistructured individual or group interviews with patients receiving palliative home care or their family carers.
Results
The results show that energy hardship is an issue witnessed by night nurses and palliative home care nurses in their line of work. Patients and family carers in the study confirmed that keeping their homes warm was a major issue for many of them, and the rising costs of energy, and other living costs, have posed challenges and caused significant stress to some participants.
Conclusions
Energy hardship worsens health issues for patients and carers, aligning with previous research on its detrimental effects. Addressing energy hardship requires a multisectoral approach, including better coordination between governments, health care providers, and community organizations to ensure vulnerable people have access to support services. Further research is needed to better understand the causal relationships between energy hardship and health.
Implications for Nursing Practice
Raising awareness of energy hardship among health care staff is crucial, focusing on at-risk populations and available interventions. Educational training for staff is key to help staff identify and address energy hardship, framing support as a health right. A standardized information pack and self-assessment tool are needed, and nurses should encourage patients to apply for support that may be available, such as registering as medically vulnerable with energy suppliers.
期刊介绍:
Seminars in Oncology Nursing is a unique international journal published six times a year. Each issue offers a multi-faceted overview of a single cancer topic from a selection of expert review articles and disseminates oncology nursing research relevant to patient care, nursing education, management, and policy development.