Robin L Whitney, Janice F Bell, Everlyne Ogugu, Shikha Bhurtel, Benjamin M Link, Orly Tonkikh, Kathleen Kelly, Heather M Young
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Caregiving Activities and Outcomes Among Family Caregivers of Individuals With and Without Parkinson's Disease and Lewy Body Dementia in California Caregiver Resource Centers.
Purpose: To describe characteristics and outcomes of family caregivers for persons with Parkinson's disease and Lewy body dementia (PD/LBD) and compare them to those of other family caregivers.
Method: Using a California statewide database, we examined caregiver characteristics and outcomes (strain, loneliness, worse health, and depressive symptoms) and compared them by care recipient diagnosis (PD/LBD, Alzheimer's disease and related dementias, or other chronic conditions) using descriptive statistics and multivariable logistic regression.
Results: PD/LBD caregivers were more likely to identify as female, married, and college-educated; engage in high-intensity caregiving; and report their care recipient wakes them or others up at night. In multivariable models, PD/LBD caregiving was associated with worse health. Among PD/LBD caregivers, performing medical/nursing tasks was associated with higher odds of strain, loneliness, worse health, and depressive symptoms.
Conclusion: PD/LBD caregivers are a distinct group who often experience high-demand caregiving. Tailored support can help address the unique needs of this population. [Research in Gerontological Nursing, xx(x), xx-xx.].
期刊介绍：
Research in Gerontological Nursing is a forum for disseminating peer-reviewed, interdisciplinary, cutting-edge gerontological nursing research and theory to investigators, educators, academicians, clinicians, and policymakers involved with older adults in all health care settings. The Journal accepts manuscripts reporting research, theory, integrative and systematic reviews, instrument development, and research methods with the aims of improving the wellness and quality of care of the older adult population. Theory papers should advance gerontological knowledge, and integrative reviews should provide an analysis of the state of the science and provide direction for future research.
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