与健康相关的耻辱感、感知到的社会支持及其在脂水肿妇女生活质量中的作用

IF 1.2 4区医学 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH

Health Care for Women International Pub Date : 2025-05-08 DOI:10.1080/07399332.2025.2499487

Johanna Falck, Karen Herbst, Bo Rolander, Annette Nygårdh, Lise-Lotte Jonasson, Jan Mårtensson

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引用次数: 0

摘要

脂肪水肿是一种影响女性脂肪组织的慢性疾病。脂肪水肿的独特身体外观，常被误认为肥胖，可能不利于社交生活。在我们于2021年6月至9月对245名患有脂肪水肿的女性进行的在线横断面调查研究中，我们发现与年龄匹配的普通女性人群（N = 1872）相比，与健康相关的耻辱感明显更多，导致整体生活质量较低。相反，强大的社会支持与更好的社会和情感功能有关。因此，即使在早期阶段，卫生保健专业人员也必须认识到这种疾病，并处理其对社会心理健康和福祉的影响。

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Health-related stigma, perceived social support, and their role in quality of life among women with lipedema.

Lipedema is a chronic disease in adipose tissue affecting women. The distinctive body appearance in lipedema, often mistaken for obesity, may be detrimental to social life. In our online cross-sectional survey study, conducted from June to September 2021 among 245 women with lipedema, we found significantly more health-related stigma compared to an aged-matched general female population (N = 1872), leading to an overall lower quality of life. Conversely, strong social support was associated with better social and emotional functioning. As such, healthcare professionals must, even in the early stages, recognize this disease and address its impact on psychosocial health and well-being.

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来源期刊

Health Care for Women International Multiple-

CiteScore

3.30

自引率

7.10%

发文量

期刊介绍： Health Care for Women International is a critically acclaimed, international publication that provides a unique interdisciplinary approach to health care and related topics that concern women around the globe. Published twelve times a year, Health Care for Women International includes the newest research, theories, and issues in the fields of public health, social science, health care practice, and health care policy. Scholars and practitioners address topics such as cultural differences, alternative lifestyles, domestic violence, public health issues associated with the aging of the population, maternal morbidity and mortality, infectious diseases, and a host of other gender-based ethical issues. The editor also encourages discussion topics, inviting readers to comment on articles that focus on specific aspects of health issue for women.