评估使用患者门户网站招募孕妇和新妈妈进行妇幼保健研究的可接受性。

IF 3.4 Q2 HEALTH CARE SCIENCES & SERVICES
JAMIA Open Pub Date : 2025-05-02 eCollection Date: 2025-06-01 DOI:10.1093/jamiaopen/ooaf027
Sean N Halpin, Rebecca Wright, Angela Gwaltney, Annabelle Frantz, Holly Peay, Emily Olsson, Melissa Raspa, Lisa Gehtland, Sara M Andrews
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引用次数: 0

摘要

目的:电子患者门户(PP)允许有针对性和高效的研究招募。我们评估了产前和产后妇女的招聘方式偏好,重点是pp。材料和方法:我们对新妈妈和准妈妈进行了4个面对面的焦点小组。参与者报告了人口统计、健康状况和对包括PP在内的技术的舒适度。我们使用描述性统计来描述定量数据,并使用准演绎方法来分析定性数据。结果:参与者(n = 32)平均年龄31.9岁,以白人(65.6%)为主,已婚(90.6%),具有4年制及以上学历(71.9%)。尽管他们更倾向于使用PP进行研究招聘,而不是其他方法(例如,面对面的、实体的邮件),但参与者提出了潜在的障碍,包括信息频率高,信息感觉像垃圾邮件,以及对机密性的担忧。与会者提出了解决方案,包括通过选择加入的方式增强自主权;整合医疗保健提供者的反馈;发送个人和相关信息;并确保他们的PP数据是保密的。讨论:PPs是一种很有前途的产前和产后妇女招募方法,包括用于母婴健康研究。为了确保对该方法的参与,研究人员必须对已知患者的担忧做出回应,并将他们的反馈纳入未来的工作中。结论:尽管PP通常被认为是一种可接受的招聘方法,但研究人员应该注意可能限制其范围和有效性的障碍。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Assessing the acceptability of using patient portals to recruit pregnant women and new mothers for maternal-child health research.

Assessing the acceptability of using patient portals to recruit pregnant women and new mothers for maternal-child health research.

Objective: Electronic patient portals (PP) allow for targeted and efficient research recruitment. We assessed pre- and postnatal women's recruitment methods preferences, focusing on PP.

Materials and methods: We conducted 4 in-person focus groups with new and expecting mothers. Participants reported demographics, health status, and comfort with technology including PP. We used descriptive statistics to characterize quantitative data and a quasi-deductive approach to analyze qualitative data.

Results: Participants (n = 32) were an average age of 31.9 years, mostly White (65.6%), married (90.6%), and had a 4-year degree or higher (71.9%). Although they preferred PP for research recruitment over other methods (eg, in-person, physical mail), participants suggested potential barriers, including high message frequency, messages feeling like spam, and concerns about confidentiality. Participants suggested solutions, including enhancing autonomy through opt-in methods; integrating their healthcare provider's feedback; sending personal and relevant messages; and assuring their PP data are confidential.

Discussion: PPs are a promising recruitment method for pre- and postnatal women including for maternal-child health studies. To ensure engagement with the method, researchers must respond to known patient concerns and incorporate their feedback into future efforts.

Conclusion: Although PP were generally viewed as an acceptable recruitment method, researchers should be mindful of barriers that may limit its reach and effectiveness.

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来源期刊
JAMIA Open
JAMIA Open Medicine-Health Informatics
CiteScore
4.10
自引率
4.80%
发文量
102
审稿时长
16 weeks
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