授权下一代癌症研究倡导者:跨研究连续体的社区参与。

Q1 Medicine
Melissa Mazor, Sarah Miller, Sarah Mollman, Layla Fattah, Heather Brandt, Victoria Foster, Shena Gazaway, Jamila Sly, Rushil V Patel, Jean Claude Noel, Dolores Moorehead, J Nicholas Odom
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引用次数: 0

摘要

社区参与是推进癌症研究和改善健康结果的一项基本战略。本研究考察了倡导作为癌症研究连续体的一种社区参与形式,与ASCO 2024-2025年主席主题“将知识转化为行动:建设更美好的未来”保持一致。我们提出了一个全面的框架,促进双向学习,信任和透明度在所有阶段的研究,从概念到传播。本书描述了参与方法的范围,从咨询模式到全面合作伙伴关系,强调了每种方法如何在整个研究过程中创建关键接触点。我们确定了有意义的社区参与面临的重大挑战,包括制度障碍、历史不信任和可持续性问题,同时从不同癌症研究机构的成功案例中提供实用的解决方案。本研究最后提出了可操作的建议,通过多样化的代表、指导计划、机构支持机制和专门的资助渠道,促进社区积极参与。通过在整个研究过程中整合倡导,我们为患者、护理人员、社区代表和新兴专业人士创造了途径,以塑造研究议程,为研究设计提供信息,并参与将研究结果转化为政策和实践,最终确保癌症研究对所有社区都具有包容性、相关性和可及性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Empowering the Next Generation of Cancer Research Advocates: Community Engagement Across the Research Continuum.

Community engagement represents a foundational strategy for advancing cancer research and improving health outcomes. This study examines advocacy as a form of community engagement across the cancer research continuum, aligning with ASCO's 2024-2025 presidential theme of "Driving Knowledge to Action: Building a Better Future." We present a comprehensive framework that promotes bidirectional learning, trust, and transparency at all stages of research, from conception to dissemination. The spectrum of engagement approaches is described, ranging from consultative models to fully collaborative partnerships, highlighting how each creates critical touchpoints throughout the research process. We identify significant challenges to meaningful community engagement-including institutional barriers, historical mistrust, and sustainability concerns-while offering practical solutions drawn from successful examples across diverse cancer research settings. This study concludes with actionable recommendations for advancing robust community engagement through diverse representation, mentorship programs, institutional support mechanisms, and dedicated funding channels. By integrating advocacy throughout the research continuum, we create pathways for patients, caregivers, community representatives, and emerging professionals to shape research agendas, inform study designs, and participate in translating findings into policy and practice, ultimately ensuring cancer research is inclusive, relevant, and accessible to all communities.

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来源期刊
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期刊介绍: The Ed Book is a National Library of Medicine–indexed collection of articles written by ASCO Annual Meeting faculty and invited leaders in oncology. Ed Book was launched in 1985 to highlight standards of care and inspire future therapeutic possibilities in oncology. Published annually, each volume highlights the most compelling research and developments across the multidisciplinary fields of oncology and serves as an enduring scholarly resource for all members of the cancer care team long after the Meeting concludes. These articles address issues in the following areas, among others: Immuno-oncology, Surgical, radiation, and medical oncology, Clinical informatics and quality of care, Global health, Survivorship.
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