厄瓜多尔西班牙语家庭报告结果量表(FROM-16)的心理计量学验证及其在测量皮肤病患者家庭成员影响方面的应用

IF 2.9 Q2 HEALTH CARE SCIENCES & SERVICES
Andrea Cueva, Faraz M Ali, Jeffrey Johns, Andrew Y Finlay, Sam Salek
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引用次数: 0

摘要

背景:家庭报告结果量表(FROM-16)是衡量健康状况对患者家庭成员和伴侣(FMs)影响的通用工具。本研究旨在翻译、验证、评估和实施厄瓜多尔西班牙语的form -16,并评估皮肤病患者FMs的生活质量(QoL)。方法:对患者及其FMs进行横断面研究,采用FROM-16和五点likert量表,由FMs和医生评估患者的皮肤健康状况。评估量表的构效度、验证性因子分析及项目反应模型。结果:195名FMs完成了厄瓜多尔语FROM-16。项目间相关系数为0.40,因子分析证实了最初的双因素模型:Cronbach's alpha为0.89,因子负荷为0.44-0.76。患者平均年龄= 41.8±31.1岁,FMs = 47.3±7岁;疾病分为炎症性(n = 88)和非炎症性(n = 107)。FROM-16的平均得分为12.5±7,表示“对生活质量有中等影响”;然而,得分为29.2%(195人中有57人)表示“非常大”(n = 47)或“非常大”(n = 10)的影响。负担最高的人群是成年子女的主要照顾者,而不是与患病父母同居的人(平均值为16 = 17±7.7,n = 8, p = 0.05),炎症患者的FM(平均值为14±6.9,n = 88, p = 0.006,非炎症性皮肤病患者)。结论:FROM-16是一种简洁、结构良好的双畴仪器。它可以用来识别很大程度上被忽视的影响对皮肤病患者的FMs。了解这种影响可能有助于更好的整体护理,告知医生的决定,并鼓励对家庭的进一步支持。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Psychometric validation of the Spanish for Ecuador Family Reported Outcome Measure (FROM-16) and its application to measure impact on family members of patients with skin diseases.

Background: The Family Reported Outcome Measure (FROM-16) is a generic tool to measure the impact of health conditions on patients' family members and partners (FMs). This study aimed to translate, validate, evaluate, and implement FROM-16 in Ecuadorian Spanish and to assess the quality of life (QoL) of FMs of patients with skin diseases.

Methods: A cross-sectional study of patients and their FMs was performed using FROM-16 and a five-point-Likert scale to evaluate patient´s skin health by the FM and physician. Construct validity, confirmatory factor analysis and item response modelling of FROM-16 were assessed.

Results: 195 FMs completed Ecuadorian FROM-16. Inter-item correlation was 0.40 and factor analysis confirmed the original two-factor model: Cronbach's alpha 0.89, with factor loadings of 0.44-0.76. Mean age of patients = 41.8 ± 31.1 years and of FMs = 47.3 ± 7; diseases were classified as inflammatory (n = 88) or non-inflammatory (n = 107). The mean FROM-16 score was 12.5 ± 7 meaning "a moderate effect on QoL;" however, scores of 29.2% (57 of 195) indicated a "very large" (n = 47) or "extremely large" (n = 10) effect. Populations with the highest burden were adult children main carers, not cohabiting with their sick parents (mean FROM-16 = 17 ± 7.7, n = 8, p = 0.05 versus those cohabiting), and FM of patients with inflammatory conditions (mean = 14 ± 6.9, n = 88, p = 0.006 versus those with non-inflammatory dermatoses).

Conclusion: The FROM-16 is a succinct, well-structured two-domain instrument. It can be used to identify the largely overlooked impact on FMs of dermatology patients. Understanding this impact may contribute to better holistic care, inform physicians' decisions, and encourage further support for families.

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来源期刊
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes Health Professions-Health Information Management
CiteScore
3.80
自引率
7.40%
发文量
120
审稿时长
20 weeks
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