“一个并非真正为我优化的系统”:影响自闭症大学生获取信息的因素。

Autism in adulthood : challenges and management Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI:10.1089/aut.2023.0139
Kayden M Stockwell, Zoë S Robertson, Andrew J Lampi, Talyn Steinmann, Erline Morgan, Vikram K Jaswal
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引用次数: 0

摘要

背景:每年都有更多的自闭症成年人接受高等教育,但心理健康状况和毕业率表明他们没有得到充分的支持。在本定性研究中,我们报告了影响自闭症大学生如何了解可帮助他们在高等教育中取得成功的资源和机会的因素。方法:我们在美国一所公立大学采访了14名自闭症学生,作为了解自闭症学生校园环境的一个更大项目的一部分。参与者可以通过Zoom进行小组或个人访谈,也可以通过电子邮件进行异步访谈。我们使用反身性主题分析来识别数据集的意义模式,并对自闭症大学生获取资源和机会信息的方式提供理论上的解释。结果:我们构建了两个与自闭症学生获取信息困难相关的主题。第一个主题是导航访问信息所需的交互的挑战。这一主题将参与者对难以获取社会中介信息的描述置于一个互惠的框架中。第二个主题是“大学期望限制信息获取”。这个主题解释了没有考虑到自闭症学生的大学期望、实践和政策是如何成为信息获取的障碍的。结论:我们的参与者的经历强调了如何获取有关资源和机会的信息,这些信息可以支持他们的成功,不仅影响他们的学术和人际交往经历,还影响他们对大学社区的归属感。通过更好地理解影响自闭症大学生获取信息以及随后的资源和机会的多种相互作用的因素,我们可以在高等教育中进行知情的、结构性的变革,为自闭症患者提供更公平的获取机会。摘要:每年都有越来越多的自闭症患者进入大学,但很多人都在苦苦挣扎,大学仍在学习如何支持自闭症学生。许多大学都为学生提供资源,但只有当你了解这些资源并知道如何获取它们时,这些资源才会有帮助。摘要:我们希望了解自闭症学生在某所大学的经历,并就如何更好地支持他们的学生向大学提出建议。在我们采访了自闭症学生之后,我们注意到他们都很难获得有关资源和机会的信息,这些信息本可以支持他们。我们想了解是什么影响了自闭症学生在大学环境中获取有关资源和机会的信息。摘要:我们采访了美国一所大学的14名自闭症学生。我们询问了他们的学术和社会经历,他们得到或没有得到的支持,以及如何更好地支持自闭症学生。一组自闭症和非自闭症的研究人员阅读了参与者的回答,并在访谈中寻找共同的主题。摘要:本研究发现,自闭症大学生的资源和机会信息获取受到多种因素的影响。例如,学生经常必须与某人交谈以了解资源或获得帮助,这对许多参与者来说很难。我们还发现,大学分享信息的方式并没有考虑到自闭症患者。例如,许多大学在拥挤的活动中共享资源信息。获取与残疾有关的资源信息也很困难。与会者建议大学在低感官环境中共享信息,帮助自闭症学生彼此联系,并使其更容易了解和获取与残疾有关的资源。摘要:关于这一课题的研究大多是关于自闭症大学生如何在大学图书馆中找到信息。我们对自闭症学生如何在不同情况下获取信息很感兴趣。这项研究表明,我们可以采取措施,使自闭症学生更容易获得信息,这可以帮助学生联系到他们需要的资源。摘要:一个不足之处在于,我们采访的大多数自闭症大学生是白人,并且来自高学历的家庭背景。我们也只采访了在校学生或刚毕业的学生。因为我们没有和很多有色人种的自闭症学生、家里第一个上大学的自闭症学生、或者在毕业前离开大学的自闭症学生交谈过,所以我们的推荐可能只对一些自闭症学生有帮助。摘要:本研究的目的之一是为开展研究的大学如何更好地支持自闭症学生提供建议。 我们希望这些建议能对大学管理者、教育工作者和自闭症学生共同努力使大学更具包容性有所帮助。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"A System That Wasn't Really Optimized for Me": Factors Influencing Autistic University Students' Access to Information.

Background: More autistic adults pursue higher education each year, but rates of mental health conditions and graduation rates suggest that they are not being adequately supported. In this qualitative study, we report on factors that influence how autistic university students learn about the resources and opportunities available to help students succeed in higher education.

Methods: We interviewed 14 autistic students at a public university in the United States as part of a larger project to understand the campus climate for autistic students. Participants were interviewed either in groups or individually via Zoom, or asynchronously over email. We used reflexive thematic analysis to identify patterns of meaning across the data set and provide a theoretically informed interpretation of autistic university students' access to information about resources and opportunities.

Results: We constructed two themes related to the difficulties autistic students face in accessing information. The first theme was Challenges Navigating the Interactions Required to Access Information. This theme positions participants' accounts of difficulty accessing socially mediated information within a reciprocal framework. The second theme was University Expectations Limit Information Access. This theme explains how university expectations, practices, and policies that were not designed with autistic students in mind can serve as a barrier to information access.

Conclusions: Our participants' experiences highlighted how access to information about the resources and opportunities that could support their success can impact not only their academic and interpersonal experiences but also their sense of belonging to their university community. By better understanding the multiple, interacting factors that influence autistic university students' access to information-and subsequently, resources and opportunities-we can move toward informed, structural changes in higher education that will provide more equitable access to autistic people.

Abstract: More autistic people go to university every year, but many struggle, and universities are still learning how to support autistic students. Many universities have resources for students, but these are only helpful if you know about them and how to access them.

Abstract: We wanted to understand autistic students' experiences at a particular university and to give recommendations to the university on how to better support their students. After we interviewed autistic students, we noticed that all of them had trouble accessing information about resources and opportunities that could have supported them. We wanted to learn about what influences autistic students' access to information about resources and opportunities in university settings.

Abstract: We interviewed 14 autistic students at a university in the United States. We asked them questions about their academic and social experiences, about the support they received or did not receive, and about how to better support autistic students. A team of autistic and non-autistic researchers read participants' responses and looked for common themes across the interviews.

Abstract: We found that autistic university students' access to information about resources and opportunities was influenced by multiple factors. For example, students often have to talk to someone to learn about a resource or get help, and this was hard for many participants. We also found that the way that universities share information is not designed with autistic people in mind. For example, many universities share information about resources at crowded events. It can also be difficult to get information about disability-related resources. Participants recommended that universities share information in low sensory environments, help autistic students connect with each other, and make it easier to learn about and access disability-related resources.

Abstract: Most research on this topic has been about how autistic university students find information in university libraries. We were interested in how autistic students access information in many different situations. This study suggests steps we can take to make information more accessible for autistic students, which could help students connect to resources they need.

Abstract: One weakness is that most of the autistic university students we interviewed were White and from highly educated family backgrounds. We also only interviewed people who were current students or had recently graduated. Because we did not speak with many autistic students of color, autistic students who were the first in their family to attend university, or with autistic students who left university before graduating, our recommendations may only be helpful to some autistic students.

Abstract: One goal of this study was to provide recommendations on how to better support autistic students at the university where the study was conducted. We hope that the recommendations will be helpful as university administrators and educators and autistic students work together to make universities more inclusive places.

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