{"title":"“何苦呢?”对重度智障人士关怀中的怀疑、怀疑与道德想象。","authors":"Simon van der Weele","doi":"10.1007/s11013-025-09913-8","DOIUrl":null,"url":null,"abstract":"<p><p>Caring well for people with profound intellectual disabilities is challenging. This challenge is often framed in terms of their complex needs and the ambiguity of interpreting these needs. Based on ethnographic fieldwork, this article argues that behind these challenges lies a more fundamental challenge of doubt: doubt stemming from uncertainties about the mind of the other, and thus about the purpose of care itself. Drawing on Stanley Cavell's notion of skepticism, the article explores how this challenge arises and how caregivers grapple with it. The study finds that skeptical doubt always threatens care for people with profound intellectual disabilities, but often remains unseen. This is because caregivers deftly manage to ward off their skeptical doubt, by 'placing people into life': imagining the people in their care as participants in a shared human everyday life. The article tracks such exercises of 'placing people into life' to document how caregivers manage to retain faith in the purpose of their care. In this way, the article gives ethnographic texture to the challenge of caring well for people with profound intellectual disabilities and gathers clues for improving this care-which can also aid in improving care in other contexts of cognitive difference.</p>","PeriodicalId":47634,"journal":{"name":"Culture Medicine and Psychiatry","volume":" ","pages":""},"PeriodicalIF":1.5000,"publicationDate":"2025-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"'Why Bother?' Skeptical Doubt and Moral Imagination in Care for People with Profound Intellectual Disabilities.\",\"authors\":\"Simon van der Weele\",\"doi\":\"10.1007/s11013-025-09913-8\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Caring well for people with profound intellectual disabilities is challenging. This challenge is often framed in terms of their complex needs and the ambiguity of interpreting these needs. Based on ethnographic fieldwork, this article argues that behind these challenges lies a more fundamental challenge of doubt: doubt stemming from uncertainties about the mind of the other, and thus about the purpose of care itself. Drawing on Stanley Cavell's notion of skepticism, the article explores how this challenge arises and how caregivers grapple with it. The study finds that skeptical doubt always threatens care for people with profound intellectual disabilities, but often remains unseen. This is because caregivers deftly manage to ward off their skeptical doubt, by 'placing people into life': imagining the people in their care as participants in a shared human everyday life. The article tracks such exercises of 'placing people into life' to document how caregivers manage to retain faith in the purpose of their care. In this way, the article gives ethnographic texture to the challenge of caring well for people with profound intellectual disabilities and gathers clues for improving this care-which can also aid in improving care in other contexts of cognitive difference.</p>\",\"PeriodicalId\":47634,\"journal\":{\"name\":\"Culture Medicine and Psychiatry\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-05-09\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Culture Medicine and Psychiatry\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1007/s11013-025-09913-8\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"ANTHROPOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Culture Medicine and Psychiatry","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1007/s11013-025-09913-8","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ANTHROPOLOGY","Score":null,"Total":0}
'Why Bother?' Skeptical Doubt and Moral Imagination in Care for People with Profound Intellectual Disabilities.
Caring well for people with profound intellectual disabilities is challenging. This challenge is often framed in terms of their complex needs and the ambiguity of interpreting these needs. Based on ethnographic fieldwork, this article argues that behind these challenges lies a more fundamental challenge of doubt: doubt stemming from uncertainties about the mind of the other, and thus about the purpose of care itself. Drawing on Stanley Cavell's notion of skepticism, the article explores how this challenge arises and how caregivers grapple with it. The study finds that skeptical doubt always threatens care for people with profound intellectual disabilities, but often remains unseen. This is because caregivers deftly manage to ward off their skeptical doubt, by 'placing people into life': imagining the people in their care as participants in a shared human everyday life. The article tracks such exercises of 'placing people into life' to document how caregivers manage to retain faith in the purpose of their care. In this way, the article gives ethnographic texture to the challenge of caring well for people with profound intellectual disabilities and gathers clues for improving this care-which can also aid in improving care in other contexts of cognitive difference.
期刊介绍:
Culture, Medicine, and Psychiatry is an international and interdisciplinary forum for the publication of work in three interrelated fields: medical and psychiatric anthropology, cross-cultural psychiatry, and related cross-societal and clinical epidemiological studies. The journal publishes original research, and theoretical papers based on original research, on all subjects in each of these fields. Interdisciplinary work which bridges anthropological and medical perspectives and methods which are clinically relevant are particularly welcome, as is research on the cultural context of normative and deviant behavior, including the anthropological, epidemiological and clinical aspects of the subject. Culture, Medicine, and Psychiatry also fosters systematic and wide-ranging examinations of the significance of culture in health care, including comparisons of how the concept of culture is operationalized in anthropological and medical disciplines. With the increasing emphasis on the cultural diversity of society, which finds its reflection in many facets of our day to day life, including health care, Culture, Medicine, and Psychiatry is required reading in anthropology, psychiatry and general health care libraries.