Identity and bodily experiences in emerging adults with type 1 diabetes (T1D): a qualitative exploration.

Objective: Much remains unknown about how type 1 diabetes (T1D) affects one's identity and bodily experiences in emerging adults. Two relevant frameworks have been introduced in this respect, namely the illness identity (e.g. Oris et al.) and the experience of embodiment framework (e.g. Piran). Guided by these theoretical perspectives, this qualitative study explores identity and bodily experiences of emerging adults living with T1D.

Methods: A total of 149 participants wrote a narrative about what it means to them to have T1D and how it may have affected their sense of self and bodily experiences. Data were analysed using template analysis.

Results: Analysis generated two main themes regarding identity: illness identity and feeling different. Five main themes emerged regarding bodily experiences: body connection, body discomfort, restricted agency and functionality, attuned diabetes care, and body objectification. In addition, social support, benefit finding, openness to others, perceived stigma, and visibility of diabetes emerged as significant related themes.

Conclusion: This study highlights the specific challenges that emerging adults with T1D may face in harmonising their identity and bodily experiences with their diabetes. Clinicians should recognise these challenges in providing holistic care.