诚实的企业研究经纪人:促进道德,高效和安全访问健康数据的研究。

IF 2.1 2区 医学 Q4 MEDICAL INFORMATICS
Applied Clinical Informatics Pub Date : 2025-03-01 Epub Date: 2025-04-30 DOI:10.1055/a-2499-4090
Michelle S Keller, Pamela Roberts, Kevin Japardi, Joseph E Ebinger, Tod Davis, Joshua Pevnick, Sivathmika Chevvuri, Hudson Stuck, Shao-Chi Huang, Edward Kowalewski, Ashley Lin, Andrew Sanapanya, Alan Tomines, Spencer SooHoo
{"title":"诚实的企业研究经纪人:促进道德,高效和安全访问健康数据的研究。","authors":"Michelle S Keller, Pamela Roberts, Kevin Japardi, Joseph E Ebinger, Tod Davis, Joshua Pevnick, Sivathmika Chevvuri, Hudson Stuck, Shao-Chi Huang, Edward Kowalewski, Ashley Lin, Andrew Sanapanya, Alan Tomines, Spencer SooHoo","doi":"10.1055/a-2499-4090","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong> Health systems generate and store vast amounts of clinical data, requiring structured processes to ensure that secondary use of the data is available to researchers in an efficient, ethical, and secure manner.</p><p><strong>Objective: </strong> We describe a process to provide data to health system researchers at a large, multi-hospital health system that balances efficiency with security and ethics.</p><p><strong>Methods: </strong> The Honest Enterprise Research Broker (HERB) Committee has enacted a systematic process to deliver investigators requesting data, using pre-written SQL code, when possible, to increase efficiency, providing a suite of self-service tools for cohort size estimation, and assessing the security and privacy of data leaving the institution. We evaluated the number of extracts per year, the average time to delivery of the data extract, and user satisfaction with the process.</p><p><strong>Results: </strong> From 2018 to 2023, the HERB Committee completed 487 data extracts. The number of requests increased from 51 in 2018 to 121 in 2023. Even as the number of extracts increased, the number of hours per extract decreased from 12.5 in 2018 to 9 in 2023. User satisfaction surveys found a high degree of satisfaction with the process.</p><p><strong>Conclusion: </strong> Through a process of continuous improvement, the HERB Committee has developed an expedient process to support the research needs of a large academic multi-hospital health system.</p>","PeriodicalId":48956,"journal":{"name":"Applied Clinical Informatics","volume":"16 2","pages":"362-368"},"PeriodicalIF":2.1000,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12043374/pdf/","citationCount":"0","resultStr":"{\"title\":\"The Honest Enterprise Research Broker: Facilitating Ethical, Efficient, and Secure Access to Health Data for Research.\",\"authors\":\"Michelle S Keller, Pamela Roberts, Kevin Japardi, Joseph E Ebinger, Tod Davis, Joshua Pevnick, Sivathmika Chevvuri, Hudson Stuck, Shao-Chi Huang, Edward Kowalewski, Ashley Lin, Andrew Sanapanya, Alan Tomines, Spencer SooHoo\",\"doi\":\"10.1055/a-2499-4090\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong> Health systems generate and store vast amounts of clinical data, requiring structured processes to ensure that secondary use of the data is available to researchers in an efficient, ethical, and secure manner.</p><p><strong>Objective: </strong> We describe a process to provide data to health system researchers at a large, multi-hospital health system that balances efficiency with security and ethics.</p><p><strong>Methods: </strong> The Honest Enterprise Research Broker (HERB) Committee has enacted a systematic process to deliver investigators requesting data, using pre-written SQL code, when possible, to increase efficiency, providing a suite of self-service tools for cohort size estimation, and assessing the security and privacy of data leaving the institution. We evaluated the number of extracts per year, the average time to delivery of the data extract, and user satisfaction with the process.</p><p><strong>Results: </strong> From 2018 to 2023, the HERB Committee completed 487 data extracts. The number of requests increased from 51 in 2018 to 121 in 2023. Even as the number of extracts increased, the number of hours per extract decreased from 12.5 in 2018 to 9 in 2023. User satisfaction surveys found a high degree of satisfaction with the process.</p><p><strong>Conclusion: </strong> Through a process of continuous improvement, the HERB Committee has developed an expedient process to support the research needs of a large academic multi-hospital health system.</p>\",\"PeriodicalId\":48956,\"journal\":{\"name\":\"Applied Clinical Informatics\",\"volume\":\"16 2\",\"pages\":\"362-368\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-03-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12043374/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Applied Clinical Informatics\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1055/a-2499-4090\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/4/30 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q4\",\"JCRName\":\"MEDICAL INFORMATICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Applied Clinical Informatics","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1055/a-2499-4090","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/4/30 0:00:00","PubModel":"Epub","JCR":"Q4","JCRName":"MEDICAL INFORMATICS","Score":null,"Total":0}
引用次数: 0

摘要

背景:卫生系统产生和存储大量临床数据,需要结构化流程来确保研究人员能够以高效、道德和安全的方式对这些数据进行二次使用。目的:我们描述了一个过程,以提供数据的卫生系统研究人员在一个大型,多医院的卫生系统,平衡效率与安全和道德。方法:诚实企业研究经纪人(HERB)委员会已经制定了一个系统的流程来提供调查人员请求的数据,在可能的情况下,使用预先编写的SQL代码来提高效率,提供一套自助工具来估计队列规模,并评估离开机构的数据的安全性和隐私性。我们评估了每年提取的数量、交付数据提取的平均时间以及用户对该过程的满意度。结果:2018 - 2023年,HERB委员会共完成数据提取487份。申请数量从2018年的51个增加到2023年的121个。即使提取的数量增加,每次提取的时间也从2018年的12.5小时减少到2023年的9小时。用户满意度调查发现对这个过程的满意度很高。结论:通过不断改进的过程,HERB委员会已经制定了一个权宜之计的过程,以支持一个大型学术多医院卫生系统的研究需求。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Honest Enterprise Research Broker: Facilitating Ethical, Efficient, and Secure Access to Health Data for Research.

Background:  Health systems generate and store vast amounts of clinical data, requiring structured processes to ensure that secondary use of the data is available to researchers in an efficient, ethical, and secure manner.

Objective:  We describe a process to provide data to health system researchers at a large, multi-hospital health system that balances efficiency with security and ethics.

Methods:  The Honest Enterprise Research Broker (HERB) Committee has enacted a systematic process to deliver investigators requesting data, using pre-written SQL code, when possible, to increase efficiency, providing a suite of self-service tools for cohort size estimation, and assessing the security and privacy of data leaving the institution. We evaluated the number of extracts per year, the average time to delivery of the data extract, and user satisfaction with the process.

Results:  From 2018 to 2023, the HERB Committee completed 487 data extracts. The number of requests increased from 51 in 2018 to 121 in 2023. Even as the number of extracts increased, the number of hours per extract decreased from 12.5 in 2018 to 9 in 2023. User satisfaction surveys found a high degree of satisfaction with the process.

Conclusion:  Through a process of continuous improvement, the HERB Committee has developed an expedient process to support the research needs of a large academic multi-hospital health system.

求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Applied Clinical Informatics
Applied Clinical Informatics MEDICAL INFORMATICS-
CiteScore
4.60
自引率
24.10%
发文量
132
期刊介绍: ACI is the third Schattauer journal dealing with biomedical and health informatics. It perfectly complements our other journals Öffnet internen Link im aktuellen FensterMethods of Information in Medicine and the Öffnet internen Link im aktuellen FensterYearbook of Medical Informatics. The Yearbook of Medical Informatics being the “Milestone” or state-of-the-art journal and Methods of Information in Medicine being the “Science and Research” journal of IMIA, ACI intends to be the “Practical” journal of IMIA.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信