为什么癌症护理系统对残疾人不够?中东视角。

IF 2.3 4区 医学 Q1 NURSING
Mohammad Amin Akbarzadeh , Hossein Jabbari Beyrami , Alireza Rahimi-Mamaghani , Mohammad-Salar Hosseini
{"title":"为什么癌症护理系统对残疾人不够?中东视角。","authors":"Mohammad Amin Akbarzadeh ,&nbsp;Hossein Jabbari Beyrami ,&nbsp;Alireza Rahimi-Mamaghani ,&nbsp;Mohammad-Salar Hosseini","doi":"10.1016/j.soncn.2025.151881","DOIUrl":null,"url":null,"abstract":"<div><h3>Background</h3><div>Cancer care systems in the Middle East face significant challenges, with people with disabilities experiencing compounded barriers to accessing equitable care, leading to suboptimal outcomes for this vulnerable population. Despite advancements in oncology, the unique needs of this population remain insufficiently addressed within the region's healthcare systems. We discuss the present drawbacks and challenges in the Middle Eastern cancer care systems for people with disability, providing practical recommendations to improve the quality of care for this vulnerable population.</div></div><div><h3>Methods</h3><div>Based on the current literature, policy documents, and expert opinions, a critical discussion is presented in this article, adopting a conceptual framework from the Model of Healthcare Disparities and Disability.</div></div><div><h3>Results</h3><div>Key findings were categorized into environmental factors, personal factors, and healthcare access issues. Widespread inadequacies in healthcare accessibility were recorded, including physical barriers in healthcare infrastructure, limited availability of disability-sensitive services, and lack of training in disability-sensitive care for healthcare professionals in region's most countries. Personal factors, such as low health literacy and sociocultural stigmas surrounding both disability and cancer further affect access to care, probably more significantly in women. Environmental factors, such as financial difficulties, compounded by the lack of targeted subsidies for cancer patients with disabilities, double the burden from policy and data gaps, preventing effective implementation of inclusive healthcare strategies.</div></div><div><h3>Conclusions</h3><div>Addressing barriers to cancer care for people with disabilities in the Middle East requires a coordinated, multisectoral approach. Recommendations include policy reforms to enforce accessibility standards, investments in inclusive infrastructure, expansion of financial support mechanisms, and integration of disability-sensitive training into medical education.</div></div><div><h3>Implications for Nursing Practice</h3><div>To provide equitable cancer care, nurses must adopt a disability-sensitive approach emphasizing personalized, compassionate, and culturally aware practices. This requires specialized training in understanding the unique needs of patients with physical, sensory, or cognitive impairments, as well as the integration of assistive technologies and effective communication strategies into daily care routines. Nurses should also advocate for accessibility within healthcare institutions of the Middle East, identifying and addressing structural gaps affecting access to care for patients with disabilities.</div></div>","PeriodicalId":54253,"journal":{"name":"Seminars in Oncology Nursing","volume":"41 3","pages":"Article 151881"},"PeriodicalIF":2.3000,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Why Cancer Care Systems are Insufficient for People with Disabilities? A Middle Eastern Perspective\",\"authors\":\"Mohammad Amin Akbarzadeh ,&nbsp;Hossein Jabbari Beyrami ,&nbsp;Alireza Rahimi-Mamaghani ,&nbsp;Mohammad-Salar Hosseini\",\"doi\":\"10.1016/j.soncn.2025.151881\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Background</h3><div>Cancer care systems in the Middle East face significant challenges, with people with disabilities experiencing compounded barriers to accessing equitable care, leading to suboptimal outcomes for this vulnerable population. Despite advancements in oncology, the unique needs of this population remain insufficiently addressed within the region's healthcare systems. We discuss the present drawbacks and challenges in the Middle Eastern cancer care systems for people with disability, providing practical recommendations to improve the quality of care for this vulnerable population.</div></div><div><h3>Methods</h3><div>Based on the current literature, policy documents, and expert opinions, a critical discussion is presented in this article, adopting a conceptual framework from the Model of Healthcare Disparities and Disability.</div></div><div><h3>Results</h3><div>Key findings were categorized into environmental factors, personal factors, and healthcare access issues. Widespread inadequacies in healthcare accessibility were recorded, including physical barriers in healthcare infrastructure, limited availability of disability-sensitive services, and lack of training in disability-sensitive care for healthcare professionals in region's most countries. Personal factors, such as low health literacy and sociocultural stigmas surrounding both disability and cancer further affect access to care, probably more significantly in women. Environmental factors, such as financial difficulties, compounded by the lack of targeted subsidies for cancer patients with disabilities, double the burden from policy and data gaps, preventing effective implementation of inclusive healthcare strategies.</div></div><div><h3>Conclusions</h3><div>Addressing barriers to cancer care for people with disabilities in the Middle East requires a coordinated, multisectoral approach. Recommendations include policy reforms to enforce accessibility standards, investments in inclusive infrastructure, expansion of financial support mechanisms, and integration of disability-sensitive training into medical education.</div></div><div><h3>Implications for Nursing Practice</h3><div>To provide equitable cancer care, nurses must adopt a disability-sensitive approach emphasizing personalized, compassionate, and culturally aware practices. This requires specialized training in understanding the unique needs of patients with physical, sensory, or cognitive impairments, as well as the integration of assistive technologies and effective communication strategies into daily care routines. Nurses should also advocate for accessibility within healthcare institutions of the Middle East, identifying and addressing structural gaps affecting access to care for patients with disabilities.</div></div>\",\"PeriodicalId\":54253,\"journal\":{\"name\":\"Seminars in Oncology Nursing\",\"volume\":\"41 3\",\"pages\":\"Article 151881\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-06-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Seminars in Oncology Nursing\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S0749208125000749\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Seminars in Oncology Nursing","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S0749208125000749","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0

摘要

背景:中东地区的癌症护理系统面临着重大挑战,残疾人在获得公平护理方面面临着复杂的障碍,导致这一弱势群体的结果不理想。尽管肿瘤学取得了进步,但该地区的医疗保健系统仍未充分满足这一人群的独特需求。我们讨论了目前中东残疾人癌症护理系统的弊端和挑战,提供了切实可行的建议,以提高对这一弱势群体的护理质量。方法:基于现有文献、政策文件和专家意见,本文采用医疗保健差异和残疾模型的概念框架,进行了批判性的讨论。结果:主要调查结果分为环境因素、个人因素和医疗保健可及性问题。记录显示,在医疗保健可及性方面普遍存在不足,包括医疗保健基础设施存在物理障碍,对残疾问题敏感的服务提供有限,以及该区域大多数国家的医疗保健专业人员缺乏对残疾问题敏感的护理培训。个人因素,如卫生知识普及程度低以及围绕残疾和癌症的社会文化污名,进一步影响到获得护理的机会,对妇女的影响可能更大。财政困难等环境因素,再加上对残疾癌症患者缺乏有针对性的补贴,使政策和数据差距造成的负担加倍,阻碍了包容性医疗保健战略的有效实施。结论:解决中东残疾人癌症治疗的障碍需要采取协调的多部门方法。建议包括政策改革以执行无障碍标准,投资于包容性基础设施,扩大财政支持机制,以及将对残疾敏感的培训纳入医学教育。对护理实践的启示:为了提供公平的癌症护理,护士必须采取残疾敏感的方法,强调个性化,富有同情心和文化意识的做法。这需要专门的培训,以了解身体、感觉或认知障碍患者的独特需求,以及将辅助技术和有效的沟通策略整合到日常护理程序中。护士还应倡导中东医疗机构内的无障碍环境,确定并解决影响残疾患者获得护理的结构性差距。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Why Cancer Care Systems are Insufficient for People with Disabilities? A Middle Eastern Perspective

Background

Cancer care systems in the Middle East face significant challenges, with people with disabilities experiencing compounded barriers to accessing equitable care, leading to suboptimal outcomes for this vulnerable population. Despite advancements in oncology, the unique needs of this population remain insufficiently addressed within the region's healthcare systems. We discuss the present drawbacks and challenges in the Middle Eastern cancer care systems for people with disability, providing practical recommendations to improve the quality of care for this vulnerable population.

Methods

Based on the current literature, policy documents, and expert opinions, a critical discussion is presented in this article, adopting a conceptual framework from the Model of Healthcare Disparities and Disability.

Results

Key findings were categorized into environmental factors, personal factors, and healthcare access issues. Widespread inadequacies in healthcare accessibility were recorded, including physical barriers in healthcare infrastructure, limited availability of disability-sensitive services, and lack of training in disability-sensitive care for healthcare professionals in region's most countries. Personal factors, such as low health literacy and sociocultural stigmas surrounding both disability and cancer further affect access to care, probably more significantly in women. Environmental factors, such as financial difficulties, compounded by the lack of targeted subsidies for cancer patients with disabilities, double the burden from policy and data gaps, preventing effective implementation of inclusive healthcare strategies.

Conclusions

Addressing barriers to cancer care for people with disabilities in the Middle East requires a coordinated, multisectoral approach. Recommendations include policy reforms to enforce accessibility standards, investments in inclusive infrastructure, expansion of financial support mechanisms, and integration of disability-sensitive training into medical education.

Implications for Nursing Practice

To provide equitable cancer care, nurses must adopt a disability-sensitive approach emphasizing personalized, compassionate, and culturally aware practices. This requires specialized training in understanding the unique needs of patients with physical, sensory, or cognitive impairments, as well as the integration of assistive technologies and effective communication strategies into daily care routines. Nurses should also advocate for accessibility within healthcare institutions of the Middle East, identifying and addressing structural gaps affecting access to care for patients with disabilities.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
Seminars in Oncology Nursing
Seminars in Oncology Nursing Nursing-Oncology (nursing)
CiteScore
3.40
自引率
0.00%
发文量
68
审稿时长
45 days
期刊介绍: Seminars in Oncology Nursing is a unique international journal published six times a year. Each issue offers a multi-faceted overview of a single cancer topic from a selection of expert review articles and disseminates oncology nursing research relevant to patient care, nursing education, management, and policy development.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信