晚期或转移性癌症患者的生存护理:建立在最近多国癌症支持护理协会的基础上——asco标准和实践建议。

Q1 Medicine
Michael Jefford, Larissa Nekhlyudov, Andrea L Smith, Raymond J Chan, Julia Lai-Kwon, Nicolas H Hart
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引用次数: 0

摘要

虽然越来越多的人生活在晚期或转移性癌症中,主要是因为更有效的治疗方案,但对晚期或转移性癌症患者的实际人数的估计有限。许多人可能患有可治疗但无法治愈的癌症,可能有数年的生存期,可能有断断续续的治疗。患有晚期或转移性疾病的人,以及他们的家人和照顾者,可能会遇到大量未满足的需求,这些需求与可能治愈的癌症患者重叠,但又截然不同。最近,多国癌症支持护理协会和ASCO制定了有关晚期或转移性癌症患者提供高质量生存护理的标准和实践建议。建议包括七个领域:(1)以人为本的护理;(2)协调综合护理;(3)循证综合护理;(4)评估和沟通关怀;(5)可获得和公平的护理;(6)可持续和有资源的护理;(7)研究和数据驱动型护理。改善临床护理的当务之急包括关注(1)关于预后和护理目标的讨论;(2)定期评估身体、心理和社会未满足的需求,并转介到适当的支持性护理服务;(3)创建混合护理模式,结合姑息治疗和生存服务的要素。其他重点领域包括(1)宣传和政策;(2)系统设计与卫生服务提供;(3)定义、测量和管理质量;(4)解决不平等问题;(5)专门针对这些癌症人群的研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Survivorship Care for People Affected by Advanced or Metastatic Cancer: Building on the Recent Multinational Association of Supportive Care in Cancer-ASCO Standards and Practice Recommendations.

Although there is a growing number of people living with advanced or metastatic cancer, primarily because of more effective treatment regimens, there are limited estimates of the actual number of people living with advanced or metastatic cancer. Many people will have treatable but not curable cancers, may have survival measured in years, and may have periods on and off therapy. People with advanced or metastatic disease, as well as their families and caregivers, may experience significant unmet needs, overlapping yet distinct to those with potentially curable cancer. Recently, the Multinational Association of Supportive Care in Cancer and ASCO developed standards and practice recommendations relevant to the delivery of quality survivorship care for people living with advanced or metastatic cancer. The recommendations included seven domains: (1) person-centered care; (2) coordinated and integrated care; (3) evidence-based and comprehensive care; (4) evaluated and communicated care; (5) accessible and equitable care; (6) sustainable and resourced care; and (7) research and data-driven care. Immediate priorities to improve clinical care include focusing on (1) discussions regarding prognosis and goals of care; (2) routinely assessing physical, psychological, and social unmet needs with referral to appropriate supportive care services; and (3) creating blended models of care, incorporating elements of palliative care and survivorship services. Additional areas for focus include (1) advocacy and policy; (2) system design and health care delivery; (3) defining, measuring, and managing quality; (4) addressing inequity; and (5) research specifically focused on these cancer populations.

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来源期刊
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期刊介绍: The Ed Book is a National Library of Medicine–indexed collection of articles written by ASCO Annual Meeting faculty and invited leaders in oncology. Ed Book was launched in 1985 to highlight standards of care and inspire future therapeutic possibilities in oncology. Published annually, each volume highlights the most compelling research and developments across the multidisciplinary fields of oncology and serves as an enduring scholarly resource for all members of the cancer care team long after the Meeting concludes. These articles address issues in the following areas, among others: Immuno-oncology, Surgical, radiation, and medical oncology, Clinical informatics and quality of care, Global health, Survivorship.
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