遗传咨询的调查研究

IF 1.9 4区医学 Q3 GENETICS & HEREDITY

Journal of Genetic Counseling Pub Date : 2025-05-11 DOI:10.1002/jgc4.70049

Melanie F. Myers, Carrie L. Atzinger

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引用次数: 0

摘要

问卷调查是遗传咨询研究和实践中最常用的数据收集工具之一。在这篇论文中，我们介绍了遗传咨询研究背景下的调查方法概述。管理调查的方法，设计好的问题，并确定研究样本。我们还讨论了设计、验证和实施具有包容性和可靠性的问卷的严格方法。本手稿中的信息和考虑因素将使研究人员能够在不同的环境中开发，预测试，验证和实施调查，并提高遗传咨询研究的严谨性。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Survey research in genetic counseling

Questionnaires are one of the most common tools for collecting data in genetic counseling research and practice. In this manuscript, we present an overview of survey methods in the context of genetic counseling research. Approaches for administering surveys, designing good questions, and identifying study samples are addressed. We also discuss rigorous approaches for designing, validating, and implementing questionnaires that are inclusive and reliable. The information and considerations in this manuscript will empower researchers to develop, pretest, validate, and implement surveys in diverse settings and enhance the rigor of genetic counseling research.

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来源期刊

Journal of Genetic Counseling GENETICS & HEREDITY-

CiteScore

3.80

自引率

26.30%

发文量

113

审稿时长

6 months

期刊介绍： The Journal of Genetic Counseling (JOGC), published for the National Society of Genetic Counselors, is a timely, international forum addressing all aspects of the discipline and practice of genetic counseling. The journal focuses on the critical questions and problems that arise at the interface between rapidly advancing technological developments and the concerns of individuals and communities at genetic risk. The publication provides genetic counselors, other clinicians and health educators, laboratory geneticists, bioethicists, legal scholars, social scientists, and other researchers with a premier resource on genetic counseling topics in national, international, and cross-national contexts.