Zara Mansoor , Elliot Bell , James Stanley , Mary Buchanan , Sarah Fortune
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In each group, participants identified a range of important outcomes in their care. Outcomes were ranked by participants with the top outcome for each group used to construct a measure for inclusion in the RCT.</div></div><div><h3>Results</h3><div>Parents and young people identified a range of important outcomes in their care including improvements in daily functioning, safety, and relationships. Parents identified ‘strengthened relationships’ as their top priority for intervention while young people chose ‘being listened to more’. Based on these priorities, trial outcome measures were co-created with participants. The relationship focused outcomes contrast with more widely used symptom-based outcome measures in RCTs.</div></div><div><h3>Conclusions</h3><div>Co-design can be used within traditional research design in youth mental health to increase alignment in outcomes for young people and their families. The approach described in this study has the potential to be adapted and expanded to other settings.</div></div>","PeriodicalId":55864,"journal":{"name":"Mental Health and Prevention","volume":"38 ","pages":"Article 200422"},"PeriodicalIF":0.0000,"publicationDate":"2025-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"What matters most to young people and families receiving mental health treatment? A co-design approach to inform outcomes in a randomised control trial of Tuning in to Teens\",\"authors\":\"Zara Mansoor , Elliot Bell , James Stanley , Mary Buchanan , Sarah Fortune\",\"doi\":\"10.1016/j.mhp.2025.200422\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Background</h3><div>Co-design approaches with young people and their families with experience of poor mental health can be used to improve the alignment between clinical trials and real-world settings. 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引用次数: 0
摘要
背景:针对有不良心理健康经历的年轻人及其家庭的共同设计方法可用于改善临床试验与现实环境之间的一致性。本研究采用共同设计方法,将青少年(10-14岁)在精神卫生服务中接受治疗的优先事项及其父母纳入以父母为中心的青少年焦虑和抑郁干预(Tuning into Teens™)的可行性随机对照试验(RCT)的结果测量中。方法新西兰儿童青少年心理健康服务中心(CAMHS)的一组10-14岁青少年(n = 5)和一组家长(n = 7)参加了共同设计研讨会。在每一组中,参与者确定了他们护理的一系列重要结果。结果由参与者排序,每个组的最高结果用于构建纳入RCT的测量。结果父母和年轻人在他们的护理中确定了一系列重要的结果,包括日常功能、安全性和人际关系的改善。家长们认为“加强关系”是他们干预的首要目标,而年轻人则选择“多倾听”。基于这些优先级,与参与者共同创建试验结果指标。以关系为中心的结果与随机对照试验中更广泛使用的基于症状的结果测量方法形成对比。结论sco设计可用于传统的青少年心理健康研究设计,以增加青少年及其家庭结果的一致性。本研究中描述的方法有可能被调整和扩展到其他环境。
What matters most to young people and families receiving mental health treatment? A co-design approach to inform outcomes in a randomised control trial of Tuning in to Teens
Background
Co-design approaches with young people and their families with experience of poor mental health can be used to improve the alignment between clinical trials and real-world settings. This study used a co-design methodology to incorporate the priorities of young people (10–14 years) receiving treatment in mental health services and their parents into outcome measures for a feasibility randomised control trial (RCT) of a parent-focused intervention for youth anxiety and depression (Tuning in to Teens™).
Methods
A group of young people (10–14 years, n = 5) and a group of parents (n = 7) attending Child Adolescent Mental Health Services (CAMHS) in New Zealand participated in co-design workshops. In each group, participants identified a range of important outcomes in their care. Outcomes were ranked by participants with the top outcome for each group used to construct a measure for inclusion in the RCT.
Results
Parents and young people identified a range of important outcomes in their care including improvements in daily functioning, safety, and relationships. Parents identified ‘strengthened relationships’ as their top priority for intervention while young people chose ‘being listened to more’. Based on these priorities, trial outcome measures were co-created with participants. The relationship focused outcomes contrast with more widely used symptom-based outcome measures in RCTs.
Conclusions
Co-design can be used within traditional research design in youth mental health to increase alignment in outcomes for young people and their families. The approach described in this study has the potential to be adapted and expanded to other settings.