Understanding frailty experiences in Dutch community-dwelling older people: A qualitative phenomenological study

As the population ages, the proportion of frail older people is also increasing. While attention to frailty experiences has increased, how these account to a comprehensive understanding of frailty and its impact on behavior and functioning remains understudied. Therefore, in this study, we aimed to understand how frailty is experienced, and how frailty and frailty experiences affect behavior and functioning from the perspectives of Dutch community-dwelling older people. In this phenomenological qualitative study, we conducted semi-structured interviews with 36 community-dwelling older people (≥65 years). The ‘Tilburg Frailty Indicator’ was administered to measure frailty, 15 of the participants were considered frail. Thematic analysis revealed the following themes and subthemes: 1) frailty experiences: situation related, initiated internally, initiated externally, and being and feeling frail; 2) coping: cognitive efforts, behavioral efforts, and emotional aspects. The distinction between being frail and feeling frail was, among other things, reflected in the temporality of frailty experiences, such as short periods of moments in time experiencing frailty. Personal factors and contexts strongly influence an individual's experiences and multiple coping strategies were discovered, with mindset shaping individual coping strategies. We recommend a personalized approach in which the experiences and capabilities of older people are considered to support them in maintaining or enhancing their well-being.