{"title":"跨条件的洞察:来自英国范围内的一项大型调查的关节炎的诊断、治疗和生活经验","authors":"Victoria Arno, Michael Li, Karen Hodgson","doi":"10.1093/rheumatology/keaf142.101","DOIUrl":null,"url":null,"abstract":"Background/Aims Versus Arthritis is the UK’s largest charity dedicated to supporting people with arthritis. In this work, we aimed to gather quantitative data through a UK-wide survey to give a broad view of the perspectives of people with any type of arthritis condition(s). This included people who may not have engaged with healthcare systems in relation to their arthritis, or those yet to receive a formal diagnosis. Our work aims to explore both the differences and similarities in experiences across this population. A more detailed understanding of the experience of those with arthritis is crucial to identifying inequalities between groups. Methods Between June-August 2024, we commissioned YouGov to run a 15-minute online survey of adults living with arthritis in the United Kingdom, gathering insights into the experiences of getting a diagnosis, treatment and living with arthritis. The sample was recruited via YouGov’s population panel, with additional participants recruited via Versus Arthritis’ networks and advertising. This was a charity-led study using a self-referred anonymous questionnaire, and the NHS REC online tool confirms NHS ethical approval was not required. Participant consent was obtained and data are presented following best practice to ensure participants are non-identifiable. Results All analysis was undertaken by Versus Arthritis. After applying weighting, there were 7,928 respondents to the survey. 5,888 were recruited via YouGov’s panel and 2,040 from Versus Arthritis’ networks. The weighted sample was 59% (4,655) female, with an age breakdown of: 3% (238) aged 18-44, 48% (3,816) aged 45-64, and 49% (3,875) over 65. 84% lived in England (6,653), 8.5% in Scotland (673), 4.8% (380) in Wales and 2.8% (222) in Northern Ireland. In terms of arthritis conditions among respondents, 86% (6,783) reported osteoarthritis, 8% (664) rheumatoid arthritis, 4% (313) psoriatic arthritis, and 7% (594) gout or calcium crystal diseases. 3% (272) reported another arthritis condition and 9% (695) reported having an arthritis condition but did not know which condition it was. 1,525 people (16%) reported having more than one arthritis condition; of which 238 people have three or more arthritis conditions. Conclusion The data have been weighted by age, gender and type of arthritis condition to ensure a representative spread of people with arthritis in the UK. Further analysis is being undertaken of these data and we will describe and compare experiences by condition and demographics. We will consider both experiences of interacting with healthcare services alongside a wider view of the impact of arthritis on people’s lives. Funding: This survey was funded by Versus Arthritis. Disclosure V. Arno: None. M. Li: None. K. Hodgson: None.","PeriodicalId":21255,"journal":{"name":"Rheumatology","volume":"38 1","pages":""},"PeriodicalIF":4.7000,"publicationDate":"2025-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"P059 Insights across conditions: experiences of diagnosis, treatment and living well with arthritis from a large UK-wide survey\",\"authors\":\"Victoria Arno, Michael Li, Karen Hodgson\",\"doi\":\"10.1093/rheumatology/keaf142.101\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Background/Aims Versus Arthritis is the UK’s largest charity dedicated to supporting people with arthritis. In this work, we aimed to gather quantitative data through a UK-wide survey to give a broad view of the perspectives of people with any type of arthritis condition(s). This included people who may not have engaged with healthcare systems in relation to their arthritis, or those yet to receive a formal diagnosis. Our work aims to explore both the differences and similarities in experiences across this population. A more detailed understanding of the experience of those with arthritis is crucial to identifying inequalities between groups. Methods Between June-August 2024, we commissioned YouGov to run a 15-minute online survey of adults living with arthritis in the United Kingdom, gathering insights into the experiences of getting a diagnosis, treatment and living with arthritis. The sample was recruited via YouGov’s population panel, with additional participants recruited via Versus Arthritis’ networks and advertising. This was a charity-led study using a self-referred anonymous questionnaire, and the NHS REC online tool confirms NHS ethical approval was not required. Participant consent was obtained and data are presented following best practice to ensure participants are non-identifiable. Results All analysis was undertaken by Versus Arthritis. After applying weighting, there were 7,928 respondents to the survey. 5,888 were recruited via YouGov’s panel and 2,040 from Versus Arthritis’ networks. The weighted sample was 59% (4,655) female, with an age breakdown of: 3% (238) aged 18-44, 48% (3,816) aged 45-64, and 49% (3,875) over 65. 84% lived in England (6,653), 8.5% in Scotland (673), 4.8% (380) in Wales and 2.8% (222) in Northern Ireland. In terms of arthritis conditions among respondents, 86% (6,783) reported osteoarthritis, 8% (664) rheumatoid arthritis, 4% (313) psoriatic arthritis, and 7% (594) gout or calcium crystal diseases. 3% (272) reported another arthritis condition and 9% (695) reported having an arthritis condition but did not know which condition it was. 1,525 people (16%) reported having more than one arthritis condition; of which 238 people have three or more arthritis conditions. Conclusion The data have been weighted by age, gender and type of arthritis condition to ensure a representative spread of people with arthritis in the UK. Further analysis is being undertaken of these data and we will describe and compare experiences by condition and demographics. We will consider both experiences of interacting with healthcare services alongside a wider view of the impact of arthritis on people’s lives. Funding: This survey was funded by Versus Arthritis. Disclosure V. Arno: None. M. Li: None. K. Hodgson: None.\",\"PeriodicalId\":21255,\"journal\":{\"name\":\"Rheumatology\",\"volume\":\"38 1\",\"pages\":\"\"},\"PeriodicalIF\":4.7000,\"publicationDate\":\"2025-04-28\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Rheumatology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1093/rheumatology/keaf142.101\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"RHEUMATOLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Rheumatology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1093/rheumatology/keaf142.101","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"RHEUMATOLOGY","Score":null,"Total":0}
P059 Insights across conditions: experiences of diagnosis, treatment and living well with arthritis from a large UK-wide survey
Background/Aims Versus Arthritis is the UK’s largest charity dedicated to supporting people with arthritis. In this work, we aimed to gather quantitative data through a UK-wide survey to give a broad view of the perspectives of people with any type of arthritis condition(s). This included people who may not have engaged with healthcare systems in relation to their arthritis, or those yet to receive a formal diagnosis. Our work aims to explore both the differences and similarities in experiences across this population. A more detailed understanding of the experience of those with arthritis is crucial to identifying inequalities between groups. Methods Between June-August 2024, we commissioned YouGov to run a 15-minute online survey of adults living with arthritis in the United Kingdom, gathering insights into the experiences of getting a diagnosis, treatment and living with arthritis. The sample was recruited via YouGov’s population panel, with additional participants recruited via Versus Arthritis’ networks and advertising. This was a charity-led study using a self-referred anonymous questionnaire, and the NHS REC online tool confirms NHS ethical approval was not required. Participant consent was obtained and data are presented following best practice to ensure participants are non-identifiable. Results All analysis was undertaken by Versus Arthritis. After applying weighting, there were 7,928 respondents to the survey. 5,888 were recruited via YouGov’s panel and 2,040 from Versus Arthritis’ networks. The weighted sample was 59% (4,655) female, with an age breakdown of: 3% (238) aged 18-44, 48% (3,816) aged 45-64, and 49% (3,875) over 65. 84% lived in England (6,653), 8.5% in Scotland (673), 4.8% (380) in Wales and 2.8% (222) in Northern Ireland. In terms of arthritis conditions among respondents, 86% (6,783) reported osteoarthritis, 8% (664) rheumatoid arthritis, 4% (313) psoriatic arthritis, and 7% (594) gout or calcium crystal diseases. 3% (272) reported another arthritis condition and 9% (695) reported having an arthritis condition but did not know which condition it was. 1,525 people (16%) reported having more than one arthritis condition; of which 238 people have three or more arthritis conditions. Conclusion The data have been weighted by age, gender and type of arthritis condition to ensure a representative spread of people with arthritis in the UK. Further analysis is being undertaken of these data and we will describe and compare experiences by condition and demographics. We will consider both experiences of interacting with healthcare services alongside a wider view of the impact of arthritis on people’s lives. Funding: This survey was funded by Versus Arthritis. Disclosure V. Arno: None. M. Li: None. K. Hodgson: None.
期刊介绍:
Rheumatology strives to support research and discovery by publishing the highest quality original scientific papers with a focus on basic, clinical and translational research. The journal’s subject areas cover a wide range of paediatric and adult rheumatological conditions from an international perspective. It is an official journal of the British Society for Rheumatology, published by Oxford University Press.
Rheumatology publishes original articles, reviews, editorials, guidelines, concise reports, meta-analyses, original case reports, clinical vignettes, letters and matters arising from published material. The journal takes pride in serving the global rheumatology community, with a focus on high societal impact in the form of podcasts, videos and extended social media presence, and utilizing metrics such as Altmetric. Keep up to date by following the journal on Twitter @RheumJnl.