{"title":"临床实践中的儿科姑息关怀：预先护理计划和临终决定中的伦理问题","authors":"Anamarija Meglič, Ajda Lisec","doi":"10.1111/jep.70094","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Rationale</h3>\n \n <p>This study examines ethical challenges faced by a paediatric palliative care (PPC) team when making end-of-life (EOL) decisions for children with life-limiting conditions.</p>\n </section>\n \n <section>\n \n <h3> Aim</h3>\n \n <p>To assess the team's attitudes towards ethical issues and propose innovative solutions.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>The data was collected in 2022 at the University Children's Hospital Ljubljana. A researcher-made questionnaire was developed based on team experience. Ten PPC team members participated anonymously, evaluating ethical concerns in communication, decision-making, and patient characteristics. Mann–Whitney <i>U</i> test was used to analyze the data.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Ethical issues emerge when coordinating treatment opinions becomes challenging, resulting in excluding a child from PPC. Situations involving communication, differing healthcare opinions, and patient characteristics were seen as ethical issues, highlighting the importance of communication and shared decision-making.</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>Ethical complexities in paediatric EOL care require adept communication and interdisciplinary teamwork. Poor communication may be associated with excluding children from PPC. Innovative strategies and ongoing training are vital to address these challenges effectively, ensuring optimal care for children and their families.</p>\n </section>\n </div>","PeriodicalId":15997,"journal":{"name":"Journal of evaluation in clinical practice","volume":"31 3","pages":""},"PeriodicalIF":2.1000,"publicationDate":"2025-04-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70094","citationCount":"0","resultStr":"{\"title\":\"Paediatric Palliative Care in Clinical Practice: Ethical Issues in Advance Care Planning and End-of-Life Decisions\",\"authors\":\"Anamarija Meglič, Ajda Lisec\",\"doi\":\"10.1111/jep.70094\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Rationale</h3>\\n \\n <p>This study examines ethical challenges faced by a paediatric palliative care (PPC) team when making end-of-life (EOL) decisions for children with life-limiting conditions.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Aim</h3>\\n \\n <p>To assess the team's attitudes towards ethical issues and propose innovative solutions.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Methods</h3>\\n \\n <p>The data was collected in 2022 at the University Children's Hospital Ljubljana. A researcher-made questionnaire was developed based on team experience. Ten PPC team members participated anonymously, evaluating ethical concerns in communication, decision-making, and patient characteristics. Mann–Whitney <i>U</i> test was used to analyze the data.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Results</h3>\\n \\n <p>Ethical issues emerge when coordinating treatment opinions becomes challenging, resulting in excluding a child from PPC. Situations involving communication, differing healthcare opinions, and patient characteristics were seen as ethical issues, highlighting the importance of communication and shared decision-making.</p>\\n </section>\\n \\n <section>\\n \\n <h3> Conclusions</h3>\\n \\n <p>Ethical complexities in paediatric EOL care require adept communication and interdisciplinary teamwork. Poor communication may be associated with excluding children from PPC. Innovative strategies and ongoing training are vital to address these challenges effectively, ensuring optimal care for children and their families.</p>\\n </section>\\n </div>\",\"PeriodicalId\":15997,\"journal\":{\"name\":\"Journal of evaluation in clinical practice\",\"volume\":\"31 3\",\"pages\":\"\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-04-21\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1111/jep.70094\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of evaluation in clinical practice\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/jep.70094\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"HEALTH CARE SCIENCES & SERVICES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of evaluation in clinical practice","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jep.70094","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}
Paediatric Palliative Care in Clinical Practice: Ethical Issues in Advance Care Planning and End-of-Life Decisions
Rationale
This study examines ethical challenges faced by a paediatric palliative care (PPC) team when making end-of-life (EOL) decisions for children with life-limiting conditions.
Aim
To assess the team's attitudes towards ethical issues and propose innovative solutions.
Methods
The data was collected in 2022 at the University Children's Hospital Ljubljana. A researcher-made questionnaire was developed based on team experience. Ten PPC team members participated anonymously, evaluating ethical concerns in communication, decision-making, and patient characteristics. Mann–Whitney U test was used to analyze the data.
Results
Ethical issues emerge when coordinating treatment opinions becomes challenging, resulting in excluding a child from PPC. Situations involving communication, differing healthcare opinions, and patient characteristics were seen as ethical issues, highlighting the importance of communication and shared decision-making.
Conclusions
Ethical complexities in paediatric EOL care require adept communication and interdisciplinary teamwork. Poor communication may be associated with excluding children from PPC. Innovative strategies and ongoing training are vital to address these challenges effectively, ensuring optimal care for children and their families.
期刊介绍：
The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
