慢性病人的非专业护理人员的经验

IF 1.1 Q4 HEALTH CARE SCIENCES & SERVICES

Journal of Healthcare Quality Research Pub Date : 2025-04-21 DOI:10.1016/j.jhqr.2025.101130

A. Picón-Santamaría , S. Ballesteros-Peña

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引用次数: 0

摘要

导言人口老龄化和慢性疾病的增加给医疗保健系统带来了巨大挑战。非正式照护者在照护这些病人的过程中扮演着至关重要的角色，但他们的经历仍未得到充分探索。本研究评估了住院慢性病患者非正规护理人员的经历。材料与方法 2023 年至 2024 年期间，毕尔巴鄂圣玛丽娜医院开展了一项描述性观察研究。采用 IEXPAC 护理人员量表对 182 名非正式护理人员的经历进行评估。数据采用描述性和推论性统计方法进行分析。结果总平均分为 7.1 (± 2.7)（满分 10 分）（Cronbach's α = 0.914）。评分最高的项目是紧急情况下的沟通和药物管理。但在培训、可用资源信息和服务协调方面存在不足。在情感支持和治疗跟踪等方面，护理人员和患者的性别存在显著差异。有必要改善服务协调，为他们提供持续培训和情感支持。性别差异凸显了个性化方法的重要性，以增强他们的体验并减轻护理负担。

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La experiencia de los cuidadores no profesionales de pacientes crónicos

Introduction

Population aging and the increase in chronic diseases pose significant challenges to healthcare systems. Informal caregivers play a crucial role in caring for these patients, yet their experiences remain underexplored. This study evaluates the experience of informal caregivers of hospitalized chronic patients.

Materials and methods

A descriptive observational study was conducted at Hospital Santa Marina, Bilbao, between 2023 and 2024. The IEXPAC-Caregivers scale was used to assess the experience of 182 informal caregivers. Data were analyzed using descriptive and inferential statistics. SPSS v.25 software was used for statistical analysis.

Results

The overall average score was 7.1 (± 2.7) out of 10 (Cronbach's α = 0.914). The best-rated items were communication during emergencies and medication administration. However, deficiencies were noted in training, information about available resources, and coordination between services. Significant differences were found in aspects such as emotional support and treatment follow-up based on the gender of the caregiver and the patient.

Conclusions

Informal caregivers play an essential role in the care of chronic patients. There is a need to improve service coordination and provide ongoing training and emotional support to them. Gender differences highlight the importance of personalized approaches to enhance their experience and reduce caregiving burden.

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来源期刊

Journal of Healthcare Quality Research Medicine-Health Policy

CiteScore

1.70

自引率

8.30%

发文量

审稿时长

57 days

期刊介绍： Revista de Calidad Asistencial (Quality Healthcare) (RCA) is the official Journal of the Spanish Society of Quality Healthcare (Sociedad Española de Calidad Asistencial) (SECA) and is a tool for the dissemination of knowledge and reflection for the quality management of health services in Primary Care, as well as in Hospitals. It publishes articles associated with any aspect of research in the field of public health and health administration, including health education, epidemiology, medical statistics, health information, health economics, quality management, and health policies. The Journal publishes 6 issues, exclusively in electronic format. The Journal publishes, in Spanish, Original works, Special and Review Articles, as well as other sections. Articles are subjected to a rigorous, double blind, review process (peer review)