Development and application of patient-reported experience measures for cancer patients: a scoping review

Objective

This study examines the currently available Patient-Reported Experience Measures for cancer patients and provides a scoping overview of their definitions, evaluation frameworks, assessment tools, and current applications. The findings aim to inform and guide the development of a patient-centered care model.

Methods

Using a combination of subject terms and free-text keywords, studies published by national and international initiatives were reviewed across three online databases (PubMed, Web of Science, and MEDLINE) following the PRISMA guidelines.

Results

A total of 2216 papers were reviewed, of which 24 were included in the scoping review. From these, 11 Patient-Reported Experience Measures were identified, each from 10 different national projects. Definitions of Patient-Reported Experience Measures were established, and the current status of Patient-Reported Experience Measures evaluation systems for cancer patients, along with their application across four domains, was analyzed.

Conclusion

Currently, research on Patient-Reported Experience Measures in cancer patients remains in its early stages, and the effectiveness of several assessment tools has yet to be fully validated. Future studies should focus on developing high-quality, cancer-specific Patient-Reported Experience Measures assessment tools. These tools should be rigorously evaluated and tailored to the unique characteristics of cancer patients' healthcare experiences, with the aim of supporting and enhancing patient-centered care practices.