MyGuide long COVID：针对长COVID患者的在线自我管理工具

IF 3.6 2区医学 Q1 HEALTH CARE SCIENCES & SERVICES

Internet Interventions-The Application of Information Technology in Mental and Behavioural Health Pub Date : 2025-04-04 DOI:10.1016/j.invent.2025.100825

Hiten Naik , Kyla Pongratz , Michelle Malbeuf , Sonya Kung , Lori Last , Asuka Sugiyama , Esther Khor , Marlee McGuire , Adeera Levin , Karen C. Tran

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引用次数: 0

摘要

背景长COVID是一种相对较新的疾病，要求患者采用自我管理策略来控制症状。然而，对于长期感染COVID的个人来说，找到可靠和可操作的自我管理资源可能具有挑战性。该项目的目标是为患有长COVID的个人开发一个以患者为中心、可访问和可定制的在线工具，以满足个人需求。方法smyguide Long COVID （www.longCOVIDguide.ca）在加拿大不列颠哥伦比亚省（BC）由一个包括Long COVID临床医生和患者合作伙伴在内的团队开发。网站访问者回答有关他们症状的问题，MyGuide会根据他们的需要生成一套精心策划的自我管理资源。自2023年8月推出以来，谷歌Analytics已被用于监控网站活动。结果在第一年，我的指南有52578个总页面浏览量和8570个新用户。访问MyGuide最流行的方式是通过电脑（56.3%的用户），最具代表性的城市是BC省温哥华（23.5%的用户）。最受欢迎的话题是“劳累后不适”（1339次）和“什么是长COVID?”（1257次）。结论支持慢性疾病自我管理的在线工具可以成功地与患者合作伙伴共同开发，并使用web分析跟踪参与情况。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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MyGuide long COVID: An online self-management tool for people with long COVID

Background

Long COVID is a relatively new condition for which patients are asked to employ self-management strategies to manage their symptoms. However, it can be challenging for individuals with long COVID to find reliable and actionable self-management resources. The objective of this project was to develop an online tool for individuals with long COVID that is patient-centered, accessible, and customizable to meet individual needs.

Methods

MyGuide Long COVID (www.longCOVIDguide.ca) was developed in British Columbia (BC), Canada, by a team that included long COVID clinicians and patient partners. Site visitors answer questions about their symptoms, and MyGuide generates a curated set of self-management resources tailored to their needs. Since its launch in August 2023, Google Analytics has been used to monitor website activity.

Results

Within the first year, MyGuide had 52,578 total page views and 8570 new users. The most popular method to access MyGuide was by computer (56.3 % of users), and the most represented city was Vancouver, BC (23.5 % of users). The most popular topics were “Post Exertional Malaise” (1339 sessions) and “What is long COVID?” (1257 sessions).

Conclusions

An online tool to support chronic disease self-management can be successfully co-developed with patient partners and engagement tracked using web analytics.

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来源期刊

Internet Interventions-The Application of Information Technology in Mental and Behavioural Health Medicine-Health Informatics

CiteScore

6.50

自引率

9.30%

发文量

审稿时长

6 weeks

期刊介绍： Official Journal of the European Society for Research on Internet Interventions (ESRII) and the International Society for Research on Internet Interventions (ISRII). The aim of Internet Interventions is to publish scientific, peer-reviewed, high-impact research on Internet interventions and related areas. Internet Interventions welcomes papers on the following subjects: • Intervention studies targeting the promotion of mental health and featuring the Internet and/or technologies using the Internet as an underlying technology, e.g. computers, smartphone devices, tablets, sensors • Implementation and dissemination of Internet interventions • Integration of Internet interventions into existing systems of care • Descriptions of development and deployment infrastructures • Internet intervention methodology and theory papers • Internet-based epidemiology • Descriptions of new Internet-based technologies and experiments with clinical applications • Economics of internet interventions (cost-effectiveness) • Health care policy and Internet interventions • The role of culture in Internet intervention • Internet psychometrics • Ethical issues pertaining to Internet interventions and measurements • Human-computer interaction and usability research with clinical implications • Systematic reviews and meta-analysis on Internet interventions