揭秘生活:利用边走边说的方法,一瞥马来西亚麻风病患者的日常生活。

IF 2.3 3区 医学 Q2 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
Global Public Health Pub Date : 2025-12-01 Epub Date: 2025-04-07 DOI:10.1080/17441692.2025.2488889
Norana Abdul Rahman, Vaikunthan Rajaratnam, Ruth M H Peters, Mohamed Rusli Abdullah, Karen Morgan
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引用次数: 0

摘要

麻风病虽然可以治愈,但仍然给患者带来身体和心理挑战。本研究探讨了马来西亚麻风病患者如何通过“边走边谈”技术应对日常生活、社会期望和个人挑战。“边走边谈”是一种参与者主导的定性方法,可培养自发讲故事和反射性。通过引导研究人员穿越他们的环境,参与者塑造了叙事,改变了权力动态,实现了真实的对话。来自吉兰丹州和雪兰莪州的六位参加者分享了他们的日常活动、愿望和应对策略。视频记录被用作辅助工具来捕捉非语言线索和上下文互动。使用NVivo 12对视觉、听觉和实地数据进行转录和主题分析,揭示关键主题,包括复原力和毅力、就业和经济支持、耻辱、家庭支持和社区参与。工作成为他们幸福生活的核心,培养了他们的尊严,提供了他们的经济稳定。然而,自我强加的耻辱限制了社会包容,而牢固的家庭和社区纽带提供了至关重要的支持。这些发现突出了边走边谈技术在获取丰富定性数据方面的有效性,并强调需要采取有针对性的干预措施,以解决污名问题,加强社会包容,并支持麻风病患者的福祉和经济稳定。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique.

Leprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led qualitative approach that fostered spontaneous storytelling and reflexivity. By guiding researchers through their environments, participants shaped the narrative, shifting power dynamics and enabling authentic dialogue. Six participants from Kelantan and Selangor shared their everyday activities, aspirations, and coping strategies. Video documentation was used as a supplementary tool to capture non-verbal cues and contextual interactions. Visual, auditory, and field data were transcribed and thematically analysed using NVivo 12, revealing key themes, including resilience and perseverance, employment and economic sustenance, stigma, family support, and community engagement. Work emerged as central to their well-being, fostering dignity and providing financial stability. However, self-imposed stigma limited social inclusion, while strong familial and community bonds provided crucial support. These findings highlighted the effectiveness of the walk-and-talk technique in capturing rich qualitative data and emphasised the need for tailored interventions to address stigma, enhance social inclusion, and support the well-being and economic stability of individuals affected by leprosy.

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来源期刊
Global Public Health
Global Public Health PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
6.50
自引率
3.00%
发文量
120
期刊介绍: Global Public Health is an essential peer-reviewed journal that energetically engages with key public health issues that have come to the fore in the global environment — mounting inequalities between rich and poor; the globalization of trade; new patterns of travel and migration; epidemics of newly-emerging and re-emerging infectious diseases; the HIV/AIDS pandemic; the increase in chronic illnesses; escalating pressure on public health infrastructures around the world; and the growing range and scale of conflict situations, terrorist threats, environmental pressures, natural and human-made disasters.
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