Norana Abdul Rahman, Vaikunthan Rajaratnam, Ruth M H Peters, Mohamed Rusli Abdullah, Karen Morgan
{"title":"揭秘生活:利用边走边说的方法,一瞥马来西亚麻风病患者的日常生活。","authors":"Norana Abdul Rahman, Vaikunthan Rajaratnam, Ruth M H Peters, Mohamed Rusli Abdullah, Karen Morgan","doi":"10.1080/17441692.2025.2488889","DOIUrl":null,"url":null,"abstract":"<p><p>Leprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led qualitative approach that fostered spontaneous storytelling and reflexivity. By guiding researchers through their environments, participants shaped the narrative, shifting power dynamics and enabling authentic dialogue. Six participants from Kelantan and Selangor shared their everyday activities, aspirations, and coping strategies. Video documentation was used as a supplementary tool to capture non-verbal cues and contextual interactions. Visual, auditory, and field data were transcribed and thematically analysed using NVivo 12, revealing key themes, including resilience and perseverance, employment and economic sustenance, stigma, family support, and community engagement. Work emerged as central to their well-being, fostering dignity and providing financial stability. However, self-imposed stigma limited social inclusion, while strong familial and community bonds provided crucial support. These findings highlighted the effectiveness of the walk-and-talk technique in capturing rich qualitative data and emphasised the need for tailored interventions to address stigma, enhance social inclusion, and support the well-being and economic stability of individuals affected by leprosy.</p>","PeriodicalId":12735,"journal":{"name":"Global Public Health","volume":"20 1","pages":"2488889"},"PeriodicalIF":2.3000,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique.\",\"authors\":\"Norana Abdul Rahman, Vaikunthan Rajaratnam, Ruth M H Peters, Mohamed Rusli Abdullah, Karen Morgan\",\"doi\":\"10.1080/17441692.2025.2488889\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><p>Leprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led qualitative approach that fostered spontaneous storytelling and reflexivity. By guiding researchers through their environments, participants shaped the narrative, shifting power dynamics and enabling authentic dialogue. Six participants from Kelantan and Selangor shared their everyday activities, aspirations, and coping strategies. Video documentation was used as a supplementary tool to capture non-verbal cues and contextual interactions. Visual, auditory, and field data were transcribed and thematically analysed using NVivo 12, revealing key themes, including resilience and perseverance, employment and economic sustenance, stigma, family support, and community engagement. Work emerged as central to their well-being, fostering dignity and providing financial stability. However, self-imposed stigma limited social inclusion, while strong familial and community bonds provided crucial support. These findings highlighted the effectiveness of the walk-and-talk technique in capturing rich qualitative data and emphasised the need for tailored interventions to address stigma, enhance social inclusion, and support the well-being and economic stability of individuals affected by leprosy.</p>\",\"PeriodicalId\":12735,\"journal\":{\"name\":\"Global Public Health\",\"volume\":\"20 1\",\"pages\":\"2488889\"},\"PeriodicalIF\":2.3000,\"publicationDate\":\"2025-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Global Public Health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17441692.2025.2488889\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/4/7 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Global Public Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17441692.2025.2488889","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/4/7 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
Unveiling lives: A glimpse into the daily routines of individuals affected by leprosy in Malaysia using the walk-and-talk technique.
Leprosy, though curable, continues to present physical and psychosocial challenges for those affected. This study explored how individuals affected by leprosy in Malaysia navigated daily life, societal expectations, and personal challenges through the walk-and-talk technique, a participant-led qualitative approach that fostered spontaneous storytelling and reflexivity. By guiding researchers through their environments, participants shaped the narrative, shifting power dynamics and enabling authentic dialogue. Six participants from Kelantan and Selangor shared their everyday activities, aspirations, and coping strategies. Video documentation was used as a supplementary tool to capture non-verbal cues and contextual interactions. Visual, auditory, and field data were transcribed and thematically analysed using NVivo 12, revealing key themes, including resilience and perseverance, employment and economic sustenance, stigma, family support, and community engagement. Work emerged as central to their well-being, fostering dignity and providing financial stability. However, self-imposed stigma limited social inclusion, while strong familial and community bonds provided crucial support. These findings highlighted the effectiveness of the walk-and-talk technique in capturing rich qualitative data and emphasised the need for tailored interventions to address stigma, enhance social inclusion, and support the well-being and economic stability of individuals affected by leprosy.
期刊介绍:
Global Public Health is an essential peer-reviewed journal that energetically engages with key public health issues that have come to the fore in the global environment — mounting inequalities between rich and poor; the globalization of trade; new patterns of travel and migration; epidemics of newly-emerging and re-emerging infectious diseases; the HIV/AIDS pandemic; the increase in chronic illnesses; escalating pressure on public health infrastructures around the world; and the growing range and scale of conflict situations, terrorist threats, environmental pressures, natural and human-made disasters.