IF 2.5 2区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Shuo Li, Guijun Lu, Yongqing Shen, Jianya Ye, Jingmin Ji
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引用次数: 0

摘要

背景:基于互联网的姑息门诊服务可确保无缝连接和公平的患者护理;然而,目前缺乏对服务质量以及患者亲属的体验和看法的研究。本研究旨在探讨病人亲属在使用姑息治疗网络门诊时的观点和体验:方法:对 13 名晚期癌症患者的亲属进行了半结构式访谈,并采用内容分析法对数据进行了分析:结果:亲属们表示,他们有能力在家照顾病人,但在控制病人症状和解决病人心理问题方面遇到了困惑和挑战。他们希望互联网诊所能为家庭提供及时有效的专业指导,减轻护理负担,提高家庭护理质量:本研究强调了基于互联网的姑息关怀在提高居家照护质量和减轻照护者负担方面的潜力。此外,基于互联网的咨询作为面对面咨询的一种替代方式,为姑息关怀提供了一种合适的选择。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
A qualitative study on the experience of internet outpatient consultation in palliative care for relatives of cancer patients.

Background: The palliative Internet-based outpatient service ensures seamless connectivity and equitable patient care; however, there is a lack of research on service quality, as well as the experiences and perceptions of patients' relatives. The aim of this study was to explore the perspectives and experiences of patients' relatives when using the palliative Internet clinic.

Methods: A qualitative study involving semi-structured interviews with 13 relatives of terminal cancer patients was conducted, and data were analyzed using content analysis.

Results: Relatives reported that they were capable of caring for the patients at home but experienced confusion and challenges in managing their symptoms and addressing their psychological issues. They expressed hope that Internet clinics would provide timely and effective professional guidance to families, easing caregiving burdens and enhancing the quality of home-based care.

Conclusions: This study highlights the potential of Internet-based palliative care to enhance the quality of home-based caregiving and reduce caregiver burden. In addition, Internet-based consultations as an alternative to face-to-face consultations offers an appropriate option in palliative care settings.

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来源期刊
BMC Palliative Care
BMC Palliative Care HEALTH CARE SCIENCES & SERVICES-
CiteScore
4.60
自引率
9.70%
发文量
201
审稿时长
21 weeks
期刊介绍: BMC Palliative Care is an open access journal publishing original peer-reviewed research articles in the clinical, scientific, ethical and policy issues, local and international, regarding all aspects of hospice and palliative care for the dying and for those with profound suffering related to chronic illness.
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