实现全民癫痫护理:基于生态系统的转型。

IF 6.6 1区 医学 Q1 CLINICAL NEUROLOGY
Epilepsia Pub Date : 2025-04-04 DOI:10.1111/epi.18400
Susanna Gallani, Bernice Martin Lee, Lidia M V R Moura
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引用次数: 0

摘要

癫痫是现代卫生保健面临的许多系统性挑战的例证——医疗服务分散、获取不公平、资金紧张等等。目前美国医疗保健的“系统的系统”(SoS)结构助长了其成员系统(例如,保险公司、医疗机构、提供者、研究人员、制药公司和技术供应商)之间的孤立运作,未能解决诸如护理连续性、临床医生倦怠和适当的资源分配等相互关联的问题。本文建议采用卫生保健生态系统方法作为解决方案,强调相互依赖、协作和公平。第1节考察了当前护理模式的缺点,重点关注其财务挑战和长期存在的系统性低效率。第2节解释了卫生保健生态系统的概念及其通过有机协调和集体问责制推动公平的潜力。它强调了关键成员系统——患者、倡导团体、专业组织、卫生保健提供者、付款人、购买者、政策制定者、研究人员和行业领导者——在实现脑卫生保健公平方面的作用。最后,第3节提出了从SoS向生态系统过渡的路线图,概述了多种可操作的策略,例如加强专业组织的宣传和数据共享,医疗保健提供者采用综合和多学科护理模式,以及优先考虑行业领导者的可负担性和协作性。政策制定者和联邦研究组织可以通过鼓励合作、扩大卫生服务研究资金和支持数据驱动的决策来支持这一转变。倡导团体可以扩大集体的声音,并帮助优先考虑改进机会。以癫痫治疗为例,本文认为,协调、多部门和多层次的努力可以成功和有效地应对系统性挑战,改善结果,减少不公平。它为实现慢性神经疾病的可持续、可扩展和公平护理提供了一个可复制的框架。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Achieving epilepsy care for all: Ecosystem-based transformation.

Epilepsy exemplifies many of the systemic challenges of modern health care-fragmented care delivery, inequitable access, financial strain, and so on. The current "system of systems" (SoS) structure of U.S. health care fosters siloed operations among its member systems (e.g., insurers, health care institutions, providers, researchers, pharmaceutical companies, and technology vendors), failing to address interconnected issues like care continuity, clinician burnout, and appropriate resource allocation. This article proposes embracing a health care ecosystem approach as a solution, emphasizing interdependence, collaboration, and equity. Section 1 examines the shortcomings of the current care model, with a focus on its financial challenges and the systemic inefficiencies it perpetuates. Section 2 explains the concept of a health care ecosystem and its potential to drive equity through organic coordination and collective accountability. It highlights the role of key member systems-patients, advocacy groups, professional organizations, health care providers, payers, purchasers, policymakers, researchers, and industry leaders-in achieving equity in brain health care. Finally, Section 3 presents a roadmap for transitioning from SoS to ecosystem, outlining multiple actionable strategies, such as enhancing advocacy and data sharing by professional organizations, adopting integrated and multidisciplinary care models by health care providers, and prioritizing affordability and collaboration by industry leaders. Policymakers and federal research organizations can support the transition by incentivizing collaboration, expanding funding for health services research, and supporting data-driven decision-making. Advocacy groups can amplify collective voices and help prioritize improvement opportunities. Using epilepsy care as an example condition, this article argues that coordinated, multi-sector, and multi-level efforts can successfully and efficiently address systemic challenges, improve outcomes, and reduce inequities. It offers a replicable framework for achieving sustainable, scalable, and equitable care for chronic neurological conditions.

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来源期刊
Epilepsia
Epilepsia 医学-临床神经学
CiteScore
10.90
自引率
10.70%
发文量
319
审稿时长
2-4 weeks
期刊介绍: Epilepsia is the leading, authoritative source for innovative clinical and basic science research for all aspects of epilepsy and seizures. In addition, Epilepsia publishes critical reviews, opinion pieces, and guidelines that foster understanding and aim to improve the diagnosis and treatment of people with seizures and epilepsy.
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