在全球大流行中创造交流和联系的机会:探索失语症患者的经历

IF 1.5 3区 医学 Q2 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY
Naomi de Graff, Lindsey Thiel
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引用次数: 0

摘要

失语症患者对话伙伴计划可以促进失语症患者的沟通和生活质量,并支持失语症学生的技能发展。初步证据表明,在线对话伙伴的形式是可以接受的,可以替代面对面的交流。目的评价全球大流行期间在线对话伙伴计划的PWA经验。方法,本定性研究通过半结构化访谈的方式收集了8位产妇的经验。反身性主题分析用于分析数据,创建主题和副主题,通过研究者的解释反映参与者的体验。结果,结果生成两个主主题,每个主主题都有子主题。第一个主题是在线交流和联系:“这太棒了”,还有以下几个主题:“它帮助了我,我也帮助了他们”、互惠互利、“我马上就能开口说话”、支持对话、“我们互相了解”、“联系”和“十分之九很容易”、方便和简单。第二个主题是“在网上做我自己”:缺少“我不知道该怎么说”,其子主题包括:“我喜欢握手”;缺少人际关系;“展示我自己,我自己,我自己,我的大约克郡”;自我表达受限;以及“Wetherspoons, Wetherspoons”:失去物理环境。结论,本研究支持了PWA在线会话伙伴计划是成功的现有证据。它为PWA提供了有关技术可接受性、互动和在线自我表达的原创想法,并考虑了将在线和面对面交流和连接机会结合起来的好处。大学会话伙伴计划已被证明可以提高PWA和学生的沟通技巧和信心。一小部分研究表明,在线对话伙伴计划是可行的,对一些(但不是所有)PWA来说是一种积极的体验。参与者发现,在2019冠状病毒病大流行期间,在线对话伙伴计划为他们提供了与学生交流和联系的机会,并带来了互惠互利,包括享受,提高沟通技巧,信心和目标感。他们能够通过支持的对话进行联系,并且发现在线见面既方便又容易。尽管有这些好处,但参与者觉得在人际关系、自我表达和物理环境方面有所欠缺。这项工作的潜在或实际临床意义是什么?这项研究表明,在线聊天伙伴计划为那些在面对面交流能力上受到限制或更喜欢呆在自己家里的人提供了一个机会。然而,由于经验、技能或技术支持有限,一些人在网上见面时可能会遇到更多障碍,并且可能会发现沟通、建立联系和表达自己更困难。无论是采用在线和面对面互动的结合方式,还是为PWA提供选择,都将确保他们仍然能够获得参与对话伙伴计划的心理社会益处。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Creating opportunities to communicate and connect in a global pandemic: Exploring the experiences of people with aphasia of an online conversation partner scheme

Creating opportunities to communicate and connect in a global pandemic: Exploring the experiences of people with aphasia of an online conversation partner scheme

Background

Conversation partner schemes for people with aphasia (PWA) can promote communication and quality of life as well as support skill development for students. Initial evidence indicates online conversation partner formats are acceptable as an alternative to in-person delivery.

Aims

To evaluate the experiences of PWA of an online conversation partner scheme during the global pandemic.

Methods & Procedures

This qualitative study captured the experiences of eight PWA through semi-structured interviews. Reflexive thematic analysis was used to analyse the data and to create themes and subthemes, reflecting the experiences of the participants through the interpretation of the researchers.

Outcomes & Results

Two main themes were generated, each with subthemes. The first theme was Communicating and connecting online: ‘It was brilliant’ with subthemes: ‘It help me and I help them’: Mutual benefits, ‘Straight away I managed to speak’: Supported conversations, ‘We got to know each other’: Connecting, and ‘Nine out of ten, easy’: Convenient and easy. The second theme was Being me online: lacks ‘Je ne sais quoi’ with subthemes: ‘I like to shake hands’: Missing a human connection, ‘Show me, me self, myself, my broad Yorkshire coming out’: Restricted self-expression, and ‘Wetherspoons, Wetherspoons’: Loss of the physical environment.

Conclusions & Implications

This study supports the existing evidence that online conversation partner schemes for PWA are successful. It contributes original ideas relating to the acceptability of technology, interaction and self-expression online for PWA, and considers the benefits of combining both online and face-to-face communication and connection opportunities.

WHAT THIS PAPER ADDS

What is already known on the subject

  • University conversation partner schemes have been shown to improve the communication skills and confidence of PWA and students. A small body of research has shown that online conversation partner schemes are feasible and can be a positive experience for some, but not all, PWA.

What this paper adds to the existing knowledge

  • Participants found that an online conversation partner scheme during the COVID-19 pandemic gave them the opportunity to communicate and connect with students, and led to mutual benefits including enjoyment, improved communication skills, confidence and a sense of purpose. They were able to connect through supported conversations and found it convenient and easy to meet online. Despite these benefits, the participants felt that there was something missing in terms of the human connection, self-expression and the physical environment.

What are the potential or actual clinical implications of this work?

  • This study suggests that online conversation partner schemes provide an opportunity for those who are restricted in their ability to meet face to face or would prefer the ease and comfort of staying in their own home. However, some people may face more barriers in meeting online due to limited experience, skills or support with technology, and may find it more difficult to communicate, build a connection and express themselves. Either using a combined approach of online and face-to-face interactions or providing a choice for PWA will ensure that they are still able to access the psychosocial benefits of participating in a conversation partner scheme.
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来源期刊
International Journal of Language & Communication Disorders
International Journal of Language & Communication Disorders AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.30
自引率
12.50%
发文量
116
审稿时长
6-12 weeks
期刊介绍: The International Journal of Language & Communication Disorders (IJLCD) is the official journal of the Royal College of Speech & Language Therapists. The Journal welcomes submissions on all aspects of speech, language, communication disorders and speech and language therapy. It provides a forum for the exchange of information and discussion of issues of clinical or theoretical relevance in the above areas.
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