{"title":"Death in advance or people living with dementia? Extending the philosophical discourse of Schweda and Jongsma through the persistence of self and other strengths.","authors":"Steven R Sabat, Alison Warren","doi":"10.1007/s40656-025-00664-8","DOIUrl":null,"url":null,"abstract":"<p><p>This article presents an extension of an article previously featured in History and Philosophy of the Life Sciences by Schweda and Jongsma (History and Philosophy of the Life Sciences, 2022), who aptly (1) critiqued the \"Zombification\" of people living with dementia by reviewing the historic and philosophic origins of this damaging metaphor and (2) offered a life course perspective to highlight the ethical implications related to biomedicine and the life sciences. Herein, we aim to build upon and constructively critique the important discourse offered by Schweda and Jongsma by (1) presenting a transdisciplinary perspective highlighting many important remaining social and cognitive abilities of people living with dementia that (2) further informs philosophical discussion and (3) provides ways of helping people diagnosed as well as formal and informal caregivers to live with dementia rather than enduring the damaging and incorrect \"living death\" notion, and its ramifications, of the syndrome. In the process, we will explore many inherent harms associated with the \"zombie-like\" construction of the syndrome: harms that entail dysfunctional treatment of people living with dementia. Specifically, we will draw upon evidence from psychology, sociology, philosophy, neurology, and neuroscience, to provide an integrated, whole-person perspective that adds specific dimensions to the life-course perspective and support the necessary multifaceted interdisciplinary and transdisciplinary research and clinical collaborations for this complex issue.</p>","PeriodicalId":56308,"journal":{"name":"History and Philosophy of the Life Sciences","volume":"47 2","pages":"21"},"PeriodicalIF":1.6000,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"History and Philosophy of the Life Sciences","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1007/s40656-025-00664-8","RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"HISTORY & PHILOSOPHY OF SCIENCE","Score":null,"Total":0}
引用次数: 0
摘要
Schweda和Jongsma曾在《生命科学的历史与哲学》(History and Philosophy of the Life Sciences, 2022)上发表过一篇文章,本文是对这篇文章的延伸,他们恰如其分地(1)通过回顾这一有害隐喻的历史和哲学起源,批判了痴呆症患者的 "僵尸化";(2)提供了一种生命历程视角,强调了与生物医学和生命科学相关的伦理意义。在本文中,我们的目标是在施韦达(Schweda)和琼斯马(Jongsma)提供的重要论述的基础上,通过以下方式对其进行建设性的批判:(1)提出一个跨学科的视角,强调痴呆症患者尚存的许多重要的社会和认知能力;(2)进一步为哲学讨论提供信息;(3)提供方法,帮助被诊断为痴呆症的患者以及正式和非正式的照顾者与痴呆症共存,而不是忍受该综合症具有破坏性的、不正确的 "活死人 "概念及其影响。在这一过程中,我们将探讨与该综合症的 "僵尸 "结构相关的许多内在危害:这些危害导致痴呆症患者的治疗功能失调。具体而言,我们将借鉴心理学、社会学、哲学、神经学和神经科学的证据,提供一种综合的、全人的视角,为生命过程视角增加特定的维度,并支持针对这一复杂问题开展必要的多方面跨学科研究和临床合作。
Death in advance or people living with dementia? Extending the philosophical discourse of Schweda and Jongsma through the persistence of self and other strengths.
This article presents an extension of an article previously featured in History and Philosophy of the Life Sciences by Schweda and Jongsma (History and Philosophy of the Life Sciences, 2022), who aptly (1) critiqued the "Zombification" of people living with dementia by reviewing the historic and philosophic origins of this damaging metaphor and (2) offered a life course perspective to highlight the ethical implications related to biomedicine and the life sciences. Herein, we aim to build upon and constructively critique the important discourse offered by Schweda and Jongsma by (1) presenting a transdisciplinary perspective highlighting many important remaining social and cognitive abilities of people living with dementia that (2) further informs philosophical discussion and (3) provides ways of helping people diagnosed as well as formal and informal caregivers to live with dementia rather than enduring the damaging and incorrect "living death" notion, and its ramifications, of the syndrome. In the process, we will explore many inherent harms associated with the "zombie-like" construction of the syndrome: harms that entail dysfunctional treatment of people living with dementia. Specifically, we will draw upon evidence from psychology, sociology, philosophy, neurology, and neuroscience, to provide an integrated, whole-person perspective that adds specific dimensions to the life-course perspective and support the necessary multifaceted interdisciplinary and transdisciplinary research and clinical collaborations for this complex issue.
期刊介绍:
History and Philosophy of the Life Sciences is an interdisciplinary journal committed to providing an integrative approach to understanding the life sciences. It welcomes submissions from historians, philosophers, biologists, physicians, ethicists and scholars in the social studies of science. Contributors are expected to offer broad and interdisciplinary perspectives on the development of biology, biomedicine and related fields, especially as these perspectives illuminate the foundations, development, and/or implications of scientific practices and related developments. Submissions which are collaborative and feature different disciplinary approaches are especially encouraged, as are submissions written by senior and junior scholars (including graduate students).