Andy Boyd, Katharine M Evans, Emma L Turner, Robin Flaig, Jacqui Oakley, Kirsteen C Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, Rebecca Whitehorn, Rachel Calkin, Abigail Hill, Samantha Berman, David Ford, Martin Tobin, David Porteous, Danielle F Gomes, Maria-Paz Garcia, Andrew Wong, Aida Sanchez, Chris Orton, Simon Thompson, John Gulliver, Kathryn Adams, Ellena Badrick, Chiara Batini, Michaela Benzeval, Susie Boatman, Gerome Breen, Shannon Bristow, Abigail Britten, Luke Bryant, Adam Butterworth, Archie Campbell, Sarah Chave, John Danesh, Jayati Das-Munshi, Karen Dennison, Emanuele Di Angelantonio, Thalia C Eley, Helen Fisher, Emla Fitzsimons, Alissa Goodman, Michael Gregg, Anna L Guyatt, Anna Hansell, Rebecca Harmston, Andy Heard, Morag Henderson, Rosie Hill, Szu-Chia Huang, Catherine John, Frank Kee, Nathalie Kingston, Jack Kneeshaw, Rashmi Kumar, Genevieve Lachance, Celestine Lockhart, Hazel Lockhart-Jones, Sarah Markham, Dan Mason, Bernadette McGuinness, Maisie McKenzie, Amy McMahon, Chelsea Mika Malouf, Mark Mumme, Charlotte Neville, Kate Northstone, Zoe Oldfield, Dara O'Neill, Manish Pareek, John Pickavance, Yasmin Rahman, Holly Reilly, Angela Scott, Deb Smith, Andrew Steptoe, Claire Steves, Cathie Sudlow, Gerald Sze, Nicholas L Timpson, Tapiwa Tungamirai, Laura Venn, Matthew Walker, Neil Walker, Nicolas Wareham, Aidan Watmuff, Tony Webb, Karen Williams, John Wright, Darioush Yarand, George B Ploubidis, John Macleod, Jonathan Ac Sterne, Nishi Chaturvedi
{"title":"英国纵向联系合作组织（UK LLC）：国家纵向研究可信研究环境。","authors":"Andy Boyd, Katharine M Evans, Emma L Turner, Robin Flaig, Jacqui Oakley, Kirsteen C Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, Rebecca Whitehorn, Rachel Calkin, Abigail Hill, Samantha Berman, David Ford, Martin Tobin, David Porteous, Danielle F Gomes, Maria-Paz Garcia, Andrew Wong, Aida Sanchez, Chris Orton, Simon Thompson, John Gulliver, Kathryn Adams, Ellena Badrick, Chiara Batini, Michaela Benzeval, Susie Boatman, Gerome Breen, Shannon Bristow, Abigail Britten, Luke Bryant, Adam Butterworth, Archie Campbell, Sarah Chave, John Danesh, Jayati Das-Munshi, Karen Dennison, Emanuele Di Angelantonio, Thalia C Eley, Helen Fisher, Emla Fitzsimons, Alissa Goodman, Michael Gregg, Anna L Guyatt, Anna Hansell, Rebecca Harmston, Andy Heard, Morag Henderson, Rosie Hill, Szu-Chia Huang, Catherine John, Frank Kee, Nathalie Kingston, Jack Kneeshaw, Rashmi Kumar, Genevieve Lachance, Celestine Lockhart, Hazel Lockhart-Jones, Sarah Markham, Dan Mason, Bernadette McGuinness, Maisie McKenzie, Amy McMahon, Chelsea Mika Malouf, Mark Mumme, Charlotte Neville, Kate Northstone, Zoe Oldfield, Dara O'Neill, Manish Pareek, John Pickavance, Yasmin Rahman, Holly Reilly, Angela Scott, Deb Smith, Andrew Steptoe, Claire Steves, Cathie Sudlow, Gerald Sze, Nicholas L Timpson, Tapiwa Tungamirai, Laura Venn, Matthew Walker, Neil Walker, Nicolas Wareham, Aidan Watmuff, Tony Webb, Karen Williams, John Wright, Darioush Yarand, George B Ploubidis, John Macleod, Jonathan Ac Sterne, Nishi Chaturvedi","doi":"10.23889/ijpds.v10i1.2468","DOIUrl":null,"url":null,"abstract":"<p><strong>Introduction: </strong>The UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the UK's longitudinal research community, supporting the UK's unparalleled collection of Longitudinal Population Studies (LPS). Initially set up as a COVID-19 research resource, UK LLC is now a generic database for any research for the public good.</p><p><strong>Objectives: </strong>UK LLC supports longitudinal research by providing record linkage and TRE services.</p><p><strong>Methods: </strong>The UK LLC partnership provides a secure analytics environment, a trusted third-party linkage processor and a comprehensive governance framework to minimise risks to participant confidentiality. UK LLC is ISO 27001 certified and accredited by the UK Statistics Authority as a processor under the Digital Economy Act. The active involvement by members of UK LLC's public involvement programme ensures UK LLC is acceptable to LPS participants and the wider public. All UK LPS are eligible for inclusion. Researchers can apply to access the TRE via an approach that fulfils the needs of the LPS, the linked data owners and includes a review by public contributors.</p><p><strong>Results: </strong>Twenty-two LPS have so far joined UK LLC. Where permissions allow, participants are linked to their National Health Service (NHS) England, NHS Wales and place-based records, with work ongoing to link to NHS Scotland and non-health administrative records, including Department for Work and Pensions and His Majesty's (HM) Revenue and Customs. UK LLC Explore allows potential researchers to discover the breadth of data available in the TRE. All applications are listed on UK LLC's publicly accessible Data Access Register.</p><p><strong>Conclusions: </strong>UK LLC enables researchers to interrogate pooled LPS participant data that are systematically linked to diverse records. UK LLC remains open to additional LPS joining the partnership and will increase the breadth of data to support the longitudinal research community and attract increasing numbers of researchers across multiple disciplines, government departments and industry.</p>","PeriodicalId":36483,"journal":{"name":"International Journal of Population Data Science","volume":"10 1","pages":"2468"},"PeriodicalIF":1.6000,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11931487/pdf/","citationCount":"0","resultStr":"{\"title\":\"UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research.\",\"authors\":\"Andy Boyd, Katharine M Evans, Emma L Turner, Robin Flaig, Jacqui Oakley, Kirsteen C Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, Rebecca Whitehorn, Rachel Calkin, Abigail Hill, Samantha Berman, David Ford, Martin Tobin, David Porteous, Danielle F Gomes, Maria-Paz Garcia, Andrew Wong, Aida Sanchez, Chris Orton, Simon Thompson, John Gulliver, Kathryn Adams, Ellena Badrick, Chiara Batini, Michaela Benzeval, Susie Boatman, Gerome Breen, Shannon Bristow, Abigail Britten, Luke Bryant, Adam Butterworth, Archie Campbell, Sarah Chave, John Danesh, Jayati Das-Munshi, Karen Dennison, Emanuele Di Angelantonio, Thalia C Eley, Helen Fisher, Emla Fitzsimons, Alissa Goodman, Michael Gregg, Anna L Guyatt, Anna Hansell, Rebecca Harmston, Andy Heard, Morag Henderson, Rosie Hill, Szu-Chia Huang, Catherine John, Frank Kee, Nathalie Kingston, Jack Kneeshaw, Rashmi Kumar, Genevieve Lachance, Celestine Lockhart, Hazel Lockhart-Jones, Sarah Markham, Dan Mason, Bernadette McGuinness, Maisie McKenzie, Amy McMahon, Chelsea Mika Malouf, Mark Mumme, Charlotte Neville, Kate Northstone, Zoe Oldfield, Dara O'Neill, Manish Pareek, John Pickavance, Yasmin Rahman, Holly Reilly, Angela Scott, Deb Smith, Andrew Steptoe, Claire Steves, Cathie Sudlow, Gerald Sze, Nicholas L Timpson, Tapiwa Tungamirai, Laura Venn, Matthew Walker, Neil Walker, Nicolas Wareham, Aidan Watmuff, Tony Webb, Karen Williams, John Wright, Darioush Yarand, George B Ploubidis, John Macleod, Jonathan Ac Sterne, Nishi Chaturvedi\",\"doi\":\"10.23889/ijpds.v10i1.2468\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Introduction: </strong>The UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the UK's longitudinal research community, supporting the UK's unparalleled collection of Longitudinal Population Studies (LPS). 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引用次数: 0
摘要
简介：英国纵向联系合作组织（UK LLC）是英国纵向研究界的国家可信研究环境（TRE），为英国无与伦比的纵向人口研究（LPS）资料库提供支持。UK LLC 最初是作为 COVID-19 研究资源建立的，现在已成为一个通用数据库，可用于任何公益研究：UK LLC 通过提供记录链接和 TRE 服务支持纵向研究：UK LLC 合作伙伴关系提供了一个安全的分析环境、一个值得信赖的第三方链接处理器和一个全面的管理框架，以最大限度地降低参与者的保密风险。UK LLC 通过了 ISO 27001 认证，并被英国统计局认可为《数字经济法案》规定的处理商。UK LLC 公众参与计划成员的积极参与确保了 UK LLC 为 LPS 参与者和广大公众所接受。所有英国 LPS 都有资格被纳入。研究人员可以通过满足 LPS、链接数据所有者需求的方法申请访问 TRE，其中包括由公众贡献者进行审查：结果：迄今为止，已有 22 个 LPS 加入英国 LLC。在权限允许的情况下，参与者与英格兰国家医疗服务系统（NHS）、威尔士国家医疗服务系统（NHS）和地方记录进行了链接，与苏格兰国家医疗服务系统（NHS）和非医疗行政记录（包括就业与养老金部和英国税务海关总署）的链接工作正在进行中。UK LLC Explore 允许潜在研究人员发现 TRE 中可用数据的广度。所有申请都列在 UK LLC 的公开数据访问注册表（Data Access Register.Conclusions）上：英国有限责任公司使研究人员能够查询汇集的 LPS 参与者数据，这些数据与不同的记录进行了系统链接。英国有限责任公司对更多的 LPS 加入合作伙伴关系持开放态度，并将增加数据的广度，为纵向研究界提供支持，吸引更多跨学科、跨政府部门和跨行业的研究人员。
UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research.
Introduction: The UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the UK's longitudinal research community, supporting the UK's unparalleled collection of Longitudinal Population Studies (LPS). Initially set up as a COVID-19 research resource, UK LLC is now a generic database for any research for the public good.
Objectives: UK LLC supports longitudinal research by providing record linkage and TRE services.
Methods: The UK LLC partnership provides a secure analytics environment, a trusted third-party linkage processor and a comprehensive governance framework to minimise risks to participant confidentiality. UK LLC is ISO 27001 certified and accredited by the UK Statistics Authority as a processor under the Digital Economy Act. The active involvement by members of UK LLC's public involvement programme ensures UK LLC is acceptable to LPS participants and the wider public. All UK LPS are eligible for inclusion. Researchers can apply to access the TRE via an approach that fulfils the needs of the LPS, the linked data owners and includes a review by public contributors.
Results: Twenty-two LPS have so far joined UK LLC. Where permissions allow, participants are linked to their National Health Service (NHS) England, NHS Wales and place-based records, with work ongoing to link to NHS Scotland and non-health administrative records, including Department for Work and Pensions and His Majesty's (HM) Revenue and Customs. UK LLC Explore allows potential researchers to discover the breadth of data available in the TRE. All applications are listed on UK LLC's publicly accessible Data Access Register.
Conclusions: UK LLC enables researchers to interrogate pooled LPS participant data that are systematically linked to diverse records. UK LLC remains open to additional LPS joining the partnership and will increase the breadth of data to support the longitudinal research community and attract increasing numbers of researchers across multiple disciplines, government departments and industry.
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