Rachel Knight Lozano, Harriet Shannon, Kayleigh Bell, Julia Melluish, Christopher Morris, Rachel Rapson, Jonathan Marsden
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引用次数: 0
摘要
目的：评估个性化反弹治疗计划对复杂神经残疾儿童胸部健康的可行性和影响：对 5 名 5-15 岁患有复杂性神经残疾的儿童进行了为期 18 周的单例 ABA 设计。干预措施包括连续六周每周两次在学校进行反弹治疗。简要结果包括家长/护理人员报告的胸部健康状况、生活质量和临床医生观察到的运动能力。每周序列结果包括胸部健康观察、常规护理变化、依从性和不良事件。家长在随访后完成了一次半结构化访谈。对定量数据进行描述性分析，对定性数据进行主题分析：病例内和病例间的研究结果表明，反弹疗法干预后运动能力有所改善。家长/护理人员报告的胸部健康和生活质量也有改善趋势，但这些变化并不是干预阶段特有的。运动能力、胸部健康和生活质量指标的改善通过定性访谈数据得到了验证：共同设计成功地为一项针对复杂神经残疾儿童的包容性、可行性干预研究提供了信息。然而，家长/护理人员报告的胸部健康、生活质量和观察到的运动能力的整体改善并不局限于干预阶段。测量工具缺乏已公布的阈值来确定变化是否具有临床意义。
Evaluating the impact of school-based rebound therapy on chest health in children and young people with neurodisability and respiratory issues: a series of single case studies.
Purpose: To evaluate feasibility and impact of an individualised rebound therapy programme on chest health in children with complex neurodisability.
Methods and materials: A single-case ABA design was conducted over 18 weeks with five children aged 5-15 years with complex neurodisability. Intervention involved twice weekly rebound therapy for six consecutive weeks in school. Summary outcomes included parent/carer-reported chest health, quality-of-life and clinician-observed motor ability. Serial weekly outcomes included chest health observations, usual care changes, adherence and adverse events. Parents completed a semi-structured interview after follow-up. Quantitative data were analysed descriptively and qualitative data were analysed using thematic analysis.
Results: Within-case and across-case findings indicated improvement in motor ability following rebound therapy intervention. Additional trends of improvement were noted in parent/carer-reported chest health and quality-of-life, but these changes were not specific to the intervention phase. Improvements in motor ability, chest health and quality-of-life indicators were verified through qualitative interview data.
Conclusion: Co-design successfully informed an inclusive, feasible intervention study for children with complex neurodisability. However, overall improvement in parent/carer-reported chest health, quality-of-life and observed motor ability were not limited to the intervention phase. Measurement tools lacked published thresholds to determine if changes were clinically significant.
期刊介绍：
Disability and Rehabilitation along with Disability and Rehabilitation: Assistive Technology are international multidisciplinary journals which seek to encourage a better understanding of all aspects of disability and to promote rehabilitation science, practice and policy aspects of the rehabilitation process.
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