Romany Murray, Victoria Clarke, Charlotte Flothmann
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"I am secretary, therapist, maid, nurse": a qualitative exploration of lived experiences of caring for a family member with a BPD diagnosis.
Background: Informal caring is an increasingly common phenomenon. Experiences of mental health caring are not well-researched, and few studies focus on experiences of family carers supporting individuals with a Borderline Personality Disorder (BPD) diagnosis.
Aims: This research explores lived experiences of people in caring roles for family members diagnosed with BPD.
Methods: Seventy-two participants who identified as carers to a loved one diagnosed with BPD completed an online qualitative survey. Six of these participants took part in follow-up interviews, and three completed a follow-up survey. Survey responses and interviews were compiled and analysed using reflexive thematic analysis.
Results: Two main themes were developed. "Labour of Love" involved experiences of burden and strain, and "Self as Secondary" incorporated feeling unheard and obliged to censor one's own behaviours.
Conclusions: Overall, this research broadens awareness of how a mental health diagnosis and a diagnosis of BPD specifically can have a broader, systemic impact on not only the individuals diagnosed, but their families and those providing support to them, and suggests that provision of support by healthcare providers to carers is necessary.
期刊介绍:
The Journal of Mental Health is an international forum for the latest research in the mental health field. Reaching over 65 countries, the journal reports on the best in evidence-based practice around the world and provides a channel of communication between the many disciplines involved in mental health research and practice. The journal encourages multi-disciplinary research and welcomes contributions that have involved the users of mental health services. The international editorial team are committed to seeking out excellent work from a range of sources and theoretical perspectives. The journal not only reflects current good practice but also aims to influence policy by reporting on innovations that challenge traditional ways of working.