Courtney S Streur, Jodi M Kreschmer, Mary E Crumbley, Jacqueline M Kaufman, Daniela A Wittmann, John F Bridges, Claire Z Kalpakjian
{"title":"青春期身体残疾女孩的社会发展:父母视角。","authors":"Courtney S Streur, Jodi M Kreschmer, Mary E Crumbley, Jacqueline M Kaufman, Daniela A Wittmann, John F Bridges, Claire Z Kalpakjian","doi":"10.1037/rep0000610","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose/objective: </strong>This study aims to investigate the parents' perspectives of the social experiences of their daughters with a physical disability during adolescence.</p><p><strong>Research method/design: </strong>Parents of girls with a physical disability aged 7-26 were recruited through a combination of convenience, purposive, and snowball sampling. Semistructured interviews were conducted with respect to the experience of adolescence for their daughters. An interpretive phenomenological analysis was performed by three members of the research team with lived and clinical experience to identify superordinate and subordinate themes describing mother's perceptions of their daughter's social experiences during adolescence.</p><p><strong>Results: </strong>Interviews were conducted with 21 mothers and mother-like figures of daughters (<i>Mdn</i><sub>age</sub> = 11) with spina bifida (10), cerebral palsy (nine), spinal cord injury (one), and another physical disability (one). We identified six superordinate themes, each defined by several experiences. These include amplification of differences during puberty (increasing differences and self-consciousness regarding differences), barriers to peer friendships (lack of opportunities, difficulties relating to peers with disabilities, difficulties relating to peers without disabilities, and lack of comfort with peers), facilitators of peer relationships (family support, school environment, and social skills), romantic relationship interest (perceived age-appropriate interest, perceived immature interest, and lack of interest), romantic relationship opportunities (lack of opportunities, relationship experiences, and parental support), and stability of parent-child relationships (dependence on mothers, impact of disability, and desire for independence).</p><p><strong>Conclusions/implications: </strong>Mothers perceived their daughters with a physical disability experience increased disability awareness and variable challenges with peer relationships during adolescence. Regardless of the disability characteristics, mothers felt their daughters struggled to fully relate to peers both with and without disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":47974,"journal":{"name":"Rehabilitation Psychology","volume":" ","pages":""},"PeriodicalIF":1.9000,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Social development of girls with a physical disability during adolescence: Parent perspectives.\",\"authors\":\"Courtney S Streur, Jodi M Kreschmer, Mary E Crumbley, Jacqueline M Kaufman, Daniela A Wittmann, John F Bridges, Claire Z Kalpakjian\",\"doi\":\"10.1037/rep0000610\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose/objective: </strong>This study aims to investigate the parents' perspectives of the social experiences of their daughters with a physical disability during adolescence.</p><p><strong>Research method/design: </strong>Parents of girls with a physical disability aged 7-26 were recruited through a combination of convenience, purposive, and snowball sampling. Semistructured interviews were conducted with respect to the experience of adolescence for their daughters. An interpretive phenomenological analysis was performed by three members of the research team with lived and clinical experience to identify superordinate and subordinate themes describing mother's perceptions of their daughter's social experiences during adolescence.</p><p><strong>Results: </strong>Interviews were conducted with 21 mothers and mother-like figures of daughters (<i>Mdn</i><sub>age</sub> = 11) with spina bifida (10), cerebral palsy (nine), spinal cord injury (one), and another physical disability (one). We identified six superordinate themes, each defined by several experiences. These include amplification of differences during puberty (increasing differences and self-consciousness regarding differences), barriers to peer friendships (lack of opportunities, difficulties relating to peers with disabilities, difficulties relating to peers without disabilities, and lack of comfort with peers), facilitators of peer relationships (family support, school environment, and social skills), romantic relationship interest (perceived age-appropriate interest, perceived immature interest, and lack of interest), romantic relationship opportunities (lack of opportunities, relationship experiences, and parental support), and stability of parent-child relationships (dependence on mothers, impact of disability, and desire for independence).</p><p><strong>Conclusions/implications: </strong>Mothers perceived their daughters with a physical disability experience increased disability awareness and variable challenges with peer relationships during adolescence. Regardless of the disability characteristics, mothers felt their daughters struggled to fully relate to peers both with and without disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>\",\"PeriodicalId\":47974,\"journal\":{\"name\":\"Rehabilitation Psychology\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":1.9000,\"publicationDate\":\"2025-03-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Rehabilitation Psychology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1037/rep0000610\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"PSYCHOLOGY, CLINICAL\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Rehabilitation Psychology","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1037/rep0000610","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"PSYCHOLOGY, CLINICAL","Score":null,"Total":0}
引用次数: 0
摘要
目的/目的:本研究旨在探讨父母对身体残疾女儿青春期社会经历的看法。研究方法/设计:采用方便抽样、目的抽样和滚雪球抽样相结合的方法,招募7-26岁身体残疾女孩的父母。对其女儿的青春期经历进行了半结构化访谈。研究小组的三名成员通过生活和临床经验进行了解释性现象学分析,以确定描述母亲对女儿青春期社会经验的感知的上级和下级主题。结果:对脊柱裂(10例)、脑瘫(9例)、脊髓损伤(1例)、肢体残疾(1例)的女儿(11例)的母亲及类母亲形象21例(Mdnage = 11)进行访谈。我们确定了六个高级主题,每个主题都由几个经验定义。这些因素包括青春期差异的放大(增加差异和对差异的自我意识),同伴友谊的障碍(缺乏机会,与残疾同伴交往的困难,与没有残疾的同伴交往的困难,以及与同伴缺乏舒适感),同伴关系的促进因素(家庭支持,学校环境和社交技巧),浪漫关系兴趣(感知到的与年龄相适应的兴趣,感知到不成熟的兴趣,缺乏兴趣),浪漫关系机会(缺乏机会,关系经验,父母支持),以及亲子关系的稳定性(对母亲的依赖,残疾的影响,以及对独立的渴望)。结论/启示:母亲认为她们的女儿有身体残疾,在青春期经历了更多的残疾意识和各种各样的同伴关系挑战。不管她们的残疾特征如何,母亲们都觉得她们的女儿很难与残疾和非残疾的同龄人充分相处。(PsycInfo Database Record (c) 2025 APA,版权所有)。
Social development of girls with a physical disability during adolescence: Parent perspectives.
Purpose/objective: This study aims to investigate the parents' perspectives of the social experiences of their daughters with a physical disability during adolescence.
Research method/design: Parents of girls with a physical disability aged 7-26 were recruited through a combination of convenience, purposive, and snowball sampling. Semistructured interviews were conducted with respect to the experience of adolescence for their daughters. An interpretive phenomenological analysis was performed by three members of the research team with lived and clinical experience to identify superordinate and subordinate themes describing mother's perceptions of their daughter's social experiences during adolescence.
Results: Interviews were conducted with 21 mothers and mother-like figures of daughters (Mdnage = 11) with spina bifida (10), cerebral palsy (nine), spinal cord injury (one), and another physical disability (one). We identified six superordinate themes, each defined by several experiences. These include amplification of differences during puberty (increasing differences and self-consciousness regarding differences), barriers to peer friendships (lack of opportunities, difficulties relating to peers with disabilities, difficulties relating to peers without disabilities, and lack of comfort with peers), facilitators of peer relationships (family support, school environment, and social skills), romantic relationship interest (perceived age-appropriate interest, perceived immature interest, and lack of interest), romantic relationship opportunities (lack of opportunities, relationship experiences, and parental support), and stability of parent-child relationships (dependence on mothers, impact of disability, and desire for independence).
Conclusions/implications: Mothers perceived their daughters with a physical disability experience increased disability awareness and variable challenges with peer relationships during adolescence. Regardless of the disability characteristics, mothers felt their daughters struggled to fully relate to peers both with and without disabilities. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
期刊介绍:
Rehabilitation Psychology is a quarterly peer-reviewed journal that publishes articles in furtherance of the mission of Division 22 (Rehabilitation Psychology) of the American Psychological Association and to advance the science and practice of rehabilitation psychology. Rehabilitation psychologists consider the entire network of biological, psychological, social, environmental, and political factors that affect the functioning of persons with disabilities or chronic illness. Given the breadth of rehabilitation psychology, the journal"s scope is broadly defined.