家庭主导型权力流动对严重多重发育障碍幼儿自我照顾、活动能力和社会功能的影响。

IF 1.3 Q3 REHABILITATION
Frontiers in rehabilitation sciences Pub Date : 2025-02-25 eCollection Date: 2025-01-01 DOI:10.3389/fresc.2025.1551536
Juan Aceros, Guilherme M Cesar, Ayshka Rodriguez, Mary Lundy
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引用次数: 0

摘要

导语:行动能力受损的儿童通常会对整体发展产生负面影响,导致抑郁、社会孤立和生活质量下降。目的:本研究探讨动力移动装置(PMD)对严重多发性发育障碍幼儿的功能独立和社会功能的影响,该装置采用两种不同的激活/转向技术。方法:12名患有神经肌肉、肌肉骨骼和遗传诊断以及代谢性进行性疾病的儿童(年龄范围12-54个月)参与研究。显著的认知、视觉或沟通障碍并不排除。提供了两种类型的激活和转向修改(比例控制操纵杆和直线跟随技术)。配对样本t检验比较了使用PMD三个月后儿童功能技能评估量表和照顾者协助量表的前后功能能力,每个量表都有自我照顾、行动能力和社会/认知量表。结果:功能技能(自我照顾显著提高9.8%,行动能力显著提高21.4%,社交/认知能力显著提高17.5%)和照顾者协助(自我照顾显著提高35.4%)的三个子量表均有改善。结论:这些定量结果支持了以往分析定性数据的研究结果,表明早期权力活动干预对重度发育障碍儿童的生活质量有积极的改善作用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The effects of family directed power mobility on self-care, mobility, and social function in very young children with severe multiple developmental impairments.

Introduction: Children with impaired mobility often experience negative impact on overall development leading to depression, social isolation, and perceived lower quality of life.

Objective: Our study explored the effects of Power Mobility Devices (PMD), in the form of modified ride-on toy cars with two distinct activation/steering technologies, on functional independent and social function in young children with severe multiple developmental impairments.

Methodology: Twelve children (age range 12-54 months) with neuromuscular, musculoskeletal, and genetic diagnoses, and metabolic progressive diseases participated. Significant cognitive, visual, or communication impairment was not exclusionary. Two types of activation and steering modifications (proportional control joystick and line follower technologies) were provided. Paired samples t-test contrasted pre-post functional capabilities after three months of PMD use in both Pediatric Evaluation of Disability Inventory scales of Functional Skills and Caregiver Assistance, each with the subscales self-care, mobility, and social/cognitive.

Findings: Improvements were observed in all three subscales for Functional Skills (significant 9.8% increase in self-care, 21.4% in mobility, and 17.5% social/cognitive) and Caregiver Assistance (significant 35.4% increase in self-care).

Conclusion: These quantitative results support findings of previous studies analyzing qualitative data, suggesting that early power mobility interventions provide positive improvements in the quality of life of children with severe developmental disabilities.

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