身体残疾对移植候选人的影响:一项对移植专业人员的多机构调查。

IF 3.7 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Jessica Marengo , Joel Michael Reynolds , Liz Bowen , Christoph Nabzdyk , Mariah Tanious
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引用次数: 0

摘要

背景:虽然实体器官移植评估过程旨在公平运作,但歧视性做法仍然存在,导致残疾人在获得器官移植方面存在差异。尽管对其评估和影响的共识有限,但身体功能和虚弱状态经常被引用为确定移植的因素。目的:本研究的目的是描述移植保健专业人员如何概念化身体残疾与移植候选之间的关系。方法:在2024年2月至3月期间,征求多学科移植方便样本进行电子调查。结果:在联系的126名专业人员中,有43名参与者做出了回应,回复率为34%。大多数参与者(88%)对身体残疾与移植候选资格的关系持有矛盾的观点(p = 0.049)。在评估移植候选人时,男性更有可能认可偏见意识(p = 0.008)。专业学科与移植过程公平性的感知、偏见的影响和生活质量的解释显著相关。反复的主题分析揭示了将脆弱与身体残疾混为一谈的倾向。结论:多学科移植专业人员很少公开支持残疾主义者的观点。然而,回应强调了身体功能和身体残疾的概念不一致,不明确,有时相互矛盾,这可能导致身体残疾个体获得实体器官移植的机会不同。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Impact of physical disability on transplant candidacy: A multi-institutional survey of transplant professionals

Background

While the solid organ transplant evaluation process is designed to function equitably, discriminatory practices remain, resulting in disparities in access for persons with disabilities. Physical function and frailty status are often-cited factors in establishing transplant, despite limited consensus on their assessment and impact.

Objective

The purpose of this study was to describe how transplant healthcare professionals conceptualize the relationship between physical disability and transplant candidacy.

Methods

A convenience sample of multidisciplinary transplant was solicited to respond to an electronic survey between February and March 2024.

Results

Of the 126 professionals contacted, 43 participants responded, yielding a response rate of 34 %. The majority of participants (88 %) held contradictory views of physical disability as it relates to transplant candidacy (p = 0.049). Men were more likely to endorse awareness of bias when evaluating transplant candidates (p = 0.008). Professional discipline was significantly associated with perception of transplant process fairness, impact of bias, and interpretation of quality of life. Iterative thematic analysis revealed a propensity to conflate frailty with physical disability.

Conclusions

Multidisciplinary transplant professionals rarely endorsed overtly ableist sentiments. However, responses highlighted inconsistent, unclear, and at times contradictory conceptions of physical function and physical disability, which may contribute to disparate access to solid organ transplant for individuals with physical disability.
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来源期刊
Disability and Health Journal
Disability and Health Journal HEALTH CARE SCIENCES & SERVICES-PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
CiteScore
7.50
自引率
6.70%
发文量
134
审稿时长
34 days
期刊介绍: Disability and Health Journal is a scientific, scholarly, and multidisciplinary journal for reporting original contributions that advance knowledge in disability and health. Topics may be related to global health, quality of life, and specific health conditions as they relate to disability. Such contributions include: • Reports of empirical research on the characteristics of persons with disabilities, environment, health outcomes, and determinants of health • Reports of empirical research on the Systematic or other evidence-based reviews and tightly conceived theoretical interpretations of research literature • Reports of empirical research on the Evaluative research on new interventions, technologies, and programs • Reports of empirical research on the Reports on issues or policies affecting the health and/or quality of life for persons with disabilities, using a scientific base.
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