实施PEIR框架和PEIR -22以促进改善和可持续的患者参与OMERACT

IF 4.6 2区医学 Q1 RHEUMATOLOGY

Seminars in arthritis and rheumatism Pub Date : 2025-02-27 DOI:10.1016/j.semarthrit.2025.152704

Caitlin Jones , Clayon Hamilton , Peter Tugwell , Shawna Grosskleg , Catherine Hofstetter , Ben Horgan , Alison Hoens , Dorcas Beaton

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引用次数: 0

摘要

domeract （Rheumatology outcomes Measures in Rheumatology）是一项国际倡议，旨在改善风湿病研究的结果测量，促进PRPs、临床医生和研究人员之间的合作，以开发核心结果集。包含22个项目的患者参与研究量表（PEIRS-22）是一种工具，旨在衡量有意义的患者参与水平并指导改进的努力。目的1)使用PEIRS-22产生的分数描述OMERACT患者参与的当前概况；2)评估PEIRS-22在OMERACT PRPs组中的有效性。方法采用PEIRS-22评估PRPs与OMERACT的有效结合程度。我们将得分与自评参与者参与度进行比较，并提出开放式问题，以调查该工具在OMERACT PRP人群中的有效性。结果总体投入是有意义的，且与自我报告的投入水平相关。然而，有一些组件和项目被标记为优先改进（便利，福利和团队环境），特别是PR11：我参与了项目的决策，T2：我是研究项目团队的平等合作伙伴，SU1：我得到了足够的支持来为项目做出贡献。结论本研究强调了PEIRS-22在OMERACT中的有效性，并揭示了有意义的PRP参与的满意水平。随着OMERACT的不断学习和发展，PEIRS-22将在制定结构化和一致的患者参与方法方面发挥不可或缺的作用。

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Implementing the PEIR Framework and PEIRS-22 to facilitate improved and sustainable patient engagement in OMERACT

Background

OMERACT (Outcome Measures in Rheumatology) is an international initiative focused on improving outcome measurement in rheumatology research, fostering collaboration among PRPs, clinicians, and researchers to develop Core Outcome Sets. The 22-item Patient Engagement In Research Scale (PEIRS-22) is a tool designed to measure the level of meaningful patient engagement and guide efforts towards improvement.

Aim

1) To describe the current profile of patient engagement at OMERACT using the scores generated by the PEIRS-22 and 2) to assess the validity of the PEIRS-22 within the OMERACT group of PRPs.

Methods

We administered the PEIRS-22 to assess the level of meaningful engagement of PRPs with OMERACT. We compared the scores with self-rated participant engagement, and asked open ended questions to investigate the validity of the tool in the OMERACT PRP population.

Results

Overall engagement was meaningful and correlated to self-reported level of engagement. However, there were components and items that were flagged as priorities for improvement (Convenience, Benefits and Team Environment, and specifically items PR11: I participated in making decisions about the project, T2: I was an equal partner in the research project team, and SU1: I received sufficient support to contribute to the project.

Conclusion

This study highlights the validity of the PEIRS-22 within OMERACT and reveals satisfactory levels of meaningful PRP engagement. As OMERACT continues to learn and evolve, the PEIRS-22 will be integral in developing a structured and consistent approach to patient engagement.

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来源期刊

Seminars in arthritis and rheumatism 医学-风湿病学

CiteScore

9.20

自引率

4.00%

发文量

176

审稿时长

46 days

期刊介绍： Seminars in Arthritis and Rheumatism provides access to the highest-quality clinical, therapeutic and translational research about arthritis, rheumatology and musculoskeletal disorders that affect the joints and connective tissue. Each bimonthly issue includes articles giving you the latest diagnostic criteria, consensus statements, systematic reviews and meta-analyses as well as clinical and translational research studies. Read this journal for the latest groundbreaking research and to gain insights from scientists and clinicians on the management and treatment of musculoskeletal and autoimmune rheumatologic diseases. The journal is of interest to rheumatologists, orthopedic surgeons, internal medicine physicians, immunologists and specialists in bone and mineral metabolism.