青少年1型糖尿病患者的健康素养:患者参与的定性研究

Q3 Medicine
Diabetes Spectrum Pub Date : 2024-08-30 eCollection Date: 2025-01-01 DOI:10.2337/ds24-0006
Margit Oien Nielsen, Hanne Frejlev, Anette Vestermark, Liva B Larsen, Anna Pietraszek, Jakob Dal, Dorte Melgaard
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引用次数: 0

摘要

目的:本定性研究探讨了丹麦青年1型糖尿病患者面临的挑战和知识差距,并随后引入了一个信息项目,以增强这些青年糖尿病自我管理的能力。研究设计与方法:纳入9例年龄在18-25岁、独立生活或与伴侣同居的1型糖尿病年轻患者。通过邮件或电话邀请有关与会者。小组访谈揭示了提高糖尿病健康素养所必需的具体知识要求。根据这些采访,举行了四次教育会议。结果:参与者确定了相关主题,包括饮酒、血糖控制、教育和就业方面、营养、性、怀孕、关系以及与卫生保健专业人员(HCPs)的互动。值得注意的是,参与者表达了对个性化互动的偏好,而不是通过移动应用程序等数字平台传播信息。基于这一认识,我们组织了四次会议,就确定的主题提供教育。这些会议的目的是促进与会者之间的联系,并为他们提供讨论的机会。虽然邀请扩展到所有18-25岁的1型糖尿病患者(n = 52),但只有13名患者和7名亲属参加。与会者的反馈非常积极。不参与的原因包括健忘或不愿参与群体活动。结论:1型糖尿病年轻人喜欢与健康护理人员接触。他们不希望通过数字应用程序和虚拟媒体获得知识,而是希望与平等的人见面。然而,让他们参与社会活动仍然很困难。如何与患有1型糖尿病的年轻人建立联系以加强他们的健康知识这一问题仍未得到解决,因此需要采取进一步的创新举措。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Health Literacy Among Young People With Type 1 Diabetes: A Qualitative Study of Patient Involvement.

Objective: This qualitative study explored the challenges and knowledge gaps among Danish youth with type 1 diabetes and subsequently introduced an information program to empower these youth in their diabetes self-management.

Research design and methods: Nine young patients 18-25 years of age who were diagnosed with type 1 diabetes, living independently, or cohabiting with a partner were included. Relevant participants were invited by mail or telephone. Group interviews were conducted to uncover the specific knowledge requirements essential for improving their diabetes health literacy. Based on these interviews, four education sessions were held.

Results: The participants identified pertinent topics, including alcohol consumption, blood glucose control, educational and employment aspects, nutrition, sexuality, pregnancy, relationships, and interactions with health care professionals (HCPs). Notably, the participants expressed a preference for personalized interactions over information dissemination through digital platforms such as mobile applications. Building on this insight, we organized four sessions to provide education on the identified subjects. These sessions were designed to facilitate networking among participants and offer them the opportunity for discussion. Although invitations were extended to all individuals aged 18-25 years with type 1 diabetes (n = 52), only 13 patients and seven relatives participated. The feedback from attendees was overwhelmingly positive. Reasons for nonparticipation included forgetfulness or a reluctance to engage in group settings.

Conclusion: Young people with type 1 diabetes appreciate personal contact with HCPs. They do not want to receive knowledge via digital apps and virtual media but instead to meet with equals. However, it remains difficult to involve them in social events. The problem of how to create contact with young people with type 1 diabetes to strengthen their health literacy remains unsolved, and there is a need for further innovative initiatives.

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来源期刊
Diabetes Spectrum
Diabetes Spectrum Medicine-Internal Medicine
CiteScore
2.70
自引率
0.00%
发文量
62
期刊介绍: The mission of Diabetes Spectrum: From Research to Practice is to assist health care professionals in the development of strategies to individualize treatment and diabetes self-management education for improved quality of life and diabetes control. These goals are achieved by presenting review as well as original, peer-reviewed articles on topics in clinical diabetes management, professional and patient education, nutrition, behavioral science and counseling, educational program development, and advocacy. In each issue, the FROM RESEARCH TO PRACTICE section explores, in depth, a diabetes care topic and provides practical application of current research findings.
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