成人过渡与母亲生活质量:1型糖尿病的影响。

IF 1.2 4区 医学 Q3 FAMILY STUDIES
Michelle M Ness, Jennifer Saylor
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引用次数: 0

摘要

引言:关于母亲在青春期-青年期向成年期过渡期间的生活质量的信息缺乏。为了确保在整个生命周期中以家庭为中心的护理,本研究旨在更好地了解1型糖尿病对母亲在青春期-青年期过渡到成年期生活质量的影响。方法:在这项采用家庭管理风格框架的趋同平行混合方法研究中,72名青少年-年轻人(15-25岁)的母亲完成了社会支持、糖尿病困扰和1型糖尿病相关生活质量的测量。从这个样本中,12位母亲参加了访谈,以进一步表征1型糖尿病对母亲在成年期的影响。结果:母亲们报告了持续的与1型糖尿病相关的痛苦,这些痛苦与糖尿病管理缺乏控制、睡眠模式中断和缺乏支持有关。1型糖尿病健康相关生活质量与感知社会支持呈正相关(τb = 0.194, p < 0.024),与糖尿病痛苦负相关(τb = -)。629, p < .001)。讨论:尽管母亲在青少年-青年向成年过渡的过程中扮演着重要的角色,但在现有的研究中,母亲在这一时期的需求在很大程度上被忽视了。在此期间,孤立、缺乏控制和睡眠中断导致母亲患1型糖尿病的痛苦增加,生活质量下降。这项研究强调了1型糖尿病对母亲的长期影响,并强调了在母亲向成年过渡期间持续提供专业支持的必要性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The transition to adulthood and mothers' quality of life: The influence of type 1 diabetes.

Introduction: There is a paucity of information about the quality of life in mothers during their adolescent-young adult's transition to adulthood. To ensure family-centered care throughout the lifespan, this research seeks to gain a better understanding of the influence of Type 1 diabetes on the mother's quality of life during their adolescent-young adult's transition to adulthood.

Method: In this convergent parallel mixed methods study using the Family Management Style Framework, a sample of 72 mothers of adolescent-young adults (15-25 years) completed measures of social support, diabetes distress, and Type 1 diabetes health-related quality of life. From this sample, 12 mothers participated in interviews to further characterize the influences of Type 1 diabetes on mothers during the transition to adulthood.

Results: Mothers reported continued Type 1 diabetes-related distress related to lack of control of diabetes management, disrupted sleep patterns, and lack of support. Type 1 diabetes health-related quality of life was positively associated with perceived social support (τb = .194, p < .024) and negatively associated with diabetes distress (τb = -.629, p < .001).

Discussion: Despite the significance of their role during the adolescent-young adult transition to adulthood, the needs of mothers during this time have been largely ignored in extant research. Isolation, lack of control, and disrupted sleep led to increased Type 1 diabetes distress and diminished quality of life for mothers during this time. This study highlights the long-term consequences of Type 1 diabetes on mothers and emphasizes the need for continued professional support for mothers during the transition to adulthood. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

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来源期刊
Families Systems & Health
Families Systems & Health HEALTH CARE SCIENCES & SERVICES-PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
CiteScore
1.50
自引率
7.70%
发文量
81
审稿时长
>12 weeks
期刊介绍: Families, Systems, & Health publishes clinical research, training, and theoretical contributions in the areas of families and health, with particular focus on collaborative family healthcare.
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