{"title":"成人过渡与母亲生活质量:1型糖尿病的影响。","authors":"Michelle M Ness, Jennifer Saylor","doi":"10.1037/fsh0000957","DOIUrl":null,"url":null,"abstract":"<p><strong>Introduction: </strong>There is a paucity of information about the quality of life in mothers during their adolescent-young adult's transition to adulthood. To ensure family-centered care throughout the lifespan, this research seeks to gain a better understanding of the influence of Type 1 diabetes on the mother's quality of life during their adolescent-young adult's transition to adulthood.</p><p><strong>Method: </strong>In this convergent parallel mixed methods study using the Family Management Style Framework, a sample of 72 mothers of adolescent-young adults (15-25 years) completed measures of social support, diabetes distress, and Type 1 diabetes health-related quality of life. From this sample, 12 mothers participated in interviews to further characterize the influences of Type 1 diabetes on mothers during the transition to adulthood.</p><p><strong>Results: </strong>Mothers reported continued Type 1 diabetes-related distress related to lack of control of diabetes management, disrupted sleep patterns, and lack of support. Type 1 diabetes health-related quality of life was positively associated with perceived social support (τb = .194, <i>p</i> < .024) and negatively associated with diabetes distress (τb = -.629, <i>p</i> < .001).</p><p><strong>Discussion: </strong>Despite the significance of their role during the adolescent-young adult transition to adulthood, the needs of mothers during this time have been largely ignored in extant research. Isolation, lack of control, and disrupted sleep led to increased Type 1 diabetes distress and diminished quality of life for mothers during this time. This study highlights the long-term consequences of Type 1 diabetes on mothers and emphasizes the need for continued professional support for mothers during the transition to adulthood. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>","PeriodicalId":55612,"journal":{"name":"Families Systems & Health","volume":" ","pages":""},"PeriodicalIF":1.2000,"publicationDate":"2025-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"The transition to adulthood and mothers' quality of life: The influence of type 1 diabetes.\",\"authors\":\"Michelle M Ness, Jennifer Saylor\",\"doi\":\"10.1037/fsh0000957\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Introduction: </strong>There is a paucity of information about the quality of life in mothers during their adolescent-young adult's transition to adulthood. To ensure family-centered care throughout the lifespan, this research seeks to gain a better understanding of the influence of Type 1 diabetes on the mother's quality of life during their adolescent-young adult's transition to adulthood.</p><p><strong>Method: </strong>In this convergent parallel mixed methods study using the Family Management Style Framework, a sample of 72 mothers of adolescent-young adults (15-25 years) completed measures of social support, diabetes distress, and Type 1 diabetes health-related quality of life. From this sample, 12 mothers participated in interviews to further characterize the influences of Type 1 diabetes on mothers during the transition to adulthood.</p><p><strong>Results: </strong>Mothers reported continued Type 1 diabetes-related distress related to lack of control of diabetes management, disrupted sleep patterns, and lack of support. Type 1 diabetes health-related quality of life was positively associated with perceived social support (τb = .194, <i>p</i> < .024) and negatively associated with diabetes distress (τb = -.629, <i>p</i> < .001).</p><p><strong>Discussion: </strong>Despite the significance of their role during the adolescent-young adult transition to adulthood, the needs of mothers during this time have been largely ignored in extant research. Isolation, lack of control, and disrupted sleep led to increased Type 1 diabetes distress and diminished quality of life for mothers during this time. This study highlights the long-term consequences of Type 1 diabetes on mothers and emphasizes the need for continued professional support for mothers during the transition to adulthood. (PsycInfo Database Record (c) 2025 APA, all rights reserved).</p>\",\"PeriodicalId\":55612,\"journal\":{\"name\":\"Families Systems & Health\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":1.2000,\"publicationDate\":\"2025-02-13\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Families Systems & Health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1037/fsh0000957\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"FAMILY STUDIES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Families Systems & Health","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1037/fsh0000957","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"FAMILY STUDIES","Score":null,"Total":0}
引用次数: 0
摘要
引言:关于母亲在青春期-青年期向成年期过渡期间的生活质量的信息缺乏。为了确保在整个生命周期中以家庭为中心的护理,本研究旨在更好地了解1型糖尿病对母亲在青春期-青年期过渡到成年期生活质量的影响。方法:在这项采用家庭管理风格框架的趋同平行混合方法研究中,72名青少年-年轻人(15-25岁)的母亲完成了社会支持、糖尿病困扰和1型糖尿病相关生活质量的测量。从这个样本中,12位母亲参加了访谈,以进一步表征1型糖尿病对母亲在成年期的影响。结果:母亲们报告了持续的与1型糖尿病相关的痛苦,这些痛苦与糖尿病管理缺乏控制、睡眠模式中断和缺乏支持有关。1型糖尿病健康相关生活质量与感知社会支持呈正相关(τb = 0.194, p < 0.024),与糖尿病痛苦负相关(τb = -)。629, p < .001)。讨论:尽管母亲在青少年-青年向成年过渡的过程中扮演着重要的角色,但在现有的研究中,母亲在这一时期的需求在很大程度上被忽视了。在此期间,孤立、缺乏控制和睡眠中断导致母亲患1型糖尿病的痛苦增加,生活质量下降。这项研究强调了1型糖尿病对母亲的长期影响,并强调了在母亲向成年过渡期间持续提供专业支持的必要性。(PsycInfo Database Record (c) 2025 APA,版权所有)。
The transition to adulthood and mothers' quality of life: The influence of type 1 diabetes.
Introduction: There is a paucity of information about the quality of life in mothers during their adolescent-young adult's transition to adulthood. To ensure family-centered care throughout the lifespan, this research seeks to gain a better understanding of the influence of Type 1 diabetes on the mother's quality of life during their adolescent-young adult's transition to adulthood.
Method: In this convergent parallel mixed methods study using the Family Management Style Framework, a sample of 72 mothers of adolescent-young adults (15-25 years) completed measures of social support, diabetes distress, and Type 1 diabetes health-related quality of life. From this sample, 12 mothers participated in interviews to further characterize the influences of Type 1 diabetes on mothers during the transition to adulthood.
Results: Mothers reported continued Type 1 diabetes-related distress related to lack of control of diabetes management, disrupted sleep patterns, and lack of support. Type 1 diabetes health-related quality of life was positively associated with perceived social support (τb = .194, p < .024) and negatively associated with diabetes distress (τb = -.629, p < .001).
Discussion: Despite the significance of their role during the adolescent-young adult transition to adulthood, the needs of mothers during this time have been largely ignored in extant research. Isolation, lack of control, and disrupted sleep led to increased Type 1 diabetes distress and diminished quality of life for mothers during this time. This study highlights the long-term consequences of Type 1 diabetes on mothers and emphasizes the need for continued professional support for mothers during the transition to adulthood. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
Families Systems & HealthHEALTH CARE SCIENCES & SERVICES-PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH
CiteScore
1.50
自引率
7.70%
发文量
81
审稿时长
>12 weeks
期刊介绍:
Families, Systems, & Health publishes clinical research, training, and theoretical contributions in the areas of families and health, with particular focus on collaborative family healthcare.