“但我生活在希望中……”“幸存者”一词如何影响卵巢癌治疗后幸存者服务的身份和包容性。

IF 2.4 3区 心理学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY
Sally-Anne Boding, Amanda Hutchinson, Tamara Butler, Stephanie Webb, Hayley Russell
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引用次数: 0

摘要

目的:了解卵巢癌患者如何理解和认同“幸存者”一词,这是否影响了幸存者服务的接受,以及在澳大利亚的背景下,患者在治疗后是否感到被纳入或认同这些服务。方法:采用半结构化访谈法对18名年龄在40 ~ 72岁之间的个体(M = 57)进行访谈。使用社会认同理论的镜头,数据分析使用反身性主题分析。结果:产生了两个主题,“但我生活在希望中”:“幸存者”一词的社会结构如何影响其意义和融入自我认同”和“被遗忘或被排斥:治疗后护理的现实”,副主题为“倡导和成长:排斥的颠覆”。参与者拒绝了“幸存者”的身份,因为这意味着无法实现的终结。由于缺乏常规提供的或治疗后可获得的支助服务,这种情况更加严重。通过排斥,参与者创建了自己的支持团体,并加入了倡导团体,从而重新定义/重新解释了他们与“幸存者”叙述分开的身份,并提供了联系和目的。结论:支持服务和策略(如社会处方)应在澳大利亚常规提供治疗后。卵巢癌患者应该了解术语,从而支持以适合特定需求和愿望的方式继续生活。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
'… but I live in hope …' how the term 'survivor' impacts identity and feelings of inclusivity in survivorship services following ovarian cancer treatment.

Objective: To understand how individuals with ovarian cancer interpret and identify with the term 'survivor' and if this impacts survivorship service uptake and whether individuals feel included or identify with these services following treatment within the Australian context.

Methods: Semi-structured interviews were conducted with 18 individuals aged 40-72 (M = 57). Using a social identity theory lens, data were analysed using reflexive thematic analysis.

Results: Two themes were generated, 'But I live in hope': How social constructs of the term 'survivor' impact on its meaning and inclusion into self-identity' and 'Forgotten or excluded: The realities of care after treatment' with the subtheme 'Advocacy and growth: Subversion from exclusion'. Participants rejected the 'survivor' identity due to connotations of unachievable finality. This was reinforced by the absence of support services routinely offered or available following treatment. Through exclusion, participants created their own support groups and joined advocacy groups, thereby redefine/reinterpret their identities separate to the 'survivor' narrative and providing connection and purpose.

Conclusion: Support services and strategies (such as social prescribing) should be routinely offered following treatment within Australia. Terminology should be informed by individuals with ovarian cancer, thereby supporting moving forward with life in ways that are tailored to specific needs and wants.

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来源期刊
CiteScore
7.30
自引率
3.00%
发文量
95
期刊介绍: Psychology & Health promotes the study and application of psychological approaches to health and illness. The contents include work on psychological aspects of physical illness, treatment processes and recovery; psychosocial factors in the aetiology of physical illnesses; health attitudes and behaviour, including prevention; the individual-health care system interface particularly communication and psychologically-based interventions. The journal publishes original research, and accepts not only papers describing rigorous empirical work, including meta-analyses, but also those outlining new psychological approaches and interventions in health-related fields.
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