Shruthi Srinivas, Sarah Driesbach, Madeline Su, Aymin Bahhur, Elizabeth Thomas, Casey Trimble, Pooja Zahora, Katherine Bergus, Alessandra C Gasior, Ihab Halaweish, Richard J Wood
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引用次数: 0
摘要
背景在先天性巨结肠疾病(Hirschsprung disease, HD)患者中,盆底物理疗法(pelvic floor physical therapy, PFPT)被推荐用于其他治疗难治性持续性尿失禁或便秘,但目前尚无PFPT的应用研究。我们的目的是评估与成功建立PFPT和PFPT后的结果相关的临床和社会人口学因素。方法:我们对2020 - 2023年间进行PFPT的HD患者进行了单机构回顾性图表回顾,包括运动和生物反馈。收集PFPT前后的临床因素、社会人口统计学和症状的数据。那些“看到了PFPT”的人,定义为至少一次面对面的预约,与那些没有看到PFPT的人进行比较;并对症状进行比较。p值为0.05被认为是显著的。结果83例患者中有37例(44.6%)采用了PFPT。在年龄、过渡区、既往干预或症状方面没有差异。接受PFPT治疗的患者中有一半只完成了首次就诊;五分之一的人完成了这个系列。无法看到PFPT的最常见原因是调度问题。未能看到PFPT的患者有财务压力源(42.5% vs 16.1%, p=0.02),需要正式的支持系统(28.2% vs 3.3%, p=0.02)。在接受PFPT治疗的患者中,尿失禁明显改善(术前81.1% vs术后40.5%,p=0.001)。结论:虽然推荐在HD儿童中使用PFPT,但那些有经济压力或日程安排问题的儿童可能难以获得PFPT。然而,那些接受PFPT治疗的患者症状有所改善。这表明需要改善儿科PFPT对HD患儿的可及性,例如将PFPT整合到结直肠诊所。
Evaluating Access and Efficacy of Pelvic Floor Physical Therapy in Pediatric Hirschsprung Disease.
In patients with Hirschsprung disease (HD), pelvic floor physical therapy (PFPT) is recommended for persistent incontinence or constipation refractory to other treatment, but there are no studies on utilization of PFPT. We aimed to assess clinical and sociodemographic factors associated with successful establishment of PFPT and outcomes following PFPT.We performed a single-institution, retrospective chart review of patients with HD referred to PFPT between 2020 and 2023, involving both exercise and biofeedback. Data were collected on clinical factors, sociodemographics, and symptoms before and after PFPT. Those who "saw PFPT," defined as at least one in-person appointment, were compared to those who did not see PFPT; symptoms were also compared. A p-value of 0.05 was considered significant.There were 83 patients, of which 37 (44.6%) saw PFPT. There were no differences in age, transition zone, prior interventions, or symptoms. Half of the patients who saw PFPT only completed an initial visit; one-fifth completed the series. Most common reason for failure to see PFPT was scheduling issues. Patients who failed to see PFPT had financial stressors (42.5% vs. 16.1%, p = 0.02) and required formal support systems (28.2% vs. 3.3%, p = 0.02). In patients seeing PFPT, incontinence significantly improved (81.1% before vs. 40.5% after, p = 0.001).Although PFPT is recommended in children with HD, those with financial stressors or scheduling issues may have barriers to access. However, those who see PFPT have improved symptoms. This suggests a need for improved accessibility of pediatric PFPT to children with HD, such as integration of PFPT into colorectal clinics.
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